{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T16:08:36Z","timestamp":1790784516752,"version":"4.1.0"},"reference-count":27,"publisher":"Wiley","issue":"7","license":[{"start":{"date-parts":[[2024,2,5]],"date-time":"2024-02-05T00:00:00Z","timestamp":1707091200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acad Dermatol Venereol"],"published-print":{"date-parts":[[2024,7]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Dermatoses represent a significant burden. Patients and their caregivers can turn to social media and digital communities to exchange with each other. These public exchanges constitute real\u2010life data that can be analysed to better understand the patients' feelings and expectations, and the daily difficulties encountered.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>An infodemiologic study of public testimonies of patients and caregivers related to five dermatoses: eczema, rosacea, vitiligo, acne and psoriasis, over a 3\u2010year time frame (September 2018 to September 2021) in France. To identify main topics of discussion, encountered difficulties and unmet medical needs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Data extraction was performed based on a list of pertinent keywords. Web\u2010users' profiles were determined by a specifically trained machine learning algorithm. Encountered difficulties were identified by manual annotation based on a standardized search grid. Co\u2010occurrence analysis of difficulties allowed contextualization of challenges and unmet needs for each dermatosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 20,282 messages coming from 16,800 web users was extracted. The main topics of discussion were \u2018Impact on self\u2010 image and self\u2010confidence\u2019 (23.6%), \u2018Generic discussion about therapeutics\u2019 (23.3%) and \u2018Burden of others' gaze\u2019 (12.8%). The top three mentioned difficulties for the five targeted dermatoses were similar and focused on \u2018Fear of\/and management of symptoms\u2019, \u2018Impact on\/and mood management\u2019 and \u2018Damaged self\u2010image\u2019.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This infodemiologic study highlighted the real\u2010life management of five skin diseases by patients and their caregivers, who turned to social networks to openly express their suffering and seek solutions. The joined analysis of the five diseases enabled a common comprehension of what it is to live with a skin disease, from a patient\u2010centric point of view. The specific analysis of each patient group objectified specific challenges, and main unmet medical needs.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jdv.19781","type":"journal-article","created":{"date-parts":[[2024,2,7]],"date-time":"2024-02-07T02:57:14Z","timestamp":1707274634000},"page":"1373-1382","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Patients' testimonies, feelings, complaints and emotional experiences with dermatoses on open social media: The French infodemiologic patient's free speech study"],"prefix":"10.1111","volume":"38","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5936-7753","authenticated-orcid":false,"given":"Tom","family":"Marty","sequence":"first","affiliation":[{"name":"Kap Code  Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Micka\u00efl","family":"Khadar","sequence":"additional","affiliation":[{"name":"Kap Code  Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lina","family":"Autelitano","sequence":"additional","affiliation":[{"name":"Pierre Fabre Dermo\u2010Cosm\u00e9tique  Toulouse France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine","family":"Baissac","sequence":"additional","affiliation":[{"name":"Pierre Fabre Dermo\u2010Cosm\u00e9tique  Toulouse France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adel","family":"Mebarki","sequence":"additional","affiliation":[{"name":"Kap Code  Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathalie","family":"Texier","sequence":"additional","affiliation":[{"name":"Kap Code  Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"St\u00e9phane","family":"Sch\u00fcck","sequence":"additional","affiliation":[{"name":"Kap Code  Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie\u2010Claude","family":"Boiteux","sequence":"additional","affiliation":[{"name":"F\u00e9d\u00e9ration fran\u00e7aise de la peau  Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0870-9132","authenticated-orcid":false,"given":"Marie\u2010Aleth","family":"Richard","sequence":"additional","affiliation":[{"name":"Service de Dermatologie Timone Hospital, Aix\u2010Marseille University  Marseille Provence\u2010Alpes\u2010C\u00f4te d'Azur France"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,2,5]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1586\/erp.09.23"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2133.2004.06058.x"},{"issue":"2","key":"e_1_2_10_4_1","first-page":"107","article-title":"Skin disease in Lambeth. 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