{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T17:21:13Z","timestamp":1791652873050,"version":"4.3.4"},"reference-count":24,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2024,12,13]],"date-time":"2024-12-13T00:00:00Z","timestamp":1734048000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acad Dermatol Venereol"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Inherited epidermolysis bullosa (EB) comprises a group of genetic disorders characterized by skin fragility and unique oral features. It requires interdisciplinary care from several health professionals, including oral health teams. Modern dentistry encompasses a wide range of therapeutic options performed by specialists from different fields.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>To guide clinicians caring for patients with different types of EB to seek care from different dental services.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Dental treatment needs for patients with EB were identified based on a systematic literature review. A panel of experts was consulted and invited to provide additional information through an open\u2010ended question over 7\u2009months. A Delphi study was applied over two rounds to the resulting pathways design. The threshold of consensus was set a priori at 75%. Patients' representatives revised the final document.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The panel (<jats:italic>n<\/jats:italic>\u2009=\u200917) agreed on a total of 55 recommendations divided into six groups according to the severity of oral compromise in EB (52 recommendations were agreed on in round 1, and three were agreed on in round 2).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Dental care pathways are presented for each type of EB. Specific considerations are discussed according to clinical features, including age of first referral, frequency of follow\u2010up appointments, and list of dental specialties involved in the care of patients with EB.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jdv.20498","type":"journal-article","created":{"date-parts":[[2024,12,14]],"date-time":"2024-12-14T07:19:34Z","timestamp":1734160774000},"page":"1080-1090","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Oral health care pathways for patients with epidermolysis bullosa: A position statement from the European reference network for rare skin diseases"],"prefix":"10.1111","volume":"39","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8510-4022","authenticated-orcid":false,"given":"S.","family":"Kr\u00e4mer","sequence":"first","affiliation":[{"name":"Department of Dermatology and Venereology Medical Center \u2013 University of Freiburg  Freiburg Germany"},{"name":"ERN\u2010Skin (European Network for Rare Skin Disease)"},{"name":"Special Care Dentistry Unit, Facultad de Odontolog\u00eda Universidad de Chile  Santiago Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A. L.","family":"Hillebrecht","sequence":"additional","affiliation":[{"name":"Department of Prosthetic Dentistry, Centre for Dental Medicine Medical Centre \u2013 University of Freiburg  Freiburg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Bekes","sequence":"additional","affiliation":[{"name":"Department of Paediatric Dentistry University Clinic of Dentistry, Medical University of Vienna  Vienna Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"B\u00fccher","sequence":"additional","affiliation":[{"name":"Section for Paediatric Dentistry, Department of Conservative Dentistry and Periodontology University Hospital, Ludwig\u2010Maximilians\u2010University  Munich Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"V.","family":"Clark","sequence":"additional","affiliation":[{"name":"Birmingham Children's Hospital  Birmingham UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"H.","family":"Haririan","sequence":"additional","affiliation":[{"name":"Department of Periodontology, Dental Clinic, Faculty of Medicine Sigmund Freud University  Vienna Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Jakowski","sequence":"additional","affiliation":[{"name":"Department of Oral Surgery and Dental Emergency Care, Faculty of Health Witten\/Herdecke University  Witten Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.","family":"Joseph","sequence":"additional","affiliation":[{"name":"ERN\u2010Skin (European Network for Rare Skin Disease)"},{"name":"Department of Paediatric Dentistry, CHU de Nice, Faculty of Dentistry C\u00f4te d'Azur University  Nice France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"N.","family":"Mei\u00dfner","sequence":"additional","affiliation":[{"name":"Private Practice  Salzburg\/Berlin Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Monteiro","sequence":"additional","affiliation":[{"name":"Department of Paediatric Dentistry Sheffield Teaching Hospitals  Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Porter","sequence":"additional","affiliation":[{"name":"Institute Director and Professor of Oral Medicine, UCL Eastman Dental Institute University College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R.","family":"Schilke","sequence":"additional","affiliation":[{"name":"Department of Conservative Dentistry, Periodontology and Preventive Dentistry Hannover Medical School  Hannover Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Veliz","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Dentistry University of Santiago de Compostela  Santiago de Compostela Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"V.","family":"Verhaeghe","sequence":"additional","affiliation":[{"name":"ERN\u2010Skin (European Network for Rare Skin Disease)"},{"name":"Department of Pediatric Dentistry and Special Care University Hospitals Leuven  Leuven Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Vinereanu","sequence":"additional","affiliation":[{"name":"ERN\u2010Skin (European Network for Rare Skin Disease)"},{"name":"Pedodontics Department Carol Davila University of Medicine and Pharmacy Bucharest  Bucharest Romania"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M. C.","family":"Bolling","sequence":"additional","affiliation":[{"name":"ERN\u2010Skin (European Network for Rare Skin Disease)"},{"name":"Department of Dermatology, University Medical Centre Groningen, UMCG Expertise Centre for Blistering Diseases University of Groningen  Groningen The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Diem","sequence":"additional","affiliation":[{"name":"ERN\u2010Skin (European Network for Rare Skin Disease)"},{"name":"EB House Austria, Department of Dermatology and Allergology University Hospital of the Paracelsus Medical University  Salzburg Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2670-8117","authenticated-orcid":false,"given":"J. 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