{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T05:29:10Z","timestamp":1780550950214,"version":"3.54.1"},"reference-count":56,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2026,2,5]],"date-time":"2026-02-05T00:00:00Z","timestamp":1770249600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,2,5]],"date-time":"2026-02-05T00:00:00Z","timestamp":1770249600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100023331","name":"LEO Pharma","doi-asserted-by":"publisher","award":["KW\/2491\/DER\/044\/013\/002"],"award-info":[{"award-number":["KW\/2491\/DER\/044\/013\/002"]}],"id":[{"id":"10.13039\/501100023331","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100022606","name":"Almirall","doi-asserted-by":"publisher","award":["KW\/2491\/DER\/044\/013\/004"],"award-info":[{"award-number":["KW\/2491\/DER\/044\/013\/004"]}],"id":[{"id":"10.13039\/501100022606","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100022606","name":"Almirall","doi-asserted-by":"publisher","award":["KW\/2591\/DER\/005\/013\/001"],"award-info":[{"award-number":["KW\/2591\/DER\/005\/013\/001"]}],"id":[{"id":"10.13039\/501100022606","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100001009","name":"Bristol Myers Squibb Foundation","doi-asserted-by":"publisher","award":["KW\/2491\/DER\/044\/013\/003"],"award-info":[{"award-number":["KW\/2491\/DER\/044\/013\/003"]}],"id":[{"id":"10.13039\/100001009","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100015756","name":"Cilag","doi-asserted-by":"publisher","award":["KW\/2491\/DER\/044\/013\/001"],"award-info":[{"award-number":["KW\/2491\/DER\/044\/013\/001"]}],"id":[{"id":"10.13039\/100015756","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Acad Dermatol Venereol"],"published-print":{"date-parts":[[2026,6]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Value\u2010based healthcare emphasizes outcomes that matter to patients, and patient\u2010centred outcomes sets are vital to its success. For psoriasis, initial work proposed a patient\u2010centred outcomes set in Belgium, but it requires further validation to ensure international applicability.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>This scoping study aimed to refine the outcomes set in collaboration with patient representatives and dermatologists, in preparation for international validation through a Delphi consensus process.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>An international Working Group of patient representatives and dermatologists was established through the International Federation for Psoriasis Associations (IFPA) and the International Psoriasis Council (IPC). Experts participated in three discussion meetings and subsequent surveys to discuss and recommend outcomes important to people living with psoriasis, their measurement and case\u2010mix variables. The systematic review of patient\u2010relevant outcomes was updated as well and outcome measurement instruments were selected corresponding to the COSMIN criteria.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The Working Group included 35 experts (12 patient representatives and 23 dermatologists) from 22 countries. A total of three discussion meetings and two subsequent surveys informed the refinement of the outcomes set. \u2018Acceptable costs of care for society\u2019 was excluded as an outcome, four outcomes were merged into \u2018psoriasis clearance\u2019 and \u2018social activity\u2019, and \u2018communication\u2019 and \u2018confidence in care\u2019 were reclassified as patient experiences. \u2018Feelings of stigmatization\u2019 and \u2018number of flare\u2010ups\u2019 were added based on patient recommendations. These changes resulted in a revised set of 18 patient\u2010relevant outcomes and 2 patient experiences. After selecting outcome measurement instruments, a heatmap was compiled to assess overlap, quality and feasibility. Finally, 50 case\u2010mix variables were proposed based on the literature and expert opinions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This scoping study convened an international Working Group of patient representatives and dermatologists to establish the fundamentals for a patient\u2010centred outcomes set. The subsequent Delphi process will finalize consensus, advancing value\u2010based psoriasis management worldwide.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jdv.70313","type":"journal-article","created":{"date-parts":[[2026,2,5]],"date-time":"2026-02-05T13:15:22Z","timestamp":1770297322000},"page":"1005-1018","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Building the foundations for an international patient\u2010centred outcomes set for psoriasis: A scoping study"],"prefix":"10.1111","volume":"40","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-4483-291X","authenticated-orcid":false,"given":"Emma","family":"Vyvey","sequence":"first","affiliation":[{"name":"Dermatology Ghent University Hospital  Ghent Belgium"},{"name":"Dermatology Research Unit Ghent University  Ghent 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