{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T09:02:42Z","timestamp":1790845362230,"version":"4.1.0"},"reference-count":28,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T00:00:00Z","timestamp":1767830400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T00:00:00Z","timestamp":1767830400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Evaluation Clinical Practice"],"published-print":{"date-parts":[[2026,2]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background and Aims<\/jats:title>\n                    <jats:p>Epidermolysis bullosa is a rare genetic disorder causing extreme mucocutaneous fragility, requiring specialized, multidisciplinary care. Integrating palliative care into Epidermolysis bullosa management has proven beneficial in symptom control and psychosocial support. The aim of this study was to analyze the interdisciplinary intervention of the Dermatology Service and the Palliative Care and Complex Chronic Patient Team at Sant Joan de D\u00e9u Hospital in pediatric patients with Recessive Dystrophic Epidermolysis Bullosa.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A descriptive qualitative design was used to explore the experiences of parents of children with Recessive Dystrophic Epidermolysis Bullosa and healthcare professionals at Sant Joan de D\u00e9u Hospital. Internal protocols were analyzed and open online surveys were conducted. Families were recruited through purposive sampling with DEBRA Espa\u00f1a's support, while healthcare professionals were invited from the Dermatology Service and the Palliative Care and Complex Chronic Patient Team.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The joint interdisciplinary intervention between the Dermatology Service and the Palliative Care and Complex Chronic Patient Team at SJDH, grounded in a palliative care approach, provides holistic and continuous support to patients and their families from birth throughout the entire life course. It incorporates spiritual care and community coordination, fosters autonomy and social inclusion, and aligns with international best practices established by specialized centers such as EB House Austria. This model stands as a replicable benchmark for the care of individuals with EB.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This qualitative study suggests that an interdisciplinary care model, grounded in palliative care and implemented from an early stage in a sustained manner, improves the quality of life of pediatric patients with RDEB and their families. The coordination between clinical and psychosocial teams, together with person\u2010centered care, enhances family autonomy, promotes inclusion and addresses the comprehensive needs across the life course.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jep.70345","type":"journal-article","created":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T18:24:16Z","timestamp":1767896656000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Interdisciplinary Approach in Pediatric Patients With Recessive Dystrophic Epidermolysis Bullosa: Experience From the Dermatology Service and the Palliative Care and Complex Chronic Patient Team at Sant Joan de D\u00e9u Hospital (Barcelona, Spain)"],"prefix":"10.1111","volume":"32","author":[{"ORCID":"https:\/\/orcid.org\/0009-0006-3394-8705","authenticated-orcid":false,"given":"Juan Manuel","family":"Mart\u00ednez\u2010Ripoll","sequence":"first","affiliation":[{"name":"Debra Spain M\u00e1laga Spain"},{"name":"University of Ja\u00e9n Ja\u00e9n Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8597-5549","authenticated-orcid":false,"given":"Marta","family":"Garc\u00eda\u2010Domingo","sequence":"additional","affiliation":[{"name":"University of Ja\u00e9n Ja\u00e9n Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2643-0100","authenticated-orcid":false,"given":"Yolanda M.","family":"De la Fuente Robles","sequence":"additional","affiliation":[{"name":"University of Ja\u00e9n Ja\u00e9n Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,1,8]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41572-020-0210-0"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/jdv.17629"},{"key":"e_1_2_11_4_1","first-page":"185","article-title":"Continued Medical Education Inherited Epidermolysis Bullosa: Clinical and Therapeutic Aspects\u2009*","volume":"88","author":"Lys V.","year":"2013","journal-title":"Epiderm\u00f3lise Bolhosa Heredit\u00e1ria: Aspectos Cl\u00ednicos e Terap\u00eauticos Work Conducted at The"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ad.2021.04.006"},{"key":"e_1_2_11_6_1","doi-asserted-by":"crossref","unstructured":"J. D.FineandH.Hintner Vivir Con Epiderm\u00f3lisis Bullosa (EB) Etiolog\u00eda Diagn\u00f3stico Asistencia Interdisciplinar y Tratamiento 2009.","DOI":"10.1007\/978-3-211-79271-1"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-024-03475-5"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.14128"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.5021\/ad.2016.28.1.6"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-023-02870-8"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/1750-1172-9-76"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1097\/JDN.0b013e31828866fa"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-019-1086-5"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-018-0944-x"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13052-022-01252-3"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.18786\/2072-0505"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00508-016-1133-3"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00608-009-0126-0"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-024-03163-4"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-023-02870-8"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.4274\/tdd.2986"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2020.1769238"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_2_11_24_1","unstructured":"Methods for the Development of NICE Public Health Guidance (Third Edition) Process and Methods Methods for the Development of NICE Public Health Guidance (Third Edition) (PMG4) 2012 www.nice.org.uk\/process\/pmg4."},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-019-1059-8"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023-025-03635-1"},{"key":"e_1_2_11_27_1","unstructured":"A.Lin D. 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