{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,26]],"date-time":"2026-09-26T13:00:44Z","timestamp":1790427644628,"version":"4.1.0"},"reference-count":27,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T00:00:00Z","timestamp":1788825600000},"content-version":"vor","delay-in-days":7,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100002322","name":"Coordena\u00e7\u00e3o de Aperfei\u00e7oamento de Pessoal de N\u00edvel Superior","doi-asserted-by":"publisher","award":["001"],"award-info":[{"award-number":["001"]}],"id":[{"id":"10.13039\/501100002322","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Evaluation Clinical Practice"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To compare the burden and stress levels of two groups of informal caregivers: those assisting patients undergoing treatment for cirrhosis (Group 1) and those caring for liver transplant recipients (Group 2).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This cross\u2010sectional study included 223 informal caregivers of cirrhosis and liver transplant patients monitored at the Liver Transplant Unit. Participants completed a sociodemographic questionnaire, a patient disease history form, and the Burden Scale for Family Caregivers (BSFC).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Caregiver burden was influenced by specific factors: being younger than 40 years, having children, caring for emotionally distressed patients, and lower per capita income and women were the most burdened.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>These findings highlight the need for public health strategies that recognize and support the essential, yet often invisible, role of informal caregivers. A more equitable redistribution of caregiving responsibilities between families, Society, and the State is critical to reducing caregiver strain and improving outcomes for both caregivers and patients.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jep.70588","type":"journal-article","created":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T18:32:10Z","timestamp":1788892330000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Psychological Burden Among Informal Caregivers of Cirrhosis and Liver Transplant Patients: A Cross\u2010Sectional Study Using the Burden Scale for Family Caregivers"],"prefix":"10.1111","volume":"32","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3188-0859","authenticated-orcid":false,"given":"Raquel Sanches Slusarski","family":"Martins","sequence":"first","affiliation":[{"name":"Departamento de Gastroenterologia, Hospital das Cl\u00ednicas HCFMUSP, Faculdade de Medicina Universidade de S\u00e3o Paulo S\u00e3o Paulo SP Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7607-7168","authenticated-orcid":false,"given":"Luiz Augusto","family":"Carneiro D'Albuquerque","sequence":"additional","affiliation":[{"name":"Departamento de Gastroenterologia, Hospital das Cl\u00ednicas HCFMUSP, Faculdade de Medicina Universidade de S\u00e3o Paulo S\u00e3o Paulo SP Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7260-0799","authenticated-orcid":false,"given":"Gilton Marques","family":"Fonseca","sequence":"additional","affiliation":[{"name":"Departamento de Gastroenterologia, Hospital das Cl\u00ednicas HCFMUSP, Faculdade de Medicina Universidade de S\u00e3o Paulo S\u00e3o Paulo SP Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0202-9037","authenticated-orcid":false,"given":"Luciana Bertocco de Paiva","family":"Haddad","sequence":"additional","affiliation":[{"name":"Departamento de Gastroenterologia, Hospital das Cl\u00ednicas HCFMUSP, Faculdade de Medicina Universidade de S\u00e3o Paulo S\u00e3o Paulo SP Brazil"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,8]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cgh.2019.07.060"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2468-1253(19)30349-8"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2019.02304"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.3389\/frtra.2024.1476952"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.archger.2019.02.006"},{"issue":"11","key":"e_1_2_11_7_1","first-page":"699","article-title":"Caregiver Care","volume":"99","author":"Collins L.","year":"2019","journal-title":"American Family Physician"},{"key":"e_1_2_11_8_1","volume-title":"O Cuidado Como Trabalho: Uma Interpela\u00e7\u00e3o do Direito do Trabalho a Partir de Uma Perspectiva de G\u00eanero [Thesis]","author":"Vieira R. S. C.","year":"2018"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000010993"},{"key":"e_1_2_11_10_1","article-title":"Development and Validation of the Burden Scale for Family Caregivers (BSFC)","author":"Gr\u00e4sel E.","year":"2003","journal-title":"Canad\u00e1: Comprehensive Rehabilititation and Mental Health Services"},{"key":"e_1_2_11_11_1","unstructured":"J. C. R.Pereira \u201c Bioestat\u00edstica em Outras Palavras \u201d (2010) EDUSP\u2010SP."},{"key":"e_1_2_11_12_1","volume-title":"Nonparametric Statistics","author":"Siegel S.","year":"1998"},{"key":"e_1_2_11_13_1","volume-title":"Statistical Power Analysis for the Behavioral Sciences","author":"Cohen J.","year":"1988"},{"key":"e_1_2_11_14_1","volume-title":"Principles of biostatistics","author":"Pagano M.","year":"2018"},{"key":"e_1_2_11_15_1","unstructured":"Internacional Labor Organization \u201c ILO Calls for Urgent Action to Prevent Looming Global Care Crisis \u201d (2018) International Labour Organization https:\/\/www.ilo.org\/resource\/news\/ilo-calls-urgent-action-prevent-looming-global-care-crisis-0."},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnss.2020.07.012"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-020-01976-z"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jceh.2019.0602"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.3389\/fnut.2021.787430"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.dsx.2020.05.035"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2021.711835"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1002\/hep4.2030"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1002\/hep4.1526"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/liv.14614"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1108\/978-1-64113-139-120251015"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ciresp.2019.02.004"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.6002\/ect.2017.0135"},{"key":"e_1_2_11_28_1","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.15664"}],"container-title":["Journal of Evaluation in Clinical Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jep.70588","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jep.70588","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jep.70588","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,26]],"date-time":"2026-09-26T12:31:31Z","timestamp":1790425891000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jep.70588"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9]]},"references-count":27,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1111\/jep.70588"],"URL":"https:\/\/doi.org\/10.1111\/jep.70588","archive":["Portico"],"relation":{},"ISSN":["1356-1294","1365-2753"],"issn-type":[{"value":"1356-1294","type":"print"},{"value":"1365-2753","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9]]},"assertion":[{"value":"2026-05-23","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-24","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-09-08","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70588"}}