{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,26]],"date-time":"2026-09-26T13:00:24Z","timestamp":1790427624614,"version":"4.1.0"},"reference-count":43,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T00:00:00Z","timestamp":1790294400000},"content-version":"vor","delay-in-days":24,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Evaluation Clinical Practice"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background and Purpose<\/jats:title>\n                    <jats:p>There is limited evidence describing awareness and adherence to clinical practice guidelines for neuromuscular disorders. This study aimed to assess awareness of and self\u2010reported adherence to clinical practice guidelines for neuromuscular disorders among Australian and New Zealand health professionals.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A cross\u2010sectional survey of health professionals working with individuals with neuromuscular disorders was conducted to describe awareness of three neuromuscular guidelines. Self\u2010reported adherence to recommendations for allied health assessments in Duchenne muscular dystrophy and exercise and physical activity in paediatric Charcot\u2010Marie\u2010Tooth was also assessed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Sixty\u2010four surveys were received; 50\/64 (84%) worked in metropolitan areas, 44\/64 (69%) were allied health professionals and 35\/64 (55%) had less than 5 years\u2019 experience in neuromuscular disorders. Sixty participants provided responses about guideline awareness. Awareness was 67% (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200940\/60)\u2014DMD diagnosis and management care considerations, 42% (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200925\/60)\u2014Clinical practice guidelines for allied health and nursing assessment and management of Duchenne muscular dystrophy and 33% (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200920\/60)\u2014Clinical practice guideline for the management of paediatric Charcot\u2010Marie\u2010Tooth disease. Those who were aware of the guidelines felt that they influenced their practice. Self\u2010reported adherence to evidence\u2010based assessments in Duchenne muscular dystrophy ranged from 24% (use of dynamometry) to 90% (not using skinfolds). Twenty\u2010four (24\/64; 38%) respondents managed paediatric Charcot\u2010Marie\u2010Tooth and most recommended exercise and physical activity for management of Charcot\u2010Marie\u2010Tooth\u2010related impairments.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>This study provides insights into guideline self\u2010reported adherence among Australian and New Zealand health professionals treating individuals with neuromuscular disorders. Targeted strategies to increase guideline awareness and adherence are vital to ensure standardised and equitable care in readiness for prospective disease\u2010modifying therapies.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jep.70624","type":"journal-article","created":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T12:20:14Z","timestamp":1790338814000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Exploring Awareness of and Self\u2010Reported Adherence to Neuromuscular Clinical Practice Guidelines Among Australian and New Zealand Health Professionals: A Cross\u2010Sectional Survey Study"],"prefix":"10.1111","volume":"32","author":[{"given":"Rachel A.","family":"Kennedy","sequence":"first","affiliation":[{"name":"Royal Children's Hospital Parkville Victoria Australia"},{"name":"Murdoch Children's Research Institute Parkville Victoria 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