{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T10:17:41Z","timestamp":1792059461394,"version":"4.4.0"},"reference-count":18,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2018,8,7]],"date-time":"2018-08-07T00:00:00Z","timestamp":1533600000000},"content-version":"vor","delay-in-days":6,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000143","name":"Alzheimer Society","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000143","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["agsjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J American Geriatrics Society"],"published-print":{"date-parts":[[2018,8]]},"abstract":"<jats:sec>\n                    <jats:title>OBJECTIVES<\/jats:title>\n                    <jats:p>To engage persons with dementia, friends, family, caregivers, and health and social care providers to identify and prioritize their questions for research related to living with dementia and prevention, diagnosis, and treatment of dementia.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>DESIGN<\/jats:title>\n                    <jats:p>The Canadian Dementia Priority Setting Partnership (PSP) followed James Lind Alliance PSP methods. Results were compared with the World Health Organization research prioritization exercise and the United Kingdom Dementia PSP.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>SETTING<\/jats:title>\n                    <jats:p>Canada.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>PARTICIPANTS<\/jats:title>\n                    <jats:p>In the first survey, 1,217 individuals and groups from across Canada submitted their questions about dementia. 249 participated in the interim prioritization. For the final prioritization workshop, the 28 participants included persons with dementia, friends, family, caregivers, health and social care providers, Alzheimer Society representatives, and members of an organization representing long\u2010term care home residents.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>RESULTS<\/jats:title>\n                    <jats:p>The Canadian Dementia PSP top 10 priorities relate to health, quality of life, societal issues, and dementia care. Five priorities overlap with one or both of the other two prioritization initiatives.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>CONCLUSION<\/jats:title>\n                    <jats:p>These results provide researchers and research funding agencies with topics that individuals with personal or professional experience of dementia prioritize, but they are not intended to preclude research into other aspects of dementia.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jgs.15453","type":"journal-article","created":{"date-parts":[[2018,8,7]],"date-time":"2018-08-07T08:44:48Z","timestamp":1533631488000},"page":"1608-1612","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":68,"title":["Patient and Public Involvement in Identifying Dementia Research Priorities"],"prefix":"10.1111","volume":"66","author":[{"given":"Jennifer","family":"Bethell","sequence":"first","affiliation":[{"name":"Toronto Rehabilitation Institute University Health Network Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dorothy","family":"Pringle","sequence":"additional","affiliation":[{"name":"Lawrence S. Bloomberg Faculty of Nursing University of Toronto Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Larry W.","family":"Chambers","sequence":"additional","affiliation":[{"name":"Alzheimer Society of Canada Toronto Ontario Canada"},{"name":"Department of Health Research Methods, Evidence and Impact McMaster University Hamilton Ontario Canada"},{"name":"Bruy\u00e8re Research Institute Ottawa Ontario Canada"},{"name":"Health, Nursing and Environmental Studies, Faculty of Health York University Toronto Ontario Canada"},{"name":"Institute for Clinical Evaluative Sciences Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carole","family":"Cohen","sequence":"additional","affiliation":[{"name":"Sunnybrook Health Sciences Centre Toronto Ontario Canada"},{"name":"Department of Psychiatry University of Toronto Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elana","family":"Commisso","sequence":"additional","affiliation":[{"name":"Toronto Rehabilitation Institute University Health Network Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katherine","family":"Cowan","sequence":"additional","affiliation":[{"name":"James Lind Alliance, National Institute for Health Research Evaluation, Trials and Studies Coordinating Centre University of Southampton Southampton United Kingdom"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Phyllis","family":"Fehr","sequence":"additional","affiliation":[{"name":"Ontario Dementia Advisory Group Ontario Canada"},{"name":"Dementia Alliance International Ankeny Iowa"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andreas","family":"Laupacis","sequence":"additional","affiliation":[{"name":"Li Ka Shing Knowledge Institute St. Michael's Hospital Toronto Ontario Canada"},{"name":"Institute of Health Policy, Management and Evaluation University of Toronto Toronto Ontario Canada"},{"name":"Department of Medicine University of Toronto Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paula","family":"Szeto","sequence":"additional","affiliation":[{"name":"Toronto Rehabilitation Institute University Health Network Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katherine S.","family":"McGilton","sequence":"additional","affiliation":[{"name":"Toronto Rehabilitation Institute University Health Network Toronto Ontario Canada"},{"name":"Lawrence S. Bloomberg Faculty of Nursing University of Toronto Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,8,7]]},"reference":[{"key":"e_1_2_6_2_1","volume-title":"ReseArch with Patient and Public invOlvement: a RealisT evaluation\u2014the RAPPORT study","author":"Wilson P","year":"2015"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-015-3450-z"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12961-018-0282-4"},{"key":"e_1_2_6_5_1","unstructured":"INVOLVE. National Institute for Health Research (online). 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Research Priorities White Paper (PCORI\u2010SOL\u2010RPWG\u2010001) for the Patient\u2010Centered Outcomes Research Institute (PCORI) 2012 (online). Available athttps:\/\/www.pcori.org\/assets\/Methods\u2010for\u2010Involving\u2010Patients\u2010in\u2010Topic\u2010Generation\u2010for\u2010Patient\u2010Centered\u2010Comparative\u2010Effectiveness\u2010Research\u2010%E2%80%93\u2010An\u2010International\u2010Perspective.pdfAccessed April 18 2018."},{"key":"e_1_2_6_14_1","unstructured":"Dementia Friendly Meetings Guidelines. The Scottish Dementia Working Group (online). Available athttp:\/\/www.sdwg.org.uk\/wp\u2010content\/uploads\/2016\/04\/Dementia\u2010Friendly\u2010Meetings.pdfAccessed November 16 2017."},{"key":"e_1_2_6_15_1","unstructured":"Adapting PSP surveys and workshops to make sure everyone can get involved. James Lind Alliance (online). Available athttp:\/\/www.jla.nihr.ac.uk\/news\/adapting\u2010psp\u2010surveys\u2010and\u2010workshops\u2010to\u2010make\u2010sure\u2010everyone\u2010can\u2010get\u2010involved\/6635Accessed November 16 2017."},{"key":"e_1_2_6_16_1","unstructured":"SorokaSN. Public Perceptions and Media Coverage of the Canadian Healthcare System: A Synthesis. Canadian Health Services Research Foundation2011(online). 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