{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T09:44:52Z","timestamp":1785750292599,"version":"3.56.0"},"reference-count":45,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T00:00:00Z","timestamp":1785715200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T00:00:00Z","timestamp":1785715200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["K23AG081458"],"award-info":[{"award-number":["K23AG081458"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["R33AG071744"],"award-info":[{"award-number":["R33AG071744"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["agsjournals.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J American Geriatrics Society"],"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Nearly half of hospitalized adults with dementia develop delirium superimposed on dementia (DSD), which is associated with adverse outcomes. Family caregivers play an essential role in preventing, identifying, and responding to DSD, yet relatively little is known about how caregivers experience and respond to acute cognitive changes during illness and their preferences for involvement in DSD care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      We performed a qualitative study of caregivers (\n                      <jats:italic>N<\/jats:italic>\n                      \u2009=\u200922) for patients with dementia admitted to two hospitals within a single health system. Because caregivers may be engaged in DSD prevention prior to an episode of DSD, we included caregivers to patients with a history of delirium (\n                      <jats:italic>N<\/jats:italic>\n                      \u2009=\u200919) and without (\n                      <jats:italic>N<\/jats:italic>\n                      \u2009=\u20093). We conducted semi\u2010structured interviews during hospitalization or within 1\u2009week of discharge focused on caregiver experiences with acute cognitive changes during illness and preferences for involvement in DSD care. Interviews were analyzed using thematic analysis.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Caregivers readily described experiences identifying acute cognitive changes during illness, but few were familiar with the term \u201cdelirium.\u201d Caregivers described navigating acute cognitive changes via common phases of (1) recognizing acute cognitive changes, (2) interpreting their meaning, and (3) deciding how to act. Some recognized and interpreted changes as normative in the context of dementia, while others expressed concern about the potential impact and seriousness of symptoms. Caregivers described several factors\u2014perceived caregiving role and context, care priorities, delirium knowledge, and distress from delirium\u2014that affected how they navigated symptoms as well as their preferences and motivations for involvement in DSD care. Participants reported substantial variation in factors that influenced their involvement in DSD care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Caregivers navigate and engage with acute cognitive changes during illness in heterogeneous ways, shaped by their preferences for involvement in care. Findings support flexible, caregiver\u2010centered intervention strategies for DSD that recognize variability in caregiver roles, needs, and readiness for engagement.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jgs.70602","type":"journal-article","created":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T08:52:58Z","timestamp":1785747178000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Dementia Caregivers' Preferences for Involvement in Delirium Care During Hospitalization"],"prefix":"10.1111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0576-3894","authenticated-orcid":false,"given":"Blair P.","family":"Golden","sequence":"first","affiliation":[{"name":"Department of Medicine University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brooke","family":"Johnson","sequence":"additional","affiliation":[{"name":"Department of Medicine University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura","family":"Block","sequence":"additional","affiliation":[{"name":"College of Nursing University of Utah  Salt Lake City Utah USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Clark","family":"Benson","sequence":"additional","affiliation":[{"name":"BerbeeWalsh Department of Emergency Medicine University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin","family":"Merss","sequence":"additional","affiliation":[{"name":"University of Wisconsin \u2013 Madison, School of Nursing  Madison Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3371-0311","authenticated-orcid":false,"given":"Kellia J.","family":"Hansmann","sequence":"additional","affiliation":[{"name":"Department of Family Medicine and Community Health University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gina","family":"Green\u2010Harris","sequence":"additional","affiliation":[{"name":"Center for Community Engagement and Health Partnerships University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin USA"},{"name":"Wisconsin Alzheimer's Institute Regional Milwaukee Office  Milwaukee Wisconsin USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sharon K.","family":"Inouye","sequence":"additional","affiliation":[{"name":"Harvard Medical School  Boston Massachusetts USA"},{"name":"Marcus Institute for Aging Research Hebrew SeniorLife  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4930-3558","authenticated-orcid":false,"given":"Andrea","family":"Gilmore\u2010Bykovskyi","sequence":"additional","affiliation":[{"name":"BerbeeWalsh Department of Emergency Medicine University of Wisconsin\u2010Madison School of Medicine and Public Health  Madison Wisconsin 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