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It has been linked with elevated levels of psychological distress, including depression, anxiety and social phobia.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Narratives on living with <jats:styled-content style=\"fixed-case\">c<\/jats:styled-content>oeliac <jats:styled-content style=\"fixed-case\">d<\/jats:styled-content>isease were written by 130 adult members of <jats:styled-content style=\"fixed-case\">C<\/jats:styled-content>oeliac <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content> (mean age 52.7\u00a0years; mean time since diagnosis 10.2\u00a0years; 67% sample female; 28% male). Qualitative analysis using <jats:styled-content style=\"fixed-case\">g<\/jats:styled-content>rounded theory methods identified five key categories: living with widespread ignorance; social invisibility; creating a coeliac community; a changed identity; grief\u00a0\u2013\u00a0and accepting the trade\u2010off.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A psychosocial model of living with <jats:styled-content style=\"fixed-case\">c<\/jats:styled-content>oeliac <jats:styled-content style=\"fixed-case\">d<\/jats:styled-content>isease was constructed from the findings, the central category of which was the changed identity of those diagnosed with the condition. Grief was experienced in relation to a loss of the former diet, changed personal and social identities, loss of social confidence and loss of social activities. Grief was generally mitigated over time as adjustments were made to changes in identity and lifestyle. Creating (or becoming part of) a coeliac community was a strategy enabling those with <jats:styled-content style=\"fixed-case\">c<\/jats:styled-content>oeliac <jats:styled-content style=\"fixed-case\">d<\/jats:styled-content>isease to re\u2010establish their identities and increase social recognition and acceptance of the condition.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Gluten\u2010free living entails a substantial restriction of food choice. The losses and changes entailed impact on the personal and social identities of those living with <jats:styled-content style=\"fixed-case\">c<\/jats:styled-content>oeliac <jats:styled-content style=\"fixed-case\">d<\/jats:styled-content>isease, and on the behaviour of others towards them. Psychosocial interventions focussed on facilitating coping and adjustment may benefit those experiencing difficulties.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jhn.12062","type":"journal-article","created":{"date-parts":[[2013,3,21]],"date-time":"2013-03-21T06:14:52Z","timestamp":1363846492000},"page":"30-40","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":49,"title":["Living with <scp>c<\/scp>oeliac disease: a grounded theory study"],"prefix":"10.1111","volume":"27","author":[{"given":"C.","family":"Rose","sequence":"first","affiliation":[{"name":"Tiller Research Redditch Worcestershire UK"},{"name":"School of Psychology The University of Birmingham Birmingham UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"R.","family":"Howard","sequence":"additional","affiliation":[{"name":"School of Psychology The University of Birmingham Birmingham UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2013,3,21]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1080\/00365520119754"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2036.2004.02193.x"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/00365520701768802"},{"key":"e_1_2_8_5_1","unstructured":"British Society of Gastroenterology. 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