{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,11]],"date-time":"2026-07-11T09:11:07Z","timestamp":1783761067637,"version":"3.55.0"},"reference-count":26,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2022,12,12]],"date-time":"2022-12-12T00:00:00Z","timestamp":1670803200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Human Nutrition Diet"],"published-print":{"date-parts":[[2023,6]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>An expanding base of evidence indicates that chronic gastrointestinal disorders not only impact physical wellbeing, but also affect many psychosocial aspects of life. However, less is known about gastrointestinal motility disorders. The present study aimed to explore how individuals experience gastrointestinal motility disorders and their impact on daily living.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Eleven people with a gastrointestinal motility disorder participated in semi\u2010structured interviews face\u2010to\u2010face or via telephone. The interviews explored how participants came to be diagnosed, their experiences with health professionals, as well as the impact of dysmotility on enjoyment of food, socialising, eating out and quality of life (QoL). Interviews were tape\u2010recorded, transcribed and analysed using an inductive thematic analysis approach.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Analysis revealed an overarching theme of frustration that stemmed from three subthemes: (1) feeling misunderstood, judged and dismissed by health professionals leading to delayed diagnosis, misdiagnosis and multiple diagnoses; (2) severity and unpredictability of undesirable gastrointestinal symptoms; and (3) reduced QoL because of physical and social limitations, impairing their ability to have normal life experiences, including education, work and social activities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Dysmotility is a complex illness that impacts almost all aspects of a person's life. In addition to managing reported physical symptoms, the social and psychological burden associated with dysmotility needs to be addressed to improve outcomes and QoL.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jhn.13114","type":"journal-article","created":{"date-parts":[[2022,11,24]],"date-time":"2022-11-24T08:31:34Z","timestamp":1669278694000},"page":"622-631","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["When you are living and dying at the same time: A qualitative exploration of living with gastrointestinal motility disorders"],"prefix":"10.1111","volume":"36","author":[{"given":"Sian","family":"Raubinger","sequence":"first","affiliation":[{"name":"Department of Medicine Royal Prince Alfred Hospital Sydney NSW Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Allworth","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health University of Sydney Sydney NSW Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4155-5240","authenticated-orcid":false,"given":"Sharon","family":"Carey","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health University of Sydney Sydney NSW Australia"},{"name":"Department of Nutrition and Dietetics Royal Prince Alfred Hospital Sydney Australia"},{"name":"Institute of Academic Surgery Royal Prince Alfred Hospital Sydney NSW Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,12,12]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/ncp.10199"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1159\/000092876"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.2967\/jnumed.113.134551"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/0884533613485904"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10620-017-4456-7"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-1746.17.s1.7.x"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/MCO.0000000000000095"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-26938-2"},{"key":"e_1_2_11_10_1","unstructured":"Uptodate. Overview of gastrointestinal motility testing. [cited 2021 July 30]. Available from:https:\/\/www.uptodate.com.acs.hcn.com.au\/contents\/overview-of-gastrointestinal-motility-testing"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.2967\/jnumed.112.114314"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.5056\/jnm.2012.18.1.34"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1097\/00004836-200408000-00003"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.13725"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.NUR.0000311707.32566.c8"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.gastro.2005.09.071"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.gastro.2005.11.057"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev.med.46.1.483"},{"key":"e_1_2_11_19_1","first-page":"224","article-title":"Psychological disorders in gastrointestinal disease: epiphenomenon, cause or consequence?","volume":"27","author":"Shah E","year":"2014","journal-title":"Ann Gastroenterol"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.3748\/wjg.15.6052"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.12196"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12876-016-0523-3"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.5694\/mja17.00503"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13030-018-0122-3"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-013-1858-8"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.1370\/afm.1867"}],"container-title":["Journal of Human Nutrition and Dietetics"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jhn.13114","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jhn.13114","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jhn.13114","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,20]],"date-time":"2023-08-20T04:05:23Z","timestamp":1692504323000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jhn.13114"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,12,12]]},"references-count":26,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2023,6]]}},"alternative-id":["10.1111\/jhn.13114"],"URL":"https:\/\/doi.org\/10.1111\/jhn.13114","archive":["Portico"],"relation":{"has-review":[{"id-type":"doi","id":"10.1111\/JHN.13114\/v1\/decision1","asserted-by":"object"},{"id-type":"doi","id":"10.1111\/JHN.13114\/v2\/decision1","asserted-by":"object"},{"id-type":"doi","id":"10.1111\/JHN.13114\/v1\/review1","asserted-by":"object"},{"id-type":"doi","id":"10.1111\/JHN.13114\/v2\/review1","asserted-by":"object"}]},"ISSN":["0952-3871","1365-277X"],"issn-type":[{"value":"0952-3871","type":"print"},{"value":"1365-277X","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,12,12]]},"assertion":[{"value":"2022-08-09","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-10-25","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-12-12","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}