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For many people with an ID, there is already dependence in these domains generally related to the individuals pre\u2010existing level of intellectual impairment, that is, totally unrelated to dementia. Hence, the Summit agreed that as was true in achieving diagnosis, it is also imperative in determining advanced dementia that change is measured from the person's prior functioning in combination with clinical impressions of continuing and marked decline and of increasing co\u2010morbidity, including particular attention to late\u2010onset epilepsy in people with Down syndrome. It was further noted that quality care planning must recognise the greater likelihood of physical symptoms, co\u2010morbidities, immobility and neuropathological deterioration.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The Summit recommended an investment in research to more clearly identify measures of person\u2010specific additional decline for ascertaining advanced dementia, inform practice guidelines to aid clinicians and service providers and identify specific markers that signal such additional decline and progression into advanced dementia among people with various levels of pre\u2010existing intellectual impairment.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jir.12500","type":"journal-article","created":{"date-parts":[[2018,5,21]],"date-time":"2018-05-21T04:19:29Z","timestamp":1526876369000},"page":"617-624","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":26,"title":["Supporting advanced dementia in people with Down syndrome and other intellectual disability: consensus statement of the International Summit on Intellectual Disability and Dementia"],"prefix":"10.1111","volume":"62","author":[{"given":"M.","family":"McCarron","sequence":"first","affiliation":[{"name":"School of Nursing and Midwifery Studies Trinity College Dublin  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5129-6399","authenticated-orcid":false,"given":"P.","family":"McCallion","sequence":"additional","affiliation":[{"name":"College of Public Health Temple University  Philadelphia PA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Coppus","sequence":"additional","affiliation":[{"name":"University Medical Center, Radboud Universiteit  Nijmegen Gelderland The Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Fortea","sequence":"additional","affiliation":[{"name":"Fundacio Catalana per a la Recerca i la Innovacio  Barcelona Catalunya Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Stemp","sequence":"additional","affiliation":[{"name":"Reena  Toronto Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1053-1748","authenticated-orcid":false,"given":"M.","family":"Janicki","sequence":"additional","affiliation":[{"name":"Department of Disability and Human Development University of Illinois at Chicago  Chicago IL USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Wtachman","sequence":"additional","affiliation":[{"name":"Faculty of Health Sciences and Sport  Stirling Scotland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,5,20]]},"reference":[{"key":"e_1_2_6_2_1","unstructured":"Alzheimer's Australia(n.d.)The later stages of dementia. 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