{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T20:17:21Z","timestamp":1783541841387,"version":"3.55.0"},"reference-count":18,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2021,1,11]],"date-time":"2021-01-11T00:00:00Z","timestamp":1610323200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J intellect Disabil Res"],"published-print":{"date-parts":[[2021,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Complicated grief involves the experience of grief\u2010related symptoms at a time, and severity, beyond which could be considered adaptive, while persistent complex bereavement disorder (PCBD) has been identified as a condition that requires further study in the typical population. The aims of this study are to (1) explore the symptoms of complicated grief associated with parental bereavement as self\u2010reported by adults with intellectual disabilities (IDs) who have experienced a parental bereavement and (2) conduct an initial examination of how the existing criteria for PCBD apply to this group.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This study uses a comparative group design, assessing self and staff (proxy) reports for a group of parentally bereaved individuals and a matched group of non\u2010bereaved individuals using the Complicated Grief Questionnaire \u2013 ID Self\u2010Report. Participants were 46 individuals with ID, 30 (65%) of whom who had experienced a parental bereavement within the previous 2\u00a0years. The age range was 23\u201367\u00a0years (mean\u00a0=\u00a043.8; SD\u00a0=\u00a010.3).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The results highlight the presence of a range of symptoms of complicated grief in individuals' self\u2010reports, although there was some evidence that separation distress\u2010related symptoms were more apparent. An analysis of individual symptoms showed patterns of higher reports among the bereaved group as would be expected. Comparing staff and self\u2010reports, key criteria showed higher levels in self\u2010reports among the bereaved group.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This study has demonstrated the capacity of people with ID to self\u2010report personal experience of symptoms of complicated grief, when appropriate and accessible assessment tools are used. Some symptoms were more evident among bereaved individuals (compared with non\u2010bereaved participants), and they tended to be from separation distress criteria. This may indicate the relevance of these symptoms for people with ID and question the existing criteria for PCBD in this population, which may have clinical implications for supporting people with ID experiencing a more complicated bereavement response.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jir.12812","type":"journal-article","created":{"date-parts":[[2021,1,15]],"date-time":"2021-01-15T04:25:42Z","timestamp":1610684742000},"page":"297-305","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":13,"title":["An exploratory study of self\u2010reported complicated grief symptoms in parentally bereaved adults with intellectual disability"],"prefix":"10.1111","volume":"65","author":[{"given":"P.","family":"Dodd","sequence":"first","affiliation":[{"name":"Department of Psychiatry St Michael's House Disability Services  Dublin Ireland"},{"name":"UCD Centre for Disability Studies University College Dublin  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"McEvoy","sequence":"additional","affiliation":[{"name":"UCD Centre for Disability Studies University College Dublin  Dublin Ireland"},{"name":"Prosper Services  Dublin Ireland"},{"name":"UCD School of Psychology University College Dublin  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Lockhart","sequence":"additional","affiliation":[{"name":"Department of Psychiatry St Michael's House Disability Services  Dublin Ireland"},{"name":"UCD School of Psychology University College Dublin  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"T.","family":"Burke","sequence":"additional","affiliation":[{"name":"UCD School of Psychology University College Dublin  Dublin Ireland"},{"name":"KARE Services  Kildare Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L.","family":"O'Keeffe","sequence":"additional","affiliation":[{"name":"UCD Centre for Disability Studies University College Dublin  Dublin Ireland"},{"name":"UCD School of Psychology University College Dublin  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6744-7590","authenticated-orcid":false,"given":"S.","family":"Guerin","sequence":"additional","affiliation":[{"name":"UCD Centre for Disability Studies University College Dublin  Dublin Ireland"},{"name":"UCD School of Psychology University College Dublin  Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,1,11]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.books.9780890425596"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2008.00514.x"},{"key":"e_1_2_10_4_1","volume-title":"Attachment and Loss","author":"Bowlby J.","year":"1980"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/10673220801929786"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2005.00702.x"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2008.01043.x"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1097\/YCO.0b013e32832e2a08"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12189"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2009.05.002"},{"key":"e_1_2_10_11_1","volume-title":"Mental Health, Intellectual Disabilities and the Aging Process","author":"Guerin S."},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12025"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.170.6.497"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1002\/wps.20348"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12261"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/0165-1781(95)02757-2"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.174.1.67"},{"key":"e_1_2_10_18_1","first-page":"48","volume-title":"Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities\/Mental Retardation. 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