{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T01:13:34Z","timestamp":1787015614555,"version":"build-2736575974"},"reference-count":92,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2023,2,19]],"date-time":"2023-02-19T00:00:00Z","timestamp":1676764800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J intellect Disabil Res"],"published-print":{"date-parts":[[2023,5]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Multiple measures of mental health problems and mental wellbeing for adults with intellectual disabilities are available, but investigations into their reliability and validity are still in the early stages. The aim of this systematic review was to provide an update to previous evaluations of measures of common mental health problems and wellbeing in adults with mild to moderate intellectual disabilities (ID).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A systematic search was performed across three databases (MEDLINE, PsycINFO and SCOPUS). The literature search was limited to the years from 2009 to 2021 and to the original English versions. Ten papers evaluating nine measures were reviewed, and the psychometric properties of these measures were discussed using the Characteristics of Assessment Instructions for Psychiatric Disorders in Persons with Intellectual Developmental Disorders as a framework.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Four measures had at least one rating of \u2018good\u2019 across both dimensions of reliability and at least one dimension of validity and were deemed to have promising psychometric properties: the Clinical Outcomes in Routine Evaluation\u2010Learning Disabilities, Impact of Events Scale\u2010Intellectual Disabilities, Lancaster and Northgate Trauma Scales and Self\u2010Assessment and Intervention (self\u2010report section). Additionally, these measures were developed through consultations with mental health professionals and\/or people with IDs and thus were deemed to have good content validity.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This review informs measurement choice for researchers and clinicians while highlighting a need for continued research efforts into the quality of measures available for people with IDs. The results were limited by incomplete psychometric evaluations of measures available. A paucity of psychometrically robust measures of mental wellbeing was observed.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jir.13018","type":"journal-article","created":{"date-parts":[[2023,2,19]],"date-time":"2023-02-19T23:08:16Z","timestamp":1676848096000},"page":"397-414","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":19,"title":["Psychometric properties of measures designed to assess common mental health problems and wellbeing in adults with intellectual disabilities: a systematic review"],"prefix":"10.1111","volume":"67","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8552-3390","authenticated-orcid":false,"given":"M.","family":"Patel","sequence":"first","affiliation":[{"name":"Research Department of Clinical, Educational and Health Psychology University College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1471-6291","authenticated-orcid":false,"given":"J. Y.","family":"Lee","sequence":"additional","affiliation":[{"name":"Research Department of Clinical, Educational and Health Psychology University College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4679-0090","authenticated-orcid":false,"given":"K.","family":"Scior","sequence":"additional","affiliation":[{"name":"Research Department of Clinical, Educational and Health Psychology University College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,2,19]]},"reference":[{"key":"e_1_2_14_2_1","first-page":"485","article-title":"The aberrant behavior checklist: a behavior rating scale for the assessment of treatment effects","volume":"89","author":"Aman M. G.","year":"1985","journal-title":"American Journal of Mental Deficiency"},{"key":"e_1_2_14_3_1","doi-asserted-by":"publisher","DOI":"10.1176\/appi.books.9780890423349"},{"key":"e_1_2_14_4_1","doi-asserted-by":"publisher","DOI":"10.1037\/0022-006X.56.6.893"},{"key":"e_1_2_14_5_1","volume-title":"The Psychological Corporation","author":"Beck A. T.","year":"1996"},{"key":"e_1_2_14_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/0272-7358(88)90050-5"},{"key":"e_1_2_14_7_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_14_8_1","doi-asserted-by":"publisher","DOI":"10.1108\/AMHID-02-2019-0005"},{"key":"e_1_2_14_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12020"},{"key":"e_1_2_14_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/1094428110392383"},{"key":"e_1_2_14_11_1","doi-asserted-by":"publisher","DOI":"10.1080\/19315864.2012.670367"},{"key":"e_1_2_14_12_1","doi-asserted-by":"publisher","DOI":"10.1037\/1040-3590.6.4.284"},{"key":"e_1_2_14_13_1","first-page":"127","article-title":"Developing criteria for establishing interrater reliability of specific items: applications to assessment of adaptive behavior","volume":"86","author":"Cicchetti D. V.","year":"1981","journal-title":"American Journal of Mental Deficiency"},{"key":"e_1_2_14_14_1","doi-asserted-by":"publisher","DOI":"10.1177\/0011000016633507"},{"key":"e_1_2_14_15_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.bp.106.022483"},{"key":"e_1_2_14_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.brat.2003.07.010"},{"key":"e_1_2_14_17_1","first-page":"1","volume-title":"Comprehensive Quality of Life Scale \u2013 Adult, Manual","author":"Cummins R. A.","year":"1997"},{"key":"e_1_2_14_18_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1024704320683"},{"key":"e_1_2_14_19_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.182.4.347"},{"key":"e_1_2_14_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10902-006-9018-1"},{"key":"e_1_2_14_21_1","volume-title":"Brief Symptom Inventory: administration and scoring procedures manual","author":"Derogatis L. R.","year":"1993"},{"key":"e_1_2_14_22_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2009.00597.x"},{"key":"e_1_2_14_23_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-035280"},{"key":"e_1_2_14_24_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.bp.107.038729"},{"key":"e_1_2_14_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2014.11.021"},{"key":"e_1_2_14_26_1","doi-asserted-by":"publisher","DOI":"10.1023\/B:JADD.0000005999.27178.55"},{"key":"e_1_2_14_27_1","volume-title":"EFPA review model for the description and evaluation of psychological tests: test review form & notes for reviewers (version 4.2.6)","author":"European Federation of Psychologists' Associations","year":"2013"},{"key":"e_1_2_14_28_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.180.1.51"},{"key":"e_1_2_14_29_1","doi-asserted-by":"publisher","DOI":"10.1037\/1040-3590.7.3.286"},{"key":"e_1_2_14_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cpr.2017.08.006"},{"key":"e_1_2_14_31_1","doi-asserted-by":"publisher","DOI":"10.1037\/0033-2909.103.2.265"},{"key":"e_1_2_14_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/075910630107100104"},{"key":"e_1_2_14_33_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjc.12048"},{"key":"e_1_2_14_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2006.00844.x"},{"key":"e_1_2_14_35_1","doi-asserted-by":"publisher","DOI":"10.1002\/9781118329252.ch3"},{"key":"e_1_2_14_36_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2010.04.023"},{"key":"e_1_2_14_37_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2011.01.034"},{"key":"e_1_2_14_38_1","volume-title":"Applied statistics for the behavioural sciences","author":"Hinkle D. E.","year":"2002"},{"key":"e_1_2_14_39_1","doi-asserted-by":"publisher","DOI":"10.1097\/00006842-197905000-00004"},{"key":"e_1_2_14_40_1","doi-asserted-by":"publisher","DOI":"10.1352\/1944-7558-125.1.49"},{"key":"e_1_2_14_41_1","doi-asserted-by":"publisher","DOI":"10.1080\/10705519909540118"},{"key":"e_1_2_14_42_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3148.2011.00624.x"},{"key":"e_1_2_14_43_1","volume-title":"Personal Wellbeing Index","author":"International Wellbeing Group","year":"2006"},{"key":"e_1_2_14_44_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2012.01544.x"},{"key":"e_1_2_14_45_1","doi-asserted-by":"publisher","DOI":"10.2307\/3090197"},{"key":"e_1_2_14_46_1","first-page":"995","article-title":"The Children's Depression Inventory (CDI)","volume":"21","author":"Kovacs M.","year":"1985","journal-title":"Psychopharmacological Bulletin"},{"key":"e_1_2_14_47_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11205-004-0561-z"},{"key":"e_1_2_14_48_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2005.00618.x"},{"key":"e_1_2_14_49_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10882-012-9297-x"},{"key":"e_1_2_14_50_1","first-page":"230","volume-title":"Encyclopedia of research design","author":"Markus K.","year":"2010"},{"key":"e_1_2_14_51_1","doi-asserted-by":"publisher","DOI":"10.1037\/h0054346"},{"key":"e_1_2_14_52_1","volume-title":"The Matson evaluation of social skills for individuals with severe retardation","author":"Matson J. L.","year":"1995"},{"key":"e_1_2_14_53_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0891-4222(97)00031-0"},{"key":"e_1_2_14_54_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.159.3.404"},{"key":"e_1_2_14_55_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0270-3092(84)80021-1"},{"key":"e_1_2_14_56_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3148.2008.00460.x"},{"key":"e_1_2_14_57_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12075"},{"key":"e_1_2_14_58_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2788.2003.00457.x"},{"key":"e_1_2_14_59_1","volume-title":"The Mini PAS\u2010ADD interview pack","author":"Moss S.","year":"2002"},{"key":"e_1_2_14_60_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.163.4.471"},{"key":"e_1_2_14_61_1","volume-title":"Common mental health disorders: identification and pathways to care","author":"National Institute for Health and Care Excellence (NICE)","year":"2011"},{"key":"e_1_2_14_62_1","first-page":"21","volume-title":"Violence mental disorder: developments in risk assessment","author":"Novaco R. W.","year":"1994"},{"key":"e_1_2_14_63_1","doi-asserted-by":"publisher","DOI":"10.2466\/pr0.1962.10.3.799"},{"key":"e_1_2_14_64_1","doi-asserted-by":"publisher","DOI":"10.1177\/1744629509104487"},{"key":"e_1_2_14_65_1","doi-asserted-by":"publisher","DOI":"10.3399\/BJGP.2021.0164"},{"key":"e_1_2_14_66_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2788.1998.00146.x"},{"key":"e_1_2_14_67_1","doi-asserted-by":"publisher","DOI":"10.1177\/1744629518787895"},{"key":"e_1_2_14_68_1","doi-asserted-by":"publisher","DOI":"10.53841\/bpsfpid.2014.12.1.60"},{"key":"e_1_2_14_69_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2010.01360.x"},{"key":"e_1_2_14_70_1","volume-title":"Reiss screen for maladaptive behavior: test manual","author":"Reiss S.","year":"1988"},{"key":"e_1_2_14_71_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1013299028321"},{"key":"e_1_2_14_72_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2011.07.035"},{"key":"e_1_2_14_73_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2788.2002.00397.x"},{"key":"e_1_2_14_74_1","doi-asserted-by":"publisher","DOI":"10.1348\/014466503762842039"},{"key":"e_1_2_14_75_1","doi-asserted-by":"publisher","DOI":"10.1207\/s15374424jccp2801_6"},{"key":"e_1_2_14_76_1","volume-title":"Quality of Life Questionnaire Manual","author":"Schalock R. L.","year":"1993"},{"key":"e_1_2_14_77_1","doi-asserted-by":"publisher","DOI":"10.1093\/eurpub\/cki155"},{"key":"e_1_2_14_78_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2018.04.005"},{"key":"e_1_2_14_79_1","volume-title":"The Maslow assessment of needs scales","author":"Skirrow P.","year":"2009"},{"key":"e_1_2_14_80_1","volume-title":"Qualitative Psychology: A Practical Guide to Research Methods","author":"Smith J. A.","year":"2003"},{"key":"e_1_2_14_81_1","first-page":"418","article-title":"Assessing opportunities for choice\u2010making: a comparison of self\u2010 and staff reports","volume":"99","author":"Stancliffe R. J.","year":"1995","journal-title":"American Journal on Mental Retardation"},{"key":"e_1_2_14_82_1","doi-asserted-by":"publisher","DOI":"10.1080\/13668259900033911"},{"key":"e_1_2_14_83_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.bp.114.147280"},{"key":"e_1_2_14_84_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jclinepi.2006.03.012"},{"key":"e_1_2_14_85_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2011.01427.x"},{"key":"e_1_2_14_86_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10608-016-9774-0"},{"key":"e_1_2_14_87_1","first-page":"399","volume-title":"Assessing Psychological Trauma and PTSD: A Handbook for Practitioners","author":"Weiss D. S.","year":"1997"},{"key":"e_1_2_14_88_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277-9536(95)00112-K"},{"key":"e_1_2_14_89_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2011.06.008"},{"key":"e_1_2_14_90_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ridd.2021.103914"},{"key":"e_1_2_14_91_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-010-9648-y"},{"key":"e_1_2_14_92_1","volume-title":"International Classification of Diseases for Mortality and Morbidity Statistics","author":"World Health Organization (WHO)","year":"2018"},{"key":"e_1_2_14_93_1","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12003"}],"container-title":["Journal of Intellectual Disability Research"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jir.13018","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jir.13018","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jir.13018","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,21]],"date-time":"2023-08-21T20:18:50Z","timestamp":1692649130000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jir.13018"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,2,19]]},"references-count":92,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2023,5]]}},"alternative-id":["10.1111\/jir.13018"],"URL":"https:\/\/doi.org\/10.1111\/jir.13018","archive":["Portico"],"relation":{},"ISSN":["0964-2633","1365-2788"],"issn-type":[{"value":"0964-2633","type":"print"},{"value":"1365-2788","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,2,19]]},"assertion":[{"value":"2022-08-07","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-01-20","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-02-19","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}