{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,13]],"date-time":"2026-01-13T14:11:10Z","timestamp":1768313470208,"version":"3.49.0"},"reference-count":29,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2023,9,12]],"date-time":"2023-09-12T00:00:00Z","timestamp":1694476800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J intellect Disabil Res"],"published-print":{"date-parts":[[2024,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>In adults with an intellectual disability, health\u2010related quality of life (HRQoL) is often measured by proxy report. This cross\u2010sectional study investigated whether the mental health of proxy raters impacts the way they rate HRQoL.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>In this study, 110 carers of adults with an intellectual disability completed measures of psychological distress (Kessler\u20106) and HRQoL (EQ\u20105D\u20103L) about their own HRQoL and that of the care recipient. Differences between HRQoL scores as rated by the carer about themselves and the care recipient were calculated (convergence scores) and multiple regression models were fitted to estimate the association between proxy psychological distress and convergence scores for subjective\/objective HRQoL controlling for support needs of the care recipient, carer age and gender of care recipient.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>There was a significant association between psychological distress and subjective HRQoL convergence scores (<jats:italic>r<\/jats:italic>\u00a0=\u00a0.92; <jats:italic>P<\/jats:italic>\u00a0=\u00a00.03; 95%; CI: \u22121.76 to \u22120.09). There was no association between psychological distress and objective HRQoL convergence scores (<jats:italic>r<\/jats:italic>\u00a0=\u00a0.01; CI \u22120.02 to 0.001; <jats:italic>P<\/jats:italic>\u00a0=\u00a00.08). The association between psychological distress and HRQoL scores was no longer present when models did not include convergence scores.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Carers experiencing more psychological distress tended to rate their own and the care recipients' subjective HRQoL more similarly. Objective HRQoL measures did not show this convergence in scores with increasing carer psychological distress. Findings differed when the analysis approach was changed, suggesting the results above require replication in future studies.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jir.13088","type":"journal-article","created":{"date-parts":[[2023,9,12]],"date-time":"2023-09-12T11:10:06Z","timestamp":1694517006000},"page":"74-83","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Psychological distress and convergence of own and proxy health\u2010related quality of life in carers of adults with an intellectual disability"],"prefix":"10.1111","volume":"68","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8698-333X","authenticated-orcid":false,"given":"S.","family":"Rudra","sequence":"first","affiliation":[{"name":"Division of Psychiatry University College London  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0104-9370","authenticated-orcid":false,"given":"A.","family":"Ali","sequence":"additional","affiliation":[{"name":"Luton and Bedford Disability Service East London NHS Foundation Trust  London UK"},{"name":"Wolfson Institute for Population Health Queen Mary University  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J. M.","family":"Powell","sequence":"additional","affiliation":[{"name":"Centre for Research in Health and Social Care, School for Policy Studies University of Bristol  Bristol UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0495-8270","authenticated-orcid":false,"given":"R. P.","family":"Hastings","sequence":"additional","affiliation":[{"name":"Centre for Research in Intellectual and Developmental Disabilities University of Warwick  Coventry UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1702-2727","authenticated-orcid":false,"given":"V.","family":"Totsika","sequence":"additional","affiliation":[{"name":"Division of Psychiatry University College London  London UK"},{"name":"Centre for Research in Intellectual and Developmental Disabilities University of Warwick  Coventry UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,9,12]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2007-0854"},{"key":"e_1_2_10_3_1","first-page":"29","volume-title":"Clinical Advances in Cognitive Psychotherapy: Theory and Application","author":"Beck A. 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