{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T17:20:54Z","timestamp":1782840054966,"version":"3.54.5"},"reference-count":18,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2024,11,26]],"date-time":"2024-11-26T00:00:00Z","timestamp":1732579200000},"content-version":"vor","delay-in-days":25,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Midwife Womens Health"],"published-print":{"date-parts":[[2024,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Trisomy 18 (T18) is the second\u2010most common autosomal trisomy and includes multiple anomalies, growth restriction, and a severely shortened life span, often lasting only hours or days. C\u00f4t\u00e9\u2010Arsenault and Denney\u2010Koelsch extended Reva Rubin's work, describing the psychosocial stages of pregnancy by describing the stages and developmental tasks for a pregnancy altered by a life\u2010limiting fetal condition such as T18. When a diagnosis of T18 is made prenatally, the pregnancy changes dramatically, although it remains a psychosocial developmental process. The extended stages of pregnancy with T18 or another life\u2010limiting fetal condition are: <jats:italic>Pre\u2010Diagnosis, Learning the Diagnosis, Living With the Diagnosis, Birth and Death<\/jats:italic>, and <jats:italic>Post Death<\/jats:italic>. As they navigate these stages, parents must also address 7 developmental tasks of pregnancy, which are (1) <jats:italic>Navigating Relationships<\/jats:italic>, (2) <jats:italic>Comprehending Implications of the Condition<\/jats:italic>, (3) <jats:italic>Revising Goals of Pregnancy<\/jats:italic>, (4) <jats:italic>Making the Most of Time With Baby<\/jats:italic>, (5) <jats:italic>Preparing for Birth and Inevitable Death<\/jats:italic>, (6) <jats:italic>Advocating for Baby With Integrity<\/jats:italic>, and (7) <jats:italic>Adjusting to Life in Absence of Baby<\/jats:italic>. Knowledgeable health care providers can do much more than support parents through grief and facilitate discussions about birth planning. This case report highlights the importance of a knowledgeable provider who can help parents navigate the stages and tasks of pregnancy, empowering them to make choices consistent with their values so they have no regrets.<\/jats:p>","DOI":"10.1111\/jmwh.13710","type":"journal-article","created":{"date-parts":[[2024,11,26]],"date-time":"2024-11-26T09:29:19Z","timestamp":1732613359000},"page":"958-962","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Family\u2010Centered Antenatal Care With a Life\u2010Limiting Fetal Condition: A Developmental Theory\u2010Guided Approach"],"prefix":"10.1111","volume":"69","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3959-2659","authenticated-orcid":false,"given":"Carrie J.","family":"Henry","sequence":"first","affiliation":[{"name":"Capstone College of Nursing The University of Alabama  Tuscaloosa Alabama"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Denise","family":"C\u00f4t\u00e9\u2010Arsenault","sequence":"additional","affiliation":[{"name":"Trudy Busch Valentine School of Nursing Saint Louis University  Saint Louis Missouri"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,11,26]]},"reference":[{"key":"e_1_2_6_2_1","first-page":"937","volume-title":"Cassidy and Allanson's Management of Genetic Syndromes","author":"Carey JC","year":"2020"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2020\u20100818D"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajmg.c.31522"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2022.04.010"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild\u20102022\u2010325068"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpeds.2021.07.062"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpedsurg.2022.10.010"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2016.02.033"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/00000446-198412000-00030"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2024.02.300"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.midw.2016.01.014"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12912\u2010019\u20100328\u20100"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare\u20102020\u2010002857"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1097\/00006199\u2010199105000\u201000008"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.midw.2018.12.016"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2021.27.8.386"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163231172244"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/02692163231203852"}],"container-title":["Journal of Midwifery &amp; Women's Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jmwh.13710","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,12,13]],"date-time":"2024-12-13T10:21:55Z","timestamp":1734085315000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jmwh.13710"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,11]]},"references-count":18,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2024,11]]}},"alternative-id":["10.1111\/jmwh.13710"],"URL":"https:\/\/doi.org\/10.1111\/jmwh.13710","archive":["Portico"],"relation":{},"ISSN":["1526-9523","1542-2011"],"issn-type":[{"value":"1526-9523","type":"print"},{"value":"1542-2011","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,11]]},"assertion":[{"value":"2024-11-26","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}