{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,8]],"date-time":"2026-04-08T09:02:04Z","timestamp":1775638924068,"version":"3.50.1"},"reference-count":17,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,12,18]],"date-time":"2025-12-18T00:00:00Z","timestamp":1766016000000},"content-version":"vor","delay-in-days":17,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,12,1]],"date-time":"2025-12-01T00:00:00Z","timestamp":1764547200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Peripheral Nervous Sys"],"published-print":{"date-parts":[[2025,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background and Aims<\/jats:title>\n                    <jats:p>In most studies to date, generic health\u2010related quality of life (QoL) questionnaires have been used in patients with chronic inflammatory demyelinating polyradiculoneuropathy (CIDP). Unfortunately, these tools are often considered insufficient for capturing the unique characteristics of this specific, rare disease. The Chronic Acquired Polyneuropathy Patient\u2010Reported Index (CAP\u2010PRI) is a measure which specifically targets patients with chronic immune\u2010mediated polyneuropathies. This is the first study which longitudinally assessed QoL and functionality by CAP\u2010PRI in patients with active CIDP.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>CAP\u2010PRI testing was conducted at three time points (baseline, year one and year four) in 57 CIDP patients with active disease at baseline. In addition, the Medical Research Council Sum Score (MRC\u2010SS), Inflammatory Neuropathy Cause and Treatment (INCAT) disability score, Inflammatory Rasch\u2010built Overall Disability Scale (I\u2010RODS), and the generic QOL instrument, the Short Form 36 (SF\u201036) were used in all tested patients at all three time points.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>At the baseline and two other time points, CAP\u2010PRI showed strong correlations with impairment (MRC\u2010SS), functionality (INCAT, I\u2010RODS), and the SF\u201036. At year one and year four, CAP\u2010PRI was able to make a differentiation between patients whose impairment\/disability improved compared to patients who deteriorated, and it performed better than SF\u201036. One\u2010 and four\u2010year changes in CAP\u2010PRI correlated with a change in MRC\u2010SS, INCAT, and I\u2010RODS.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Interpretation<\/jats:title>\n                    <jats:p>CAP\u2010PRI is a highly reliable and sensitive measure for assessing QoL in patients with active CIDP. Its consistent performance over time supports its utility in monitoring CIDP patients with active disease in clinical and research settings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jns.70091","type":"journal-article","created":{"date-parts":[[2025,12,18]],"date-time":"2025-12-18T09:34:19Z","timestamp":1766050459000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Longitudinal Assessment of Quality of Life and Functionality by\n                    <scp>CAP<\/scp>\n                    \u2010\n                    <scp>PRI<\/scp>\n                    in Patients With Active Chronic Inflammatory Demyelinating Polyradiculoneuropathy"],"prefix":"10.1111","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6623-0779","authenticated-orcid":false,"given":"Ivo","family":"Bozovic","sequence":"first","affiliation":[{"name":"University Clinical Center of Serbia\u2014Neurology Clinic  Belgrade Serbia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7589-8826","authenticated-orcid":false,"given":"Kelly","family":"Gwathmey","sequence":"additional","affiliation":[{"name":"Department of Neurology Virginia Commonwealth University  Richmond Virginia USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2979-556X","authenticated-orcid":false,"given":"Stojan","family":"Peric","sequence":"additional","affiliation":[{"name":"University Clinical Center of Serbia\u2014Neurology Clinic  Belgrade Serbia"},{"name":"University of Belgrade\u2014Faculty of Medicine  Belgrade Serbia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aleksandra","family":"Kacar","sequence":"additional","affiliation":[{"name":"University Clinical Center of Serbia\u2014Neurology Clinic  Belgrade Serbia"},{"name":"University of Belgrade\u2014Faculty of Medicine  Belgrade Serbia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jelena","family":"Lazovic","sequence":"additional","affiliation":[{"name":"Outpatient Clinic \u201cEuromedik\u201d  Belgrade Serbia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Reza","family":"Sadjadi","sequence":"additional","affiliation":[{"name":"Harvard Medical School Massachusetts General Hospital  Boston Massachusetts USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8768-2136","authenticated-orcid":false,"given":"Ivana","family":"Basta","sequence":"additional","affiliation":[{"name":"University Clinical Center of Serbia\u2014Neurology Clinic  Belgrade Serbia"},{"name":"Outpatient Clinic \u201cEuromedik\u201d  Belgrade 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