{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,6]],"date-time":"2026-04-06T22:57:23Z","timestamp":1775516243589,"version":"3.50.1"},"reference-count":47,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2014,3,6]],"date-time":"2014-03-06T00:00:00Z","timestamp":1394064000000},"content-version":"vor","delay-in-days":5,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Peripheral Nervous Sys"],"published-print":{"date-parts":[[2014,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Guillain\u2010Barr\u00e9 syndrome (<jats:styled-content style=\"fixed-case\">GBS<\/jats:styled-content>) encompasses a broad spectrum of health\u2010related quality of life (<jats:styled-content style=\"fixed-case\">HRQL<\/jats:styled-content>) determinants, including mobility, fatigue, pain, and depression. We systematically reviewed the literature on functional outcome domains in which <jats:styled-content style=\"fixed-case\">GBS<\/jats:styled-content> patients experience limitations in the short and long terms and evaluated determinants of <jats:styled-content style=\"fixed-case\">HRQL<\/jats:styled-content> in <jats:styled-content style=\"fixed-case\">GBS<\/jats:styled-content> patients. <jats:styled-content style=\"fixed-case\">MEDLINE<\/jats:styled-content> and <jats:styled-content style=\"fixed-case\">EMBASE<\/jats:styled-content> were systematically searched by two independent reviewers for articles covering <jats:styled-content style=\"fixed-case\">HRQL<\/jats:styled-content> data of <jats:styled-content style=\"fixed-case\">GBS<\/jats:styled-content> patients. Of 730 abstracts screened, 17 articles covering data of 14 studies matched the selection criteria. The included articles showed that many <jats:styled-content style=\"fixed-case\">GBS<\/jats:styled-content> patients experienced physical limitations, even years after the acute phase of the disease, while results were inconsistent for perceived levels of pain, fatigue, and general mental well\u2010being. Only three papers covered <jats:styled-content style=\"fixed-case\">HRQL<\/jats:styled-content> assessments at more than one time point, generally showing large improvements in <jats:styled-content style=\"fixed-case\">HRQL<\/jats:styled-content> in the first year after <jats:styled-content style=\"fixed-case\">GBS<\/jats:styled-content> onset, but not thereafter. We appraised the methodological quality of included studies using a 13\u2010item checklist; none of the articles fulfilled all items and only seven articles presented data on correlations between <jats:styled-content style=\"fixed-case\">HRQL<\/jats:styled-content> and determinants. In conclusion, the majority of studies on <jats:styled-content style=\"fixed-case\">HRQL<\/jats:styled-content> in <jats:styled-content style=\"fixed-case\">GBS<\/jats:styled-content> patients are cross\u2010sectional and of low methodological quality. This paper provides guidance for much needed high\u2010quality studies on patterns of patient\u2010perceived recovery after <jats:styled-content style=\"fixed-case\">GBS<\/jats:styled-content> onset.<\/jats:p>","DOI":"10.1111\/jns5.12051","type":"journal-article","created":{"date-parts":[[2014,1,23]],"date-time":"2014-01-23T17:13:04Z","timestamp":1390497184000},"page":"24-35","source":"Crossref","is-referenced-by-count":37,"title":["Health\u2010related quality of life in Guillain\u2010Barr\u00e9 syndrome patients: a systematic review"],"prefix":"10.1111","volume":"19","author":[{"given":"Sirwan K. L.","family":"Darweesh","sequence":"first","affiliation":[{"name":"Department of Epidemiology Erasmus MC University Medical Center Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Suzanne","family":"Polinder","sequence":"additional","affiliation":[{"name":"Department of Public Health Erasmus MC University Medical Center Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maxim J. H. L.","family":"Mulder","sequence":"additional","affiliation":[{"name":"Department of Neurology Erasmus MC University Medical Center Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cristina P.","family":"Baena","sequence":"additional","affiliation":[{"name":"Department of Epidemiology Erasmus MC University Medical Center Rotterdam The Netherlands"},{"name":"School of Medicine Curitiba Pontificia Universidade Catolica do Paran\u00e1 Curitiba Paran\u00e1 Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nikki","family":"van Leeuwen","sequence":"additional","affiliation":[{"name":"Department of Public Health Erasmus MC University Medical Center Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Oscar H.","family":"Franco","sequence":"additional","affiliation":[{"name":"Department of Epidemiology Erasmus MC University Medical Center Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bart C.","family":"Jacobs","sequence":"additional","affiliation":[{"name":"Department of Neurology Erasmus MC University Medical Center Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pieter A.","family":"van Doorn","sequence":"additional","affiliation":[{"name":"Department of Neurology Erasmus MC University Medical Center Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2014,3,6]]},"reference":[{"key":"e_1_2_5_2_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e3182904fcc"},{"key":"e_1_2_5_3_1","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-198108000-00001"},{"key":"e_1_2_5_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.62.6.637"},{"key":"e_1_2_5_5_1","doi-asserted-by":"publisher","DOI":"10.1007\/s004150170157"},{"key":"e_1_2_5_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-510X(02)00158-2"},{"key":"e_1_2_5_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1600-0404.2005.00429.x"},{"key":"e_1_2_5_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.21536"},{"key":"e_1_2_5_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.physio.2009.04.001"},{"key":"e_1_2_5_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2009.02906.x"},{"key":"e_1_2_5_11_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638280701352626"},{"key":"e_1_2_5_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/mds.21567"},{"key":"e_1_2_5_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(08)70215-1"},{"key":"e_1_2_5_14_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.WNL.0000149521.65474.83"},{"key":"e_1_2_5_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jns.2004.09.021"},{"key":"e_1_2_5_16_1","doi-asserted-by":"publisher","DOI":"10.1191\/0269215505cr918oa"},{"key":"e_1_2_5_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jns.2012.02.026"},{"key":"e_1_2_5_18_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.WNL.0000148589.87107.9C"},{"key":"e_1_2_5_19_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-006-0962-9"},{"key":"e_1_2_5_20_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.1994.03520080061045"},{"key":"e_1_2_5_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/0895-4356(93)90142-N"},{"key":"e_1_2_5_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(05)67665-9"},{"key":"e_1_2_5_23_1","doi-asserted-by":"publisher","DOI":"10.1093\/brain\/awm004"},{"key":"e_1_2_5_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/0271-7123(81)90005-5"},{"key":"e_1_2_5_25_1","doi-asserted-by":"publisher","DOI":"10.2340\/16501977-0826"},{"key":"e_1_2_5_26_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10880-005-3271-z"},{"key":"e_1_2_5_27_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1529-8027.2009.00243.x"},{"key":"e_1_2_5_28_1","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.2005.076174"},{"key":"e_1_2_5_29_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.53.8.1648"},{"key":"e_1_2_5_30_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.10045"},{"key":"e_1_2_5_31_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.59.1.84"},{"key":"e_1_2_5_32_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-010-9606-8"},{"key":"e_1_2_5_33_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejca.2005.05.017"},{"key":"e_1_2_5_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1085-9489.2004.09102.x"},{"key":"e_1_2_5_35_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-009-0018-z"},{"key":"e_1_2_5_36_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJM199204233261706"},{"key":"e_1_2_5_37_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-1331.2008.02311.x"},{"key":"e_1_2_5_38_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1600-0404.2009.01245.x"},{"key":"e_1_2_5_39_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0b013e3181f88345"},{"key":"e_1_2_5_40_1","doi-asserted-by":"publisher","DOI":"10.1159\/000324710"},{"key":"e_1_2_5_41_1","doi-asserted-by":"publisher","DOI":"10.1126\/science.103.2684.677"},{"key":"e_1_2_5_42_1","doi-asserted-by":"publisher","DOI":"10.1161\/01.STR.31.11.2610"},{"key":"e_1_2_5_43_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJM199603283341306"},{"key":"e_1_2_5_44_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0033291798006667"},{"key":"e_1_2_5_45_1","doi-asserted-by":"publisher","DOI":"10.1177\/154596830001400202"},{"key":"e_1_2_5_46_1","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-199206000-00002"},{"key":"e_1_2_5_47_1","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-199603000-00003"},{"key":"e_1_2_5_48_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMra1114525"}],"container-title":["Journal of the Peripheral Nervous System"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fjns5.12051","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fjns5.12051","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jns5.12051","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,5]],"date-time":"2023-10-05T15:13:48Z","timestamp":1696518828000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jns5.12051"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,3]]},"references-count":47,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2014,3]]}},"alternative-id":["10.1111\/jns5.12051"],"URL":"https:\/\/doi.org\/10.1111\/jns5.12051","archive":["Portico"],"relation":{},"ISSN":["1085-9489","1529-8027"],"issn-type":[{"value":"1085-9489","type":"print"},{"value":"1529-8027","type":"electronic"}],"subject":[],"published":{"date-parts":[[2014,3]]}}}