{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,20]],"date-time":"2026-05-20T21:03:08Z","timestamp":1779310988797,"version":"3.51.4"},"reference-count":35,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2022,10,25]],"date-time":"2022-10-25T00:00:00Z","timestamp":1666656000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["sigmapubs.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J of Nursing Scholarship"],"published-print":{"date-parts":[[2023,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>A diagnosis of chronic illness posed a serious threat to people during the recent COVID\u201019 pandemic. People with chronic illnesses were faced with increased mortality and reduced access to healthcare. Self\u2010care is the process of maintaining health and managing a chronic illness. Nurses working in specialist services provide healthcare education to people with chronic illnesses. Access to these nurses was decreased during periods of the COVID\u201019 virus escalation due to the reconfiguration of services and redeployment of nurses. The purpose of the research was to learn from the experiences of people with a chronic illnesses in self\u2010care behaviors and accessing altered healthcare services to inform future practices.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A population survey design.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A mixed methods survey was designed, combining validated questionnaires and scales with open\u2010ended questions. A convenience sample was utilized via using social media platforms. Data analysis included descriptive and inferential statistics. Content analysis was used to analyze open\u2010ended responses.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>There were 147 responses, with approximately half reporting no changes in face\u2010to\u2010face healthcare contact, 41% reporting decreased contacts and 12% increased contacts. Non\u2010face\u2010to\u2010face contacts were reduced by almost 9%, did not change by almost 60%, while 33% indicated an increase. Participants reported mixed perceptions in contact with healthcare providers during restrictions. In the Patient Assessment of Chronic Illness Care and the Self\u2010Care of Chronic Illness scales, participants scored statistically lower scores than in previous studies. Participants indicated that public health restrictions negatively impacted their confidence, created challenges with re\u2010engaging and that access to care was more difficult.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>This research highlights the importance of providing continued support to people with chronic illness irrespective of other challenges to healthcare services. A structured approach to virtual self\u2010care education is required.<\/jats:p><\/jats:sec><jats:sec><jats:title>Clinical relevance<\/jats:title><jats:p>This research concluded that the experience of access to one healthcare professional as opposed to diverse multidisciplinary input was similar for a number of chronic illnesses groups of people during the COVID\u201019 pandemic. There was an altered dynamic of virtual contacts with healthcare providers and a lack of confidence interpreting what monitoring was required by people with a chronic illnesses due to a lack of preparedness for virtual healthcare delivery.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jnu.12835","type":"journal-article","created":{"date-parts":[[2022,10,25]],"date-time":"2022-10-25T11:49:19Z","timestamp":1666698559000},"page":"154-162","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["The perceived effects of <scp>COVID<\/scp>\u201019 while living with a chronic illness"],"prefix":"10.1111","volume":"55","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0988-4941","authenticated-orcid":false,"given":"Mary","family":"Ryder","sequence":"first","affiliation":[{"name":"School of Nursing, Midwifery &amp; Health Systems University College Dublin  Dublin Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6744-7590","authenticated-orcid":false,"given":"Suzanne","family":"Guerin","sequence":"additional","affiliation":[{"name":"School of Psychology University College Dublin  Dublin Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1906-2431","authenticated-orcid":false,"given":"Rita","family":"Forde","sequence":"additional","affiliation":[{"name":"Nursing, Midwifery and Palliative Care Kings College London  London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1545-3187","authenticated-orcid":false,"given":"Grainne","family":"Lowe","sequence":"additional","affiliation":[{"name":"Institute of Health and Wellbeing Federation University Australia  Melbourne Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tiny","family":"Jaarsma","sequence":"additional","affiliation":[{"name":"Department of Health, Medicine and Caring Sciences Link\u00f6ping University  Link\u00f6ping Sweden"},{"name":"Julius Center University Medical Centre Utrecht  Utrecht The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Madeline","family":"O'Neill","sequence":"additional","affiliation":[{"name":"School of Nursing, Midwifery &amp; Health Systems, University College Dublin Registered Advanced Nurse Practitioner Our Lady's Hospice and Care Services, Harold's Cross  Dublin 8 Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Carmel","family":"Halley","sequence":"additional","affiliation":[{"name":"St Vincent's University Hospital  Dublin 4 Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6602-1803","authenticated-orcid":false,"given":"Michael","family":"Connolly","sequence":"additional","affiliation":[{"name":"School of Nursing, Midwifery &amp; Health Systems University College Dublin and Our Lady's Hospice &amp; Care Services  Dublin Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2022,10,25]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.2196\/15445"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13321"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.24347"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1097\/JNC.0000000000000331"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/jdi.13326"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/2050640620927564"},{"key":"e_1_2_8_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/ejhf.1921"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2019.103422"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2007.04569.x"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.afjem.2017.08.001"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/dme.14498"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.mlr.0000160375.47920.8c"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.2337\/diacare.28.11.2655"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2021.03.005"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/pdi.2271"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2020.05.029"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13341"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hrtlng.2019.07.008"},{"key":"e_1_2_8_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11739-020-02395-z"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr2.11148"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.990"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1177\/10547738211056168"},{"key":"e_1_2_8_24_1","doi-asserted-by":"publisher","DOI":"10.1002\/jcop.22744"},{"key":"e_1_2_8_25_1","doi-asserted-by":"publisher","DOI":"10.1192\/j.eurpsy.2021.768"},{"key":"e_1_2_8_26_1","doi-asserted-by":"publisher","DOI":"10.1002\/ejhf.1990"},{"key":"e_1_2_8_27_1","doi-asserted-by":"publisher","DOI":"10.1097\/ANS.0b013e318261b1ba"},{"key":"e_1_2_8_28_1","doi-asserted-by":"publisher","DOI":"10.1097\/JCN.0b013e3181b4baa0"},{"key":"e_1_2_8_29_1","doi-asserted-by":"publisher","DOI":"10.1111\/jonm.13461"},{"key":"e_1_2_8_30_1","doi-asserted-by":"publisher","DOI":"10.1002\/ehf2.13209"},{"key":"e_1_2_8_31_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606\u2010007\u20100452\u20105"},{"key":"e_1_2_8_32_1","doi-asserted-by":"crossref","unstructured":"StoddardJ. ReynoldsE. K. ParisR. HallerS. JohnsonS. ZikJ. ElliotteE. MaruM. JaffeA. MallidiA. SmithA. HernandezR. G. VolkH. E. BrotmanM. A. &KaufmanJ.(2021).The coronavirus impact scale: Construction validation and comparisons in diverse clinical samples. Preprint available at:https:\/\/doi.org\/10.31234\/osf.io\/kz4pg.","DOI":"10.31234\/osf.io\/kz4pg"},{"key":"e_1_2_8_33_1","doi-asserted-by":"publisher","DOI":"10.1002\/ejhf.2052"},{"key":"e_1_2_8_34_1","article-title":"Association between self\u2010care and resilience: A cross\u2010sectional study in heart failure patients","author":"Rijn M. M.","year":"2022","journal-title":"The Journal of Cardiovascular Nursing"},{"key":"e_1_2_8_35_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.14617"},{"key":"e_1_2_8_36_1","doi-asserted-by":"publisher","DOI":"10.12968\/gasn.2021.19.Sup6.S27"}],"container-title":["Journal of Nursing Scholarship"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jnu.12835","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jnu.12835","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/sigmapubs.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jnu.12835","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,20]],"date-time":"2023-08-20T07:02:13Z","timestamp":1692514933000},"score":1,"resource":{"primary":{"URL":"https:\/\/sigmapubs.onlinelibrary.wiley.com\/doi\/10.1111\/jnu.12835"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,10,25]]},"references-count":35,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,1]]}},"alternative-id":["10.1111\/jnu.12835"],"URL":"https:\/\/doi.org\/10.1111\/jnu.12835","archive":["Portico"],"relation":{},"ISSN":["1527-6546","1547-5069"],"issn-type":[{"value":"1527-6546","type":"print"},{"value":"1547-5069","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,10,25]]},"assertion":[{"value":"2022-05-23","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-10-10","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-10-25","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}