{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,16]],"date-time":"2026-10-16T02:54:54Z","timestamp":1792119294254,"version":"4.4.0"},"reference-count":38,"publisher":"Wiley","issue":"7-8","license":[{"start":{"date-parts":[[2016,2,11]],"date-time":"2016-02-11T00:00:00Z","timestamp":1455148800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"The Centre for Integrated Health Research"},{"name":"NHS Forth Valley"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2016,4]]},"abstract":"<jats:sec><jats:title>Aims and objectives<\/jats:title><jats:p>To investigate the experiences of patients with intellectual disabilities, family and paid carers regarding the role of liaison nurses and the delivery of compassionate, person\u2010centred care. From this to propose a model of person\u2010centred care embedded in these experiences.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>People with intellectual disabilities have a high number of comorbidities, requiring multidisciplinary care, and are at high risk of morbidity and preventable mortality. Provision of compassionate, person\u2010centred care is essential to prevent complications and avoid death.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A qualitative design was adopted with Interpretative Phenomenological Analysis for data analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Semistructured interviews and focus groups were conducted. Data were analysed with a focus on compassionate, person\u2010centred care elements and components. Themes were modelled to develop a clinically meaningful model for practice.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Themes identified vulnerability, presence and the human interface; information balance; critical points and broken trust; roles and responsibilities; managing multiple transitions; \u2018flagging up\u2019 and communication.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The findings provide the first \u2018anatomy\u2019 of compassionate, person\u2010centred care and provide a model for operationalising this approach in practice. The applicability of the model will have to be evaluated further with this and other vulnerable groups.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance to clinical practice<\/jats:title><jats:p>This is the first study to provide a definition of compassionate, person\u2010centred care and proposes a model to support its application into clinical practice for this and other vulnerable groups.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jocn.13142","type":"journal-article","created":{"date-parts":[[2016,2,12]],"date-time":"2016-02-12T08:18:18Z","timestamp":1455265098000},"page":"972-982","source":"Crossref","is-referenced-by-count":57,"title":["The perspectives of stakeholders of intellectual disability liaison nurses: a model of compassionate, person\u2010centred care"],"prefix":"10.1111","volume":"25","author":[{"given":"Michael","family":"Brown","sequence":"first","affiliation":[{"name":"Edinburgh Napier University NHS Lothian Edinburgh UK"},{"name":"Learning Disability Service NHS Lothian Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zo\u00eb","family":"Chouliara","sequence":"additional","affiliation":[{"name":"Edinburgh Napier University NHS Lothian Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Juliet","family":"MacArthur","sequence":"additional","affiliation":[{"name":"Research and Development NHS Lothian Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"McKechanie","sequence":"additional","affiliation":[{"name":"Learning Disability Service NHS Lothian Edinburgh UK"},{"name":"University of Edinburgh Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Siobhan","family":"Mack","sequence":"additional","affiliation":[{"name":"Learning Disability Service NHS Lothian Edinburgh UK"},{"name":"Queen Margaret University Musselburgh East Lothian UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matt","family":"Hayes","sequence":"additional","affiliation":[{"name":"University of Edinburgh Edinburgh UK"},{"name":"NHS Lothian Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joan","family":"Fletcher","sequence":"additional","affiliation":[{"name":"NHS Lothian Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2016,2,11]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2001.7.2.8916"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3148.2009.00505.x"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.12109"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2788.2011.01511.x"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1089\/10966210252784962"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638280210152030"},{"key":"e_1_2_11_8_1","first-page":"131","volume-title":"Special Issues in Health Psychology","author":"Chouliara Z","year":"2007"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2003.12.010"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1080\/10538712.2011.554340"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/jpm.12048"},{"key":"e_1_2_11_12_1","first-page":"29","article-title":"Compassionate care: The theory and the reality","volume":"8","author":"Cole\u2010King A","year":"2011","journal-title":"Journal of Holistic Healthcare"},{"key":"e_1_2_11_13_1","volume-title":"Healthcare for All: The Independent Inquiry into Access to Healthcare for People with Learning Disabilities","author":"Department of Health","year":"2008"},{"key":"e_1_2_11_14_1","volume-title":"The NHS Constitution for England: The NHS Belongs to Us All","author":"Department of Health","year":"2009"},{"key":"e_1_2_11_15_1","volume-title":"Equity and Excellence: Liberating the NHS","author":"Department of Health","year":"2010"},{"key":"e_1_2_11_16_1","volume-title":"Compassion in Practice: Nursing, Midwifery and Care Staff. 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