{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,11]],"date-time":"2026-08-11T23:17:58Z","timestamp":1786490278154,"version":"build-2736575974"},"reference-count":48,"publisher":"Wiley","issue":"1-2","license":[{"start":{"date-parts":[[2017,9,19]],"date-time":"2017-09-19T00:00:00Z","timestamp":1505779200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"RCN Foundation"},{"name":"Roald Dahl Marvellous Children's Charity & the Burdett Trust for Nursing"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2018,1]]},"abstract":"<jats:sec><jats:title>Aims and objectives<\/jats:title><jats:p>To report parent and professional perspectives of step\u2010down care in assisting the transition from hospital to home, within one children's hospice in a constituent country of the United Kingdom.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>In recent years, increasing numbers of children\u2010dependent on long term assisted ventilation have been noted. Meeting the complex physical, emotional and social needs of the child and family is challenging. Many of these children spend extended periods in hospital even when medically stable.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>This was a qualitative study using an inductive, semantic analytic approach within a realist epistemology.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Data collection was carried out in 2013. Interviews took place with parents (<jats:italic>n<\/jats:italic>\u00a0=\u00a05) and focus groups with professionals (<jats:italic>n<\/jats:italic>\u00a0=\u00a026) who had experience of step\u2010down care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Multiple benefits of step\u2010down in the hospice were clear. Both sets of accounts suggested that for children and families life was \u201con hold\u201d in hospital. Hospice was considered a home\u2010like environment where the child and family could \u201clive again\u201d. Parents reflected that, in hospice they were \u201cliving, not existing\u201d while professionals highlighted hospice as nurturing and empowering the whole family, promoting the child's development while safely meeting their clinical needs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions and relevance to clinical practice<\/jats:title><jats:p>The study highlights a number of crucial benefits to the child and family both in the immediate and longer terms. The collective perspectives therefore endorse hospice as a potential viable choice for these children and their families during the always difficult, usually protracted transition from hospital to home.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jocn.13941","type":"journal-article","created":{"date-parts":[[2017,6,28]],"date-time":"2017-06-28T16:46:57Z","timestamp":1498668417000},"page":"396-406","source":"Crossref","is-referenced-by-count":21,"title":["The role of hospice in the transition from hospital to home for technology\u2010dependent children\u2014A qualitative study"],"prefix":"10.1111","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8242-4031","authenticated-orcid":false,"given":"Jayne","family":"Price","sequence":"first","affiliation":[{"name":"Faculty of Health, Social Care and Education Kingston University and St George's, University London Kingston upon Thames Surrey UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sharon","family":"McCloskey","sequence":"additional","affiliation":[{"name":"Northern Ireland Children's Hospice Newtownabbey UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kevin","family":"Brazil","sequence":"additional","affiliation":[{"name":"School of Nursing and Midwifery Queen's University Belfast Belfast UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,9,19]]},"reference":[{"key":"e_1_2_1_2_1","doi-asserted-by":"publisher","DOI":"10.1179\/1743291X13Y.0000000071"},{"issue":"2","key":"e_1_2_1_3_1","doi-asserted-by":"crossref","first-page":"114","DOI":"10.2174\/157339612800681244","article-title":"Technology\u2010dependent children: The chronically ventilated child","volume":"8","author":"Amin R.","year":"2012","journal-title":"Current Pediatric Reviews"},{"key":"e_1_2_1_4_1","unstructured":"Arskey H.(1996).Collecting data through joint interviews.Social Research Update Issue 15 Department of Sociology University of Surrey."},{"key":"e_1_2_1_5_1","volume-title":"Interviewing for social scientists","author":"Arskey H.","year":"1999"},{"issue":"3","key":"e_1_2_1_6_1","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1177\/1468794112439016","article-title":"Qualitative social research: A risky business when it comes to collecting \u2018sensitive\u2019 data","volume":"13","author":"Bahn S.","year":"2013","journal-title":"Qualitative Research"},{"key":"e_1_2_1_7_1","volume-title":"Qualitative information: Thematic analysis and code development","author":"Boyatzis R.","year":"1998"},{"key":"e_1_2_1_8_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_1_9_1","doi-asserted-by":"crossref","DOI":"10.5334\/ijic.1852","article-title":"Parents' perspectives of the transition to home when a child has complex technological health care needs","author":"Brenner M.","year":"2015","journal-title":"International Journal of Integrated Care"},{"key":"e_1_2_1_10_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2005-0789"},{"key":"e_1_2_1_11_1","doi-asserted-by":"publisher","DOI":"10.3109\/01460862.2015.1134721"},{"issue":"1","key":"e_1_2_1_12_1","doi-asserted-by":"crossref","first-page":"32","DOI":"10.7748\/ncyp.24.1.32.s23","article-title":"Technology dependence and children: A review of the evidence","volume":"24","author":"Cockett A.","year":"2012","journal-title":"Nursing Children and Young People"},{"key":"e_1_2_1_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/0267323113503057"},{"key":"e_1_2_1_14_1","volume-title":"National Service Framework for Children, Young People and Maternity Services: Children and young people who are ill: Standard 6\u201315","author":"Department of Health","year":"2004"},{"key":"e_1_2_1_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0277-9536(03)00205-3"},{"key":"e_1_2_1_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2524.2010.00935.x"},{"key":"e_1_2_1_17_1","doi-asserted-by":"publisher","DOI":"10.1038\/bdj.2008.192"},{"key":"e_1_2_1_18_1","first-page":"358","volume-title":"The research process in nursing","author":"Goodman C.","year":"2010"},{"key":"e_1_2_1_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.paed.2012.09.004"},{"key":"e_1_2_1_20_1","volume-title":"Discharge pathway for children with very complex health needs","author":"Health and Social Care Board (Northern Ireland)","year":"2013"},{"key":"e_1_2_1_21_1","unstructured":"Heaton J. 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