{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,17]],"date-time":"2025-10-17T19:56:57Z","timestamp":1760731017267,"version":"3.37.3"},"reference-count":32,"publisher":"Wiley","issue":"5-6","license":[{"start":{"date-parts":[[2018,1,23]],"date-time":"2018-01-23T00:00:00Z","timestamp":1516665600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Japan Society of Private Colleges and Universities of Nursing Grant"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2018,3]]},"abstract":"<jats:sec><jats:title>Aims and objectives<\/jats:title><jats:p>To explore caregivers\u2019 lived experience of reading slight movements of a child with severe brain injury.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>Despite increased need, the development of individual care for children with severe brain injuries has been prevented by their severe physical state and the poor reproducibility of their movements. In addition to a lack of evidence on the motor characteristics of patients with severe brain injury with multiple disabilities, their own development contributes to increasing variability in their states. Thus, caregivers are compelled to rely on their experiences, which have not been academically explored.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A qualitative study based on van Manen's method of hermeneutic phenomenology.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Data were obtained through twenty\u2010one 3\u2010hr observation sessions and five 15\u2010 to 45\u2010min group interviews. We observed a child (called <jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>) with severe brain injury and his 61 caregivers, and conducted group interviews with 28 caregivers. We focused on caregivers\u2019 experiences of reading <jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>'s slight movements. The data were interpreted based on van Manen's hermeneutic phenomenological approach.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Four themes emerged as caregivers\u2019 experience in trying to read <jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>'s slight movements. By considering \u201c<jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>'s physical state and his slight movements\u201d and discovering \u201ccaregivers\u2019 \u2018sense of uncertainty\u2019 about <jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>'s slight movements,\u201d caregivers could decipher \u201c<jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>'s multiple slight movements.\u201d \u201cSharing\u201d was found as a necessary aspect of these other three themes of reading <jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>'s slight movements.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>We presented caregivers\u2019 experiences as related to these four themes in their efforts to read the slight movements of <jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>. Due to <jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>'s slight movements with poor reproducibility, \u201csharing\u201d was necessary to read <jats:styled-content style=\"fixed-case\">AK<\/jats:styled-content>'s slight movements, as it exposes caregivers\u2019 lived experience to the interpretation of multiple caregivers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance to clinical practice<\/jats:title><jats:p>These four themes may be useful for assessing, guiding and promoting caregivers\u2019 use of sharing when reading the slight movements of children with severe brain injury.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jocn.14255","type":"journal-article","created":{"date-parts":[[2018,1,4]],"date-time":"2018-01-04T13:00:36Z","timestamp":1515070836000},"source":"Crossref","is-referenced-by-count":1,"title":["Caregivers\u2019 lived experience in trying to read slight movements in a child with severe brain injury: A phenomenological study"],"prefix":"10.1111","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3171-0676","authenticated-orcid":false,"given":"Naoko","family":"Kameda","sequence":"first","affiliation":[{"name":"Setsunan University Hirakata City Osaka Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Machiko","family":"Suzuki","sequence":"additional","affiliation":[{"name":"Kyoto University Kyoto Japan"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2018,1,23]]},"reference":[{"doi-asserted-by":"publisher","key":"e_1_2_12_2_1","DOI":"10.3233\/NRE-2004-19412"},{"doi-asserted-by":"publisher","key":"e_1_2_12_3_1","DOI":"10.1056\/NEJM199405263302107"},{"doi-asserted-by":"publisher","key":"e_1_2_12_4_1","DOI":"10.1086\/612649"},{"doi-asserted-by":"publisher","key":"e_1_2_12_5_1","DOI":"10.1037\/a0032837"},{"doi-asserted-by":"publisher","key":"e_1_2_12_6_1","DOI":"10.1111\/ene.12483"},{"doi-asserted-by":"publisher","key":"e_1_2_12_7_1","DOI":"10.1016\/j.jamda.2014.10.014"},{"volume-title":"The interpretation of cultures","year":"1973","author":"Geertz C.","key":"e_1_2_12_8_1"},{"doi-asserted-by":"publisher","key":"e_1_2_12_9_1","DOI":"10.1212\/WNL.58.3.349"},{"unstructured":"Giacino J. 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