{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,30]],"date-time":"2026-07-30T05:31:57Z","timestamp":1785389517072,"version":"3.55.0"},"reference-count":57,"publisher":"Wiley","issue":"21-22","license":[{"start":{"date-parts":[[2018,7,26]],"date-time":"2018-07-26T00:00:00Z","timestamp":1532563200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Concord Repatriation General Hospital Colorectal Unit Trust Fund"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2018,11]]},"abstract":"<jats:sec><jats:title>Aims and objectives<\/jats:title><jats:p>To understand women's experience of pregnancy with an ileostomy following bowel resection for inflammatory bowel disease or familial adenomatous polyposis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>While symptoms of IBD\/FAP can be debilitating and life\u2010threatening, ostomy formation can effectively manage symptoms. Research on pregnant women with an ostomy is sparse. While some literature suggests pregnant women with an ostomy can have a normal pregnancy and birth, documented stoma complications include intestinal obstruction, peristomal hernia, retraction, stenosis, laceration, bleeding, prolapse, pouching problems, nausea, vomiting and dehydration.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>Hermeneutic phenomenology.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>All known women (<jats:italic>n<\/jats:italic>\u00a0=\u00a08) who had been pregnant with an ileostomy were recruited from the stomal therapy departments of two teaching hospitals. Single in\u2010depth interviews were digitally recorded and transcribed verbatim. Hermeneutic phenomenological analysis was guided by the philosophy of Merleau\u2010Ponty. Reporting rigour was guided by the consolidated criteria for reporting qualitative research.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>There was a lower level of concern among pregnant woman with an ostomy than anticipated. Women described the following: the \u201chell\u201d of the disease; the stoma as a lifeline; heading into uncharted waters; wanting to be normal; the shared space of the baby and the diseased abdomen; pregnancy as a dark tunnel; and the unreliable body.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Women with inflammatory bowel disease frequently experience debilitating symptoms and serious ill health. Ileostomy formation improves symptoms and the sense of \u201cfeeling normal,\u201d facilitating readiness for conception, pregnancy and motherhood. However, women's uncertainty about conception and pregnancy persists due to the scarce information and experiences offered by clinicians, and fears around their unreliable body during pregnancy. Given this uncertainty for both women and their treating clinicians, outcomes should be documented and shared to reassure women of child\u2010bearing age that pregnancy and birth can be safe with a stoma.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance to practice<\/jats:title><jats:p>Women and clinicians should aim for disease remission, peer support, ongoing monitoring and involvement of a Stomal Therapy Nurse.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jocn.14601","type":"journal-article","created":{"date-parts":[[2018,7,3]],"date-time":"2018-07-03T06:24:41Z","timestamp":1530599081000},"page":"3931-3944","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":19,"title":["The embodied experience of pregnancy with an ileostomy"],"prefix":"10.1111","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1278-7459","authenticated-orcid":false,"given":"Ian","family":"Whiteley","sequence":"first","affiliation":[{"name":"Stomal Therapy Level 1 West Concord Repatriation General Hospital Sydney NSW Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janice","family":"Gullick","sequence":"additional","affiliation":[{"name":"Sydney Nursing School University of Sydney Camperdown NSW Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,7,26]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/apt.12417"},{"key":"e_1_2_11_3_1","volume-title":"Heidegger's neglect of the body","author":"Aho K.","year":"2009"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1353-6117(03)00077-5"},{"key":"e_1_2_11_5_1","unstructured":"Australian Bureau of Statistics(2014).4102.0 \u2013 Australian Social Trends: Where do migrants live?Retrieved fromhttp:\/\/www.abs.gov.au\/ausstats\/abs@.nsf\/Lookup\/4102.0main+features102014(accessed July 11 2017)."},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1097\/MIB.0b013e318281334d"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1097\/SGA.0000000000000124"},{"key":"e_1_2_11_8_1","volume-title":"Stomal therapy: A guide for nurse practitioners and patients","author":"Bokey E.","year":"1985"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2036.2011.04794.x"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0129567"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOG.0b013e32836229fb"},{"key":"e_1_2_11_12_1","doi-asserted-by":"crossref","first-page":"652","DOI":"10.1111\/j.1365-2702.2008.02480.x","article-title":"Towards understanding the concept of risk for pregnant women: Some nursing an midwifery implications","volume":"18","author":"Carolan M.","year":"2008","journal-title":"Journal of Clinical Nursing"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.gastro.2011.01.055"},{"key":"e_1_2_11_14_1","unstructured":"Crohn's & Colitis Australia(2013).Improving Inflammatory Bowel Disease care across Australia: Executive Summary. 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