{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T14:42:07Z","timestamp":1790174527655,"version":"4.1.0"},"reference-count":23,"publisher":"Wiley","issue":"17-18","license":[{"start":{"date-parts":[[2019,5,21]],"date-time":"2019-05-21T00:00:00Z","timestamp":1558396800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2019,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aims and objectives<\/jats:title><jats:p>To adapt the CONNECT Instrument for use in the paediatric population, to assess validity of this instrument after its adaptation and to assess concordance between mothers' perception of their child's illness and providers' understanding of mothers' perceptions.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>The CONNECT Instrument (Patient Education and Counseling, 73, 2008, 232\u2013239) was validated in an adult outpatient population to characterise both patients' perspectives and physicians' understanding of their patients' perspectives for several dimensions of the illness experience. However, this did not include the paediatric population or advanced practice providers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A two\u2010part prospective, cross\u2010sectional, observational study to assess the validity of CONNECT for Pediatrics and to assess perception of illness.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The CONNECT Instrument (Patient Version) was adapted from its original form and modified to CONNECT for Pediatrics to facilitate use in the inpatient paediatric population. Eighty\u2010five participants were enrolled including mothers, advanced practice providers and physicians from 2013\u20132014 during a child's scheduled admission to a paediatric epilepsy monitoring unit. Principal components analysis and inter\u2010item reliability were analysed, and differences in the six mean domain scores were assessed using repeated measures analysis of variance (RM\u2010ANOVA). Reporting of this research adheres to the STROBE guidelines (See Appendix S1).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Our analysis indicated that the modifications made provided a relatively valid and reliable instrument. There were overall statistically significant differences between the mother and physician groups, specifically in the domains of meaning and preference for partnership.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Paediatric advanced practice providers and physicians do have an understanding of mothers' perception of illness.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance to clinical practice<\/jats:title><jats:p>The ability of physicians and advanced practice providers to understand mothers' perceptions of illness is increasingly important in a changing healthcare environment. CONNECT for Pediatrics facilitates the identification of mothers' perception of their child's illness and provides the opportunity for paediatric advanced practice providers and physicians to understand parents\u2019 perception of illness.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jocn.14905","type":"journal-article","created":{"date-parts":[[2019,5,7]],"date-time":"2019-05-07T22:22:46Z","timestamp":1557267766000},"page":"3279-3287","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":4,"title":["Understanding mothers' perception of child's illness: Adapting the CONNECT Instrument for pediatrics"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0430-7785","authenticated-orcid":false,"given":"Kristin","family":"Magner","sequence":"first","affiliation":[{"name":"Division of Pediatric Critical Care Children's Hospital of Wisconsin\/Medical College of Wisconsin Milwaukee Wisconsin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dawn","family":"Bragg","sequence":"additional","affiliation":[{"name":"University of South Dakota Sanford School of Medicine Vermillion South Dakota"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert","family":"Treat","sequence":"additional","affiliation":[{"name":"Department of Academic Affairs Medical College of Wisconsin Milwaukee Wisconsin"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K. Jane","family":"Lee","sequence":"additional","affiliation":[{"name":"Complex Care Program Children Hospital of Wisconsin\/Medical College of Wisconsin Milwaukee Wisconsin"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2019,5,21]]},"reference":[{"key":"e_1_2_11_2_1","first-page":"1","article-title":"Altruism, the values dimension of caring self\u2010efficacy concept in Iranian pediatric nurses","volume":"6","author":"Alavi A.","year":"2017","journal-title":"Journal of Education and Health Promotion"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.4037\/ajcc1997.6.5.393"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1212\/CPJ.0000000000000313"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1097\/NAQ.0b013e3182a2fa47"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.4037\/ccn2015809"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.13606"},{"key":"e_1_2_11_8_1","first-page":"1","article-title":"Pediatric nurses' perception of support for families with children with congenital heart defects","volume":"00","author":"Bruce E.","year":"2017","journal-title":"Clinical Nursing Research"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.2106\/JBJS.15.00950"},{"issue":"47","key":"e_1_2_11_10_1","first-page":"54","article-title":"Nurse practitioners in a teaching hospital","volume":"20","author":"Genet C. 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