{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T20:24:37Z","timestamp":1790281477530,"version":"4.1.0"},"reference-count":34,"publisher":"Wiley","issue":"23-24","license":[{"start":{"date-parts":[[2020,10,1]],"date-time":"2020-10-01T00:00:00Z","timestamp":1601510400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>To understand the experiences of carers who were confronted by the development of impulsive and compulsive behaviours.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>Impulsive and compulsive behaviours (ICBs) are a serious complication in Parkinson's disease (PD) strongly associated with dopamine replacement therapy used to treat patients. These behaviours comprise abnormal activities such as pathological gambling, binge eating, compulsive shopping and hypersexuality. These behaviours place a considerable burden on patients and on their carers and families.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>An exploratory qualitative study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Using a convenience sampling approach, 13 carers were recruited to participate in semi\u2010structured interviews. Interviews were conducted over the telephone. Verbatim transcripts were analysed using a thematic analysis approach. COREQ guidelines were adhered to in the reporting of this study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Five main themes were identified: (a) realisation\u2014developing awareness of ICB symptoms and their causes; (b) reacting\u2014confronting and attempts to manage ICBs; (c) reaching out\u2014help\u2010seeking and selective disclosure; (d) reframing\u2014shifting perspectives on ICBs over time; and (e) resignation\u2014impact on relationships and facing the future.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>The profound impact of ICBs on quality of life, relationships and economic stability was clear in the carers\u2019 accounts. Possible avenues for future clinical research are suggested.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance to clinical practice<\/jats:title><jats:p>The potentially devastating effects of ICBs provide a strong imperative for nurses and other health professionals to ensure that close monitoring for symptom development together with patient education is always part of practice.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jocn.15499","type":"journal-article","created":{"date-parts":[[2020,9,21]],"date-time":"2020-09-21T21:24:43Z","timestamp":1600723483000},"page":"4623-4632","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":15,"title":["The experiences of carers looking after people with Parkinson\u2019s disease who exhibit impulsive and compulsive behaviours: An exploratory qualitative study"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4183-5376","authenticated-orcid":false,"given":"Eamonn","family":"McKeown","sequence":"first","affiliation":[{"name":"School of Health Sciences City, University of London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tariq","family":"Saleem","sequence":"additional","affiliation":[{"name":"Parkinson\u2019s UK London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Cathy","family":"Magee","sequence":"additional","affiliation":[{"name":"University College London Hospitals NHS Foundation Trust London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4822-5482","authenticated-orcid":false,"given":"Mark","family":"Haddad","sequence":"additional","affiliation":[{"name":"School of Health Sciences City, University of London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,10]]},"reference":[{"key":"e_1_2_10_2_1","volume-title":"Please mind the gap: Parkinson's disease services today","author":"All Party Parliamentary Group for Parkinson's Disease","year":"2009"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.3310\/hsdr02090"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1146\/annurev-clinpsy-032813-153705"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_10_6_1","doi-asserted-by":"crossref","first-page":"105","DOI":"10.3233\/JPD-120165","article-title":"A systematic review of impulse control disorders in Parkinson's disease","volume":"3","author":"Callesen M. 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