{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,15]],"date-time":"2026-09-15T03:29:59Z","timestamp":1789442999546,"version":"build-2803163510"},"reference-count":39,"publisher":"Wiley","issue":"21-22","license":[{"start":{"date-parts":[[2021,11,22]],"date-time":"2021-11-22T00:00:00Z","timestamp":1637539200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100005297","name":"Uniwersytet Medyczny w Bialymstoku","doi-asserted-by":"publisher","award":["SUB\/3\/DN\/21\/003\/3310"],"award-info":[{"award-number":["SUB\/3\/DN\/21\/003\/3310"]}],"id":[{"id":"10.13039\/501100005297","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2022,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>The aim of the study was to evaluate the usability of the COPE Index in the assessment of subjective caregiving burden of family caregivers providing care for older people in their home environment.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A cross\u2010sectional study was conducted among 110 family caregivers. The criterion of including caregivers in the study was their provision of care at home for an older person who needed and received regular long\u2010term nursing care in their home environment. The study was carried out using the COPE Index questionnaire in assessing the situation of family caregivers. The study was reported according to the STROBE checklist.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The mean result of assessment of negative impact of care in the studied group of caregivers was 16.5\u00a0\u00b1\u00a0SD 3.0, positive impact of care \u2013 10.4\u00a0\u00b1\u00a0SD 2.8 and the quality of support \u2013 9.2\u00a0\u00b1\u00a0SD 1.8. A higher level of caregiving burden was found in 58.2% caregivers. The vast majority of the caregivers were women (83.6%). The care was most often provided by the elderly people's children (51.0%), less often by spouses (17.0%), siblings (10.0%), grandchildren (10.0%) and paid caregivers (10.0%).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The COPE Index proved to be a useful instrument for routine application in home environment to identify care deficits. Greater caregiving burden of family caregivers of disabled older persons was associated with a higher number of nights devoted to care, growing limitations on professional life, choice to provide care, the caregiver's emotional state, the lack of support in the caregiving role, support from family members and the state of cognitive functions of the care recipient.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance to clinical practice<\/jats:title><jats:p>This study may help identify and characterise the profile of family caregivers who are at risk of caregiving burden, and can be used to apply well\u2010designed activities aimed at reducing their suffering and providing them support.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jocn.16138","type":"journal-article","created":{"date-parts":[[2021,11,23]],"date-time":"2021-11-23T05:06:37Z","timestamp":1637643997000},"page":"3110-3119","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Usability of the COPE Index in the assessment of subjective caregiving burden of family caregivers of older people: A cross\u2010sectional Study"],"prefix":"10.1111","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5949-758X","authenticated-orcid":false,"given":"Halina","family":"Doroszkiewicz","sequence":"first","affiliation":[{"name":"Department of Geriatrics Medical University of Bialystok  Bialystok Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matylda","family":"Sierakowska","sequence":"additional","affiliation":[{"name":"Department of Integrated Medical Care Medical University of Bialystok  Bialystok Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,11,22]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-019-1189-9"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2014.304"},{"key":"e_1_2_13_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.archger.2016.04.002"},{"key":"e_1_2_13_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/48.3.276"},{"key":"e_1_2_13_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12062-015-9116-0"},{"key":"e_1_2_13_7_1","volume-title":"Family caregiving for the elderly in Poland","author":"Bie\u0144 B.","year":"2006"},{"key":"e_1_2_13_8_1","first-page":"51","volume-title":"The situation of elderly people","author":"Bie\u0144 B.","year":"2012"},{"key":"e_1_2_13_9_1","doi-asserted-by":"publisher","DOI":"10.1093\/eurpub\/cks190"},{"issue":"1","key":"e_1_2_13_10_1","first-page":"25","article-title":"Level of disability of older persons as an indication for supporting family caregivers","volume":"16","author":"Bie\u0144 B.","year":"2008","journal-title":"Gerontol Pol"},{"key":"e_1_2_13_11_1","doi-asserted-by":"publisher","DOI":"10.2147\/CIA.S125664"},{"key":"e_1_2_13_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/jnu.12256"},{"key":"e_1_2_13_13_1","volume-title":"Population Projection 2014\u20132050","author":"Central Statistical Office","year":"2014"},{"issue":"4","key":"e_1_2_13_14_1","first-page":"79","article-title":"The informal caregivers\u2019 burden related to the mental and functional performance of the patient undergoing home care","volume":"64","author":"Deluga A.","year":"2018","journal-title":"Pomeranian Journal of Life Science"},{"key":"e_1_2_13_15_1","unstructured":"European Commission.Health and long\u2010term care in the European Union Report Special Eurobarometer2007 283\/Wave 67.3. Brussels."},{"key":"e_1_2_13_16_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/30.3.399"},{"key":"e_1_2_13_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamda.2015.10.015"},{"key":"e_1_2_13_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apnr.2016.11.002"},{"key":"e_1_2_13_19_1","doi-asserted-by":"publisher","DOI":"10.4306\/pi.2014.11.2.152"},{"issue":"2","key":"e_1_2_13_20_1","first-page":"59","article-title":"Family caregivers of older people with dementia or cognitive disorders in Poland \u2013 risk factors of care burden","volume":"20","author":"Karczewska B.","year":"2012","journal-title":"Gerontology Policy"},{"key":"e_1_2_13_21_1","first-page":"1","article-title":"Safety risks among frail older people living at home in the Netherlands\u2010 A cross\u2010sectional study in a routine primary care sample","volume":"00","author":"Lette M.","year":"2020","journal-title":"Health and Social Care in the Community"},{"key":"e_1_2_13_22_1","first-page":"61","article-title":"Functional evaluation: The Barthel Index","volume":"14","author":"Mahoney F. I.","year":"1965","journal-title":"Maryland State Medical Journal"},{"key":"e_1_2_13_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.arr.2011.03.003"},{"key":"e_1_2_13_24_1","doi-asserted-by":"publisher","DOI":"10.1080\/1360786021000006956"},{"key":"e_1_2_13_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.archger.2009.04.017"},{"key":"e_1_2_13_26_1","doi-asserted-by":"publisher","DOI":"10.1159\/000347146"},{"key":"e_1_2_13_27_1","volume-title":"An Investigation of Geriatric Nursing Problems in Hospital","author":"Norton D.","year":"1962"},{"key":"e_1_2_13_28_1","doi-asserted-by":"publisher","DOI":"10.1037\/0882\u20107974.18.2.250"},{"key":"e_1_2_13_29_1","doi-asserted-by":"publisher","DOI":"10.12740\/PT\/28915"},{"key":"e_1_2_13_30_1","unstructured":"Regulation of the Minister Health. (2014).Amending the Regulation on guaranteed care and nursing services as part of long\u2010term care. Journal of Law Dz. U. item. 960."},{"key":"e_1_2_13_31_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnu177"},{"key":"e_1_2_13_32_1","doi-asserted-by":"publisher","DOI":"10.1037\/fam0000444"},{"key":"e_1_2_13_33_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamda.2015.09.007"},{"key":"e_1_2_13_34_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jagp.2012.09.006"},{"issue":"1","key":"e_1_2_13_35_1","first-page":"87","article-title":"Working carers in Poland \u2010successful strategies for reconciliation of work and care of an older adult","volume":"20","author":"Stypinska J.","year":"2014","journal-title":"Anthropological Notebooks"},{"key":"e_1_2_13_36_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0142416"},{"key":"e_1_2_13_37_1","doi-asserted-by":"publisher","DOI":"10.1177\/1355819619848025"},{"key":"e_1_2_13_38_1","unstructured":"Wizner B. Skalska A. Klich\u2010R\u0105czka A. Piotrowicz K. &Grodzicki T.(2012).Ocena stanu funkcjonalnego u os\u00f3b w starszym wieku (in): Aspekty medyczne psychologiczne socjologiczne i ekonomiczne starzenia si\u0119 ludzi w Polsce. Polsenior 81\u201394."},{"key":"e_1_2_13_39_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/20.6.649"},{"key":"e_1_2_13_40_1","first-page":"71","article-title":"Psychometric properties of the Polish version of the Aaron T. Beck\u2019s Depression Inventory BDI\u2010II. Psychologia \u2013 Etologia \u2013 Genetyka","volume":"19","author":"Zawadzki B.","year":"2009","journal-title":"Warsaw University"}],"container-title":["Journal of Clinical Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jocn.16138","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jocn.16138","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jocn.16138","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,21]],"date-time":"2023-08-21T09:29:15Z","timestamp":1692610155000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jocn.16138"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,11,22]]},"references-count":39,"journal-issue":{"issue":"21-22","published-print":{"date-parts":[[2022,11]]}},"alternative-id":["10.1111\/jocn.16138"],"URL":"https:\/\/doi.org\/10.1111\/jocn.16138","archive":["Portico"],"relation":{},"ISSN":["0962-1067","1365-2702"],"issn-type":[{"value":"0962-1067","type":"print"},{"value":"1365-2702","type":"electronic"}],"subject":[],"published":{"date-parts":[[2021,11,22]]},"assertion":[{"value":"2021-07-07","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-11-10","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2021-11-22","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}