{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T14:37:56Z","timestamp":1787063876740,"version":"build-2736575974"},"reference-count":57,"publisher":"Wiley","issue":"17-18","license":[{"start":{"date-parts":[[2023,4,7]],"date-time":"2023-04-07T00:00:00Z","timestamp":1680825600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2023,9]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim and objectives<\/jats:title>\n                    <jats:p>The aim of this study was to describe and understand how heterosexual women with Turner Syndrome experience sexuality.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Turner Syndrome is a genetic condition that is the result of one of the X chromosomes missing or partially missing, and it affects women of all ages. Turner Syndrome may lead to psychological, relational and sex life disorders.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>This is a qualitative study, and the COREQ checklist was employed to report on the current study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The study was conducted in a region of southern Spain. Convenience and snowball sampling were used to recruit 18 women, aged 22\u201351\u2009years, who had been diagnosed with Turner Syndrome. Participants' experiences were explored through semi\u2010structured interviews between January and May 2021. Thematic analysis was used for data analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Three main themes and eight sub\u2010themes emerge from the data analysis: (1) Sexuality linked to corporeality, with the sub\u2010themes: \u2018Discovering that your body is different\u2019, \u2018Social stigma limits one's sex life\u2019 and \u2018Fear of penetration surpresses sexual desire\u2019. (2) Adapting one's sexuality to Turner Syndrome, with the sub\u2010themes: \u2018Feeling like a woman\u2019 and \u2018Suffering from and adapting to comorbidities\u2019. (3) When infertility overshadows sexuality, with the sub\u2010themes: \u2018Prolonging childhood by ignoring sexuality\u2019, \u2018Fertility treatment: always a possibility\u2019 and \u2018Lack of specialised professional knowledge\u2019.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Heterosexual women with Turner Syndrome suffer from sexual problems, delayed diagnosis and treatment, and lack of information. Unawareness and relational problems may also lead to scarce and late sexual relations, jealousy and a fear of being left. The women with Turner Syndrome refer to little self\u2010exploration or masturbation as well as a fear of penetration.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Relevance to clinical practice<\/jats:title>\n                    <jats:p>Understanding the experiences of sexuality in heterosexual women with Turner Syndrome is a challenge for clinical nurses, who could provide quality care to these women in contextualised services.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jocn.16715","type":"journal-article","created":{"date-parts":[[2023,4,8]],"date-time":"2023-04-08T00:54:22Z","timestamp":1680915262000},"page":"6634-6647","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["\u2018I'm still a woman\u2019: A qualitative study on sexuality in heterosexual women with Turner Syndrome"],"prefix":"10.1111","volume":"32","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7051-2584","authenticated-orcid":false,"given":"Jos\u00e9","family":"Granero\u2010Molina","sequence":"first","affiliation":[{"name":"Department of Nursing, Physiotherapy and Medicine University of Almeria  Almeria Spain"},{"name":"Faculty of Health Sciences Universidad Aut\u00f3noma de Chile  Santiago de Chile Chile"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Roc\u00edo Aguirre","family":"Rom\u00e1n","sequence":"additional","affiliation":[{"name":"Infant and Primary School San Indalecio  La Ca\u00f1ada Almer\u00eda Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mar\u00eda","family":"del Mar\u00a0Jim\u00e9nez\u2010Lasserrotte","sequence":"additional","affiliation":[{"name":"Department of Nursing, Physiotherapy and Medicine University of Almeria  Almer\u00eda Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6454-4723","authenticated-orcid":false,"given":"Mar\u00eda Dolores","family":"Ruiz\u2010Fern\u00e1ndez","sequence":"additional","affiliation":[{"name":"Department of Nursing, Physiotherapy and Medicine University of Almeria  Almer\u00eda Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mar\u00eda Isabel","family":"Ventura\u2010Miranda","sequence":"additional","affiliation":[{"name":"Department of Nursing, Physiotherapy and Medicine University of Almeria  Almer\u00eda Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gonzalo","family":"Granero\u2010Heredia","sequence":"additional","affiliation":[{"name":"Housing for the Elderly Montserrat  Madrid Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0805-1542","authenticated-orcid":false,"given":"Isabel Mar\u00eda","family":"Fern\u00e1ndez\u2010Medina","sequence":"additional","affiliation":[{"name":"Department of Nursing, Physiotherapy and Medicine University of Almeria  Almer\u00eda Spain"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,4,7]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13148-018-0477-0"},{"key":"e_1_2_13_3_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOP.0000000000001135"},{"issue":"10","key":"e_1_2_13_4_1","doi-asserted-by":"crossref","DOI":"10.1161\/HCG.0000000000000048","article-title":"Cardiovascular health in Turner syndrome: A scientific statement from the American Heart Association","volume":"11","author":"Andersen N. 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