{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T23:11:35Z","timestamp":1788477095402,"version":"build-2803163510"},"reference-count":25,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2023,9,22]],"date-time":"2023-09-22T00:00:00Z","timestamp":1695340800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2024,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>Explore experiences and choices related to bowel management following spinal cord injury.<\/jats:p><\/jats:sec><jats:sec><jats:title>Background<\/jats:title><jats:p>In one UK spinal centre, more are choosing a colostomy soon after injury in contravention of professional guidelines. Reasons for this were unknown.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Grounded theory study using semi\u2010structured interviews with 12 individuals living with spinal cord injury.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>All \u2018Experienced Loss\u2019 related to bowel function. Those who chose colostomy later \u2018Progressed into Suffering\u2019. Colostomy transformed lives and was likened to \u2018Being Alive Again\u2019. \u2018Failures of Care\u2019 contributed to experiences and decision\u2010making.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Possessing information and choice emerge as key in transforming lives following spinal cord injury. They allow individuals to make choices from a lifeworld perspective, which may differ from those professionals assume. Present neurogenic bowel management guidelines fail to account for the wider lifeworlds of those they are designed for.<\/jats:p><\/jats:sec><jats:sec><jats:title>Implications for the Profession and Patient Care<\/jats:title><jats:p>An imperative emerges to make information and choice available and involve patients in the reconstruction of guidelines.<\/jats:p><\/jats:sec><jats:sec><jats:title>Impact<\/jats:title><jats:p>Unique knowledge emerges about patient experiences and motivations, and points to a patient\u2010led revolution in how bowel management following spinal cord injury is understood and managed. The imperative for adequate access to information and choice is demonstrated.<\/jats:p><\/jats:sec><jats:sec><jats:title>Reporting Method<\/jats:title><jats:p>EQUATOR Standards for Reporting Qualitative Research (SRQR) were adhered to.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>The methodology facilitated discussion of areas important to patients and made them co\u2010constructors of theory.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jocn.16885","type":"journal-article","created":{"date-parts":[[2023,9,22]],"date-time":"2023-09-22T12:38:54Z","timestamp":1695386334000},"page":"1094-1109","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["The choice for colostomy following spinal cord injury: A\u00a0grounded theory study"],"prefix":"10.1111","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1988-2106","authenticated-orcid":false,"given":"Michelle Louise","family":"Boucher","sequence":"first","affiliation":[{"name":"Salisbury NHS Foundation Trust  Salisbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6577-8639","authenticated-orcid":false,"given":"Leslie","family":"Gelling","sequence":"additional","affiliation":[{"name":"Bournemouth University  Bournemouth UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Desiree","family":"Tait","sequence":"additional","affiliation":[{"name":"Bournemouth University  Bournemouth UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,9,22]]},"reference":[{"key":"e_1_2_13_2_1","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2017.18"},{"key":"e_1_2_13_3_1","unstructured":"Androidmarsexpress. 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