{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T13:00:27Z","timestamp":1790859627555,"version":"4.1.0"},"reference-count":63,"publisher":"Wiley","issue":"11","license":[{"start":{"date-parts":[[2026,6,18]],"date-time":"2026-06-18T00:00:00Z","timestamp":1781740800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,6,18]],"date-time":"2026-06-18T00:00:00Z","timestamp":1781740800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2026,11]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To synthesise and reinterpret qualitative evidence on how people with palliative care needs and their family caregivers experience the care process.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Palliative care aims to provide holistic, person\u2010 and family\u2010centred care. Although qualitative research has explored multiple aspects of end\u2010of\u2010life care, existing knowledge remains fragmented, limiting its translation into coherent, humanised, and clinically applicable nursing care models.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A qualitative systematic review with interpretive meta\u2010synthesis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A qualitative meta\u2010synthesis was conducted following PRISMA guidelines. Systematic searches were performed in PubMed, CINAHL, and Scopus for studies published between 2014 and 2024, in English or Spanish, involving adults with palliative care needs and\/or their family caregivers from OECD countries. A total of 3232 records were identified. Following screening and full\u2010text review, 13 qualitative studies were included. Methodological quality was appraised using the Critical Appraisal Skills Programme (CASP) checklist. Findings were synthesised through an interpretive approach using reflexive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The care experience is configured as a dynamic, relational, and non\u2010linear process, characterised by emotional, physical, and social demands. Family caregivers report a substantial caregiving burden, often exacerbated by a lack of support, constrained resources, and communication challenges with healthcare teams. From the perspective of people with palliative care needs, the experience of care is closely linked to respect for autonomy, preservation of identity, and the quality of relational presence. Dignity emerges as a cross\u2010cutting theme, strengthened or undermined by nursing practices, interpersonal interactions, and organisational contexts.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Effective palliative care requires relational nursing practices that uphold dignity and support the family as a unit of care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Relevance to Clinical Practice<\/jats:title>\n                    <jats:p>Nursing practice must systematically integrate relational competencies to preserve patient identity and support the family as a care unit. Bureaucratic healthcare structures often act as active barriers to care, necessitating organisational redesign to support family accompaniment.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jocn.70406","type":"journal-article","created":{"date-parts":[[2026,6,19]],"date-time":"2026-06-19T04:37:22Z","timestamp":1781843842000},"page":"5099-5116","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["The Experience of Care in People With Palliative Needs and Their Families: A Qualitative Metasynthesis"],"prefix":"10.1111","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0009-0005-6888-189X","authenticated-orcid":false,"given":"Ana","family":"Gil M\u00e9ndez","sequence":"first","affiliation":[{"name":"Nursing Department Universitat Aut\u00f2noma de Barcelona  Bellaterra Spain"},{"name":"Grup de Recerca Infermera Taul\u00ed Per Cuidar, Atraure i Transformar (RIT\u2010CAT), Institut D'investigaci\u00f3 i 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