{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,7]],"date-time":"2026-11-07T16:23:54Z","timestamp":1794068634995,"version":"4.8.0"},"reference-count":48,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T00:00:00Z","timestamp":1785888000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T00:00:00Z","timestamp":1785888000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Clinical Nursing"],"published-print":{"date-parts":[[2026,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To identify the barriers to timely access to palliative care from the perspective of Australian inpatients and their families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A co\u2010designed mixed methods study with an equal status explanatory design (QUAN \u2794 QUAL).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Quantitative data were collected in Phase 1 via surveys to assess participants' knowledge and experience of palliative care. In the second phase, qualitative data were obtained via semi\u2010structured interviews to explore participants' perceptions of palliative care and to identify barriers to palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 194 complete patient survey responses and 52 family\/visitor responses were received. Mean self\u2010rated knowledge of palliative care was slightly higher than self\u2010rated knowledge of end\u2010of\u2010life care in both groups. Patient respondents scored a mean of 9.3 out of 13 on the Palliative Care Knowledge Scale and family visitor respondents had a mean score of 9.7. Statistically significant differences in the mean Palliative Care Knowledge scores were found when patient and family respondents reported being familiar with palliative care. A total of 11 patients and nine family members participated in an interview in Phase 2. Three main themes and nine subthemes were identified. The three main barriers were Communication, Knowledge and Perceptions, and Accessibility.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Patients and family members perceived a range of barriers to palliative care at the individual, health professional, and system level. These findings highlight areas where targeted interventions should be developed to improve timely access to palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Impact<\/jats:title>\n                    <jats:p>\n                      <jats:list list-type=\"bullet\">\n                        <jats:list-item>\n                          <jats:p>While the perspectives of health professionals are well known, the perceptions of patients and families on the barriers to palliative care are underreported.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>A wide variety of complex issues that could impede timely access to palliative care were identified at the individual, health professional and system level.<\/jats:p>\n                        <\/jats:list-item>\n                        <jats:list-item>\n                          <jats:p>Health consumer perspectives are essential to fully understanding the barriers to palliative care access. The findings of this research can be used to inform future interventions to improve access to palliative care.<\/jats:p>\n                        <\/jats:list-item>\n                      <\/jats:list>\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Reporting Method<\/jats:title>\n                    <jats:p>Good Reporting of A Mixed Methods Study (GRAMMS) checklist (Data S2) (O\u2019Cathain et\u00a0al., 2008).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>The study was guided by a steering group of health consumers and health professionals working in partnership with the research team through all stages of the research process.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jocn.70480","type":"journal-article","created":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T08:50:17Z","timestamp":1785919817000},"page":"5442-5457","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Consumer Perspectives on the Barriers to Timely Palliative Care Access: A Mixed Methods Study"],"prefix":"10.1111","volume":"35","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4009-9792","authenticated-orcid":false,"given":"Alannah L.","family":"Cooper","sequence":"first","affiliation":[{"name":"School of Nursing, College of Health and Education Murdoch University  Murdoch Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1851-9914","authenticated-orcid":false,"given":"Dipna","family":"Martin\u2010Robins","sequence":"additional","affiliation":[{"name":"St John of God Subiaco Hospital  Subiaco Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-3512-7185","authenticated-orcid":false,"given":"Rosemary","family":"Dillon","sequence":"additional","affiliation":[{"name":"Palliative Care Australia  Deakin Australian Capital Territory Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-2073-3447","authenticated-orcid":false,"given":"John","family":"Clements","sequence":"additional","affiliation":[{"name":"Palliative Care Australia  Deakin Australian Capital Territory Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1520-4463","authenticated-orcid":false,"given":"Huaqiong","family":"Zhou","sequence":"additional","affiliation":[{"name":"School of Nursing Curtin University  Bentley Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8502-4252","authenticated-orcid":false,"given":"Janie A.","family":"Brown","sequence":"additional","affiliation":[{"name":"School of Nursing Curtin University  Bentley Western Australia Australia"},{"name":"St John of God Midland Public and Private Hospital  Midland Western Australia Australia"},{"name":"The Western Australian Group for Evidence Informed Healthcare Practice Curtin University, Perth  Western Australia Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,8,5]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"Australian Institute of Health and Welfare.2024a.\u201cPalliative Care and Health Service Use for People With Life\u2010Limiting Conditions.\u201dhttps:\/\/www.aihw.gov.au\/reports\/palliative\u2010care\u2010services\/health\u2010service\u2010use\u2010people\u2010life\u2010limiting\u2010conditions\/contents\/chapter\u20103\u2010receipt\u2010of\u2010specialist\u2010palliative\u2010care\/chapter\u20103\u2010receipt\u2010of\u2010specialist\u2010palliative\u2010care."},{"key":"e_1_2_11_3_1","unstructured":"Australian Institute of Health and Welfare.2024b.\u201cRural and Remote Health.\u201dhttps:\/\/www.aihw.gov.au\/reports\/rural\u2010remote\u2010australians\/rural\u2010and\u2010remote\u2010health."},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1037\/qup0000196"},{"key":"e_1_2_11_6_1","unstructured":"Buchan J. andH.Catton.2023.\u201cRecover to Rebuild: Investing in the Nursing Workforce for Health System Effectiveness.\u201dInternational Council of Nurses. 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