{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T02:15:58Z","timestamp":1788315358862,"version":"build-2803163510"},"reference-count":26,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2026,6,12]],"date-time":"2026-06-12T00:00:00Z","timestamp":1781222400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,6,12]],"date-time":"2026-06-12T00:00:00Z","timestamp":1781222400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Oral Pathology Medicine"],"published-print":{"date-parts":[[2026,9]]},"abstract":"ABSTRACT<\/jats:title>\n \n Background<\/jats:title>\n The Oral Epithelial Dysplasia Informational Needs Questionnaire (ODIN\u2010Q) was developed to assess the informational needs of patients with oral epithelial dysplasia (OED), a precancerous disorder associated with an increased risk of malignant transformation. This study aimed to evaluate the responsiveness of the ODIN\u2010Q following an educational intervention using a written patient information leaflet about OED.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n \n A prospective pre\u2010post observational study was conducted at the Oral Medicine Unit at University College London Hospitals, between March 2023 and March 2025. Fifty patients with histologically confirmed OED completed the previously validated ODIN\u2010Q before and after reading the leaflet. Differences between pre\u2010 and post\u2010reading ODIN\u2010Q scores were analysed using descriptive statistics and Cohen's\n d<\/jats:italic>\n to determine effect sizes and responsiveness.\n <\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n \n Fifty participants (29 females, 21 males; mean age\u2009=\u200965\u2009years) were included in the analysis. Overall ODIN\u2010Q scores increased from 2.44 to 2.71, with a small overall effect size (\n d<\/jats:italic>\n \u2009=\u20090.30; 95% CI: 0.01\u20130.59). The highest responsiveness was observed in the medical system and access to information domain (+0.42; +19%;\n d<\/jats:italic>\n \u2009=\u20090.49; 95% CI: 0.19\u20130.79), followed by psychosocial aspects (+0.29; +12%;\n d<\/jats:italic>\n \u2009=\u20090.38; 95% CI: 0.09\u20130.67) and physical aspects (+0.28; +11%;\n d<\/jats:italic>\n \u2009=\u20090.36; 95% CI: 0.07\u20130.65). Other domains showed negligible to small responsiveness (investigative tests:\n d<\/jats:italic>\n \u2009=\u20090.11; 95% CI: \u22120.18\u20130.40).\n <\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n The ODIN\u2010Q demonstrates preliminary evidence of responsiveness to changes in patients' informational needs following educational interventions, supporting its potential use as a multidomain measure for evaluating and guiding patient\u2010centred education in OED.<\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/jop.70160","type":"journal-article","created":{"date-parts":[[2026,6,13]],"date-time":"2026-06-13T02:08:37Z","timestamp":1781316517000},"page":"946-952","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Oral Epithelial Dysplasia Information Needs Questionnaire (\n ODIN\u2010Q<\/scp>\n ): Responsiveness and Insights Into Patient Education"],"prefix":"10.1111","volume":"55","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4503-9323","authenticated-orcid":false,"given":"Waleed","family":"Alamoudi","sequence":"first","affiliation":[{"name":"Faculty of Dentistry King Abdulaziz University Jeddah Saudi Arabia"},{"name":"UCL Eastman Dental Institute, University College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1649-1954","authenticated-orcid":false,"given":"Abdullah","family":"Alsoghier","sequence":"additional","affiliation":[{"name":"College of Dentistry King Saud University Riyadh Saudi Arabia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richeal Ni","family":"Riordain","sequence":"additional","affiliation":[{"name":"Cork University Dental School and Hospital, University College Cork Cork Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9006-9412","authenticated-orcid":false,"given":"Stefano","family":"Fedele","sequence":"additional","affiliation":[{"name":"UCL Eastman Dental Institute, University College London London UK"},{"name":"Oral Theme of the UCL\/UCLH NIHR Biomedical Research Centre London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3328-2759","authenticated-orcid":false,"given":"Stephen","family":"Porter","sequence":"additional","affiliation":[{"name":"UCL Eastman Dental Institute, University College London London UK"},{"name":"Oral Theme of the UCL\/UCLH NIHR Biomedical Research Centre London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,6,12]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12105-007-0014-5"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.oraloncology.2015.06.015"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/jop.13173"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2010.02.002"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1369-7625.2010.00598.x"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/1460458214534090"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/odi.13726"},{"key":"e_1_2_12_9_1","first-page":"117","volume-title":"Stress, Appraisal, and Coping","author":"Lazarus R. S.","year":"1984"},{"key":"e_1_2_12_10_1","first-page":"1","volume-title":"COSMIN Study Design Checklist for Patient\u2010Reported Outcome Measurement Instruments","author":"Mokkink L. B.","year":"2019"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/odi.15375"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/jop.13642"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2015.06.022"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.oraloncology.2008.09.004"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0210242"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1186\/s41687-024-00703-1"},{"key":"e_1_2_12_17_1","first-page":"343","article-title":"Attitudes and Knowledge About Preventive Dental Care in Chilean Refugees in Sweden","volume":"10","author":"Zimmerman M.","year":"1993","journal-title":"Community Dental Health"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-263X.2001.00281.x"},{"key":"e_1_2_12_19_1","first-page":"241","article-title":"Development and Testing of an Audio\u2010Visual Aid for Improving Infant Oral Health Through Primary Caregiver Education","volume":"71","author":"Alsada L. H.","year":"2005","journal-title":"Journal of the Canadian Dental Association"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.4103\/2231-0762.127810"},{"key":"e_1_2_12_21_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41405-023-00166-4"},{"key":"e_1_2_12_22_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12903-023-03734-0"},{"key":"e_1_2_12_23_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41432-024-01101-8"},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1177\/135910539800300202"},{"key":"e_1_2_12_25_1","doi-asserted-by":"publisher","DOI":"10.1177\/109019817400200405"},{"key":"e_1_2_12_26_1","doi-asserted-by":"publisher","DOI":"10.1186\/1748-5908-6-42"},{"key":"e_1_2_12_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.oraloncology.2008.05.023"}],"container-title":["Journal of Oral Pathology & Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jop.70160","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jop.70160","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jop.70160","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T01:58:16Z","timestamp":1788314296000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jop.70160"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,6,12]]},"references-count":26,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1111\/jop.70160"],"URL":"https:\/\/doi.org\/10.1111\/jop.70160","archive":["Portico"],"relation":{},"ISSN":["0904-2512","1600-0714"],"issn-type":[{"value":"0904-2512","type":"print"},{"value":"1600-0714","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,6,12]]},"assertion":[{"value":"2025-11-19","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-06-06","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-06-12","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}