{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T01:14:14Z","timestamp":1787015654524,"version":"build-2736575974"},"reference-count":32,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2020,3,18]],"date-time":"2020-03-18T00:00:00Z","timestamp":1584489600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Royal London Hospital Kidney Patients Association"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Renal Care"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:title>SUMMARY<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>An innovative Community Kidney Service has been running since 2016 in four health regions in East London, United Kingdom. This paper focuses on the patient education (self\u2010management) programme within the service.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To understand the experiences of people with stage 1\u20133b chronic kidney disease invited to individual or group education sessions. To assess the usefulness of the programme's educational resources to primary care nurses.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A mixed\u2010method project. A steering group involving patients shaped both survey and interview questions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Paper surveys (n\u2009=\u2009266) were sent to patients 7\u201319 months after they had attended. Semi\u2010structured interviews were undertaken with patients who returned the survey and indicated they were willing to be interviewed (n\u2009=\u20099). Survey links were sent electronically to primary care nurses.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Fifty\u2010four surveys were returned from patients. The education session increased self\u2010reported knowledge about kidney disease and two\u2010thirds of patients reported making lifestyle changes. Analysis of interview data identified recognition of kidney disease, motivation to change and reliance on \u201cexperts\u201d as key themes. Surveys were returned from 21 nurses. Most were aware of the community kidney service but only one\u2010third had used the education resources with their patients.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Secondary care nursing involvement in primary care\u2010based education for people with kidney disease is rare in the United Kingdom and internationally. This educational intervention, developed with patients, supports people to make changes that have the potential to reduce progression of kidney disease and our findings have significance for other teams working in chronic kidney disease management.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jorc.12325","type":"journal-article","created":{"date-parts":[[2020,3,18]],"date-time":"2020-03-18T16:50:17Z","timestamp":1584550217000},"page":"197-205","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Innovative education for people with chronic kidney disease: an evaluation study"],"prefix":"10.1111","volume":"46","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4808-072X","authenticated-orcid":false,"given":"Helen","family":"Rainey","sequence":"first","affiliation":[{"name":"Renal Unit Barts Health NHS Trust London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shaila","family":"Hussain","sequence":"additional","affiliation":[{"name":"School of Health and Social Care London South Bank University London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicola","family":"Thomas","sequence":"additional","affiliation":[{"name":"School of Health and Social Care London South Bank University London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,3,18]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1093\/fampra\/cmw049"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/jorc.12058"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_9_5_1","unstructured":"CaskeyF&DreyerG.(2019). 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