{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T23:51:45Z","timestamp":1788479505593,"version":"build-2803163510"},"reference-count":44,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2025,1,28]],"date-time":"2025-01-28T00:00:00Z","timestamp":1738022400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Renal Care"],"published-print":{"date-parts":[[2025,3]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Patients with chronic kidney disease and their families request early and continuous advance care planning. Based on user involvement, an advance care planning intervention was developed to support patients, family members and healthcare professionals (HCPs) in advance care planning conversations in a nephrology outpatient setting.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>To explore the experiences and perceptions of an advance care planning intervention among patients with chronic kidney disease, family members and healthcare professionals.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>An exploratory qualitative study with a phenomenological\u2010hermeneutic approach.<\/jats:p><\/jats:sec><jats:sec><jats:title>Participants<\/jats:title><jats:p>Six patients with chronic kidney disease, four family members and four healthcare professionals.<\/jats:p><\/jats:sec><jats:sec><jats:title>Approach<\/jats:title><jats:p>Semistructured interviews with patients and family members and a focus group interview with healthcare professionals were conducted. Data were analysed using Ricoeur's interpretation theory.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>Patients and their families were impacted in various ways when the patient received the diagnose of chronic kidney disease. The need for an advance care planning intervention was based on a range of individual needs. The intervention supported patients, their family members, and healthcare professionals through open dialogues and reflections about thoughts and concerns. Healthcare professionals' reflected that it might be too early to deliver an increased amount of care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>When the disease challenged family and everyday life, the advance care planning intervention was useable and facilitated an open dialogue and reflections. The advance care planning conversations developed awareness among the patients and family members about their values, preferences, and needs, and supported them in sharing them. There is a need for training in initiating and conducting advance care planning conversations among healthcare professionals.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jorc.70000","type":"journal-article","created":{"date-parts":[[2025,1,28]],"date-time":"2025-01-28T05:25:26Z","timestamp":1738041926000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Advance care planning intervention in chronic kidney care: A qualitative evaluation"],"prefix":"10.1111","volume":"51","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3575-7436","authenticated-orcid":false,"given":"Christina Egmose","family":"Frandsen","sequence":"first","affiliation":[{"name":"Department of Nephrology Odense University Hospital Odense Denmark"},{"name":"Department of Clinical Research University of Southern Denmark Odense Denmark"},{"name":"Department of Clinical Research, Family Focused Healthcare Research Center (FaCe) University of Southern Denmark Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hans","family":"Dieperink","sequence":"additional","affiliation":[{"name":"Department of Nephrology Odense University Hospital Odense Denmark"},{"name":"Department of Clinical Research University of Southern Denmark Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bettina","family":"Trettin","sequence":"additional","affiliation":[{"name":"Department of Clinical Research University of Southern Denmark Odense Denmark"},{"name":"Department of Dermatology and Allergy Centre Odense University Hospital Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hanne","family":"Agerskov","sequence":"additional","affiliation":[{"name":"Department of Nephrology Odense University Hospital Odense Denmark"},{"name":"Department of Clinical Research University of Southern Denmark Odense Denmark"},{"name":"Department of Clinical Research, Family Focused Healthcare Research Center (FaCe) University of Southern Denmark Odense Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,1,28]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2015.11.024"},{"issue":"5","key":"e_1_2_10_3_1","first-page":"411","article-title":"Make your wishes about you (MY WAY): using motivational interviewing to foster advance care planning for patients with chronic kidney disease","volume":"45","author":"Anderson E.","year":"2018","journal-title":"Nephrology Nursing Journal"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/1074840715576794"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1038\/ki.2014.86"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781526441836"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1093\/ckj\/sfx057"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1093\/ckj\/sfw014"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2006.09.016"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X20985836"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-1800.2009.00433.x"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamda.2018.09.014"},{"key":"e_1_2_10_13_1","unstructured":"Frandsen C.E.(2023)Advance care planning for patients with chronic kidney disease and their families[Ph.D. thesis] Det Sundhedsvidenskabelige Fakultet SDU Syddansk Universitet. Available from:https:\/\/doi.org\/10.21996\/n0f9-vh37."},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/scs.13169"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.16875"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1111\/jorc.12481"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/jorc.12399"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/nop2.487"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-019-0437-2"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1532-5415.2010.02760.x"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.ep11347023"},{"key":"e_1_2_10_22_1","volume-title":"Interviews: learning the craft of qualitative research interviewing","author":"Kvale S.","year":"2014"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/nep.12743"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12529-023-10178-x"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2019-029954"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12882-020-02129-5"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732303261692"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.ackd.2011.10.003"},{"issue":"9","key":"e_1_2_10_29_1","article-title":"Strengths and limitations of qualitative and quantitative research methods","volume":"3","author":"Queir\u00f3s A.","year":"2017","journal-title":"European Journal of Education Studies"},{"key":"e_1_2_10_30_1","volume-title":"Interpretation theory: discourse and the surplus of meaning","author":"Ricoeur P.","year":"1976"},{"key":"e_1_2_10_31_1","first-page":"20","volume-title":"On Paul Ricoeur","author":"Ricoeur P.","year":"1991"},{"key":"e_1_2_10_32_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.semnephrol.2016.12.007"},{"key":"e_1_2_10_33_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2017.07.021"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2016.11.023"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.n2061"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cct.2017.10.005"},{"key":"e_1_2_10_37_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.ajkd.2015.05.018"},{"key":"e_1_2_10_38_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2016.12.331"},{"key":"e_1_2_10_39_1","doi-asserted-by":"publisher","DOI":"10.1038\/ki.2015.228"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.2196\/28882"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.17061\/phrp3222211"},{"key":"e_1_2_10_43_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2013.281053"},{"key":"e_1_2_10_44_1","volume-title":"Nurses & families: a guide to family assessment and intervention","author":"Wright L.","year":"2019"},{"key":"e_1_2_10_45_1","volume-title":"Beliefs and illness: a model for healing","author":"Wright L.M.","year":"2009"}],"container-title":["Journal of Renal Care"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jorc.70000","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T07:17:26Z","timestamp":1760167046000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jorc.70000"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,1,28]]},"references-count":44,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2025,3]]}},"alternative-id":["10.1111\/jorc.70000"],"URL":"https:\/\/doi.org\/10.1111\/jorc.70000","archive":["Portico"],"relation":{},"ISSN":["1755-6678","1755-6686"],"issn-type":[{"value":"1755-6678","type":"print"},{"value":"1755-6686","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,1,28]]},"assertion":[{"value":"2024-05-31","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-12-05","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2025-01-28","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70000"}}