{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,16]],"date-time":"2026-09-16T22:21:38Z","timestamp":1789597298294,"version":"build-2803163510"},"reference-count":48,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,10,4]],"date-time":"2025-10-04T00:00:00Z","timestamp":1759536000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,10,4]],"date-time":"2025-10-04T00:00:00Z","timestamp":1759536000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Renal Care"],"published-print":{"date-parts":[[2025,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The burdensome life of haemodialysis impacts both patients and their families. It often leads to a stressful life marked by experiences of loss and grief. Nurses report a lack of knowledge and skills in providing grief support, as well as insufficient time for existential conversations with patients and families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To explore the experiences of loss, grief and support needs of both adults on haemodialysis with no option of a kidney transplant and their family members.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A qualitative explorative study, using a phenomenological\u2010hermeneutical approach and semi\u2010structured interviews. Ricoeur's interpretation theory was used to analyze data involving three steps: Na\u00efve reading, structural analysis and critical interpretation and discussion.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants<\/jats:title>\n                    <jats:p>Nine adults on haemodialysis and eight family members.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>Haemodialysis treatment alters everyday life for families resulting in experiences of anticipatory grief. Both adults on haemodialysis and their family members experienced challenges with identities and changes in social relationships over the course of the illness with psychological consequences for the family. A holistic family\u2010focused grief support was identified as an important need for the participants and ought to include time and room for private existential conversations with nurses.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This study offers unique insights into the impact of loss and anticipatory grief in everyday life for those on haemodialysis and their families. Greater existential support and holistic family\u2010focused grief support is proposed to guide family nursing in kidney care. Healthcare policies and health education in grief ought to reflect the care needs of both patients and family members.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Baggrund<\/jats:title>\n                    <jats:p>En tilv\u00e6relse med h\u00e6modialyse p\u00e5virker b\u00e5de patienter og deres familier og f\u00f8rer ofte til en stressende hverdag med oplevelser af tab og sorg. Utilstr\u00e6kkelig psykosocial st\u00f8tte og manglende familieinvolvering \u00f8ger yderligere risikoen for patientindl\u00e6ggelse. Sygeplejersker oplever ofte manglende viden og f\u00e6rdigheder til at yde sorgst\u00f8tte, samt utilstr\u00e6kkelig tid til eksistentielle samtaler med patienter og familier.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Form\u00e5l<\/jats:title>\n                    <jats:p>At unders\u00f8ge oplevelser af tab, sorg og behov for st\u00f8tte hos voksne i h\u00e6modialyse uden mulighed for nyretransplantation og deres familier.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>En kvalitativ, eksplorativ unders\u00f8gelse med en f\u00e6nomenologisk\u2010hermeneutisk tilgang og semistrukturerede interviews. Ricoeurs fortolkningsteori med tre trin blev anvendt til analyse af data: naiv l\u00e6sning, strukturel analyse og kritisk fortolkning og diskussion.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Deltagere<\/jats:title>\n                    <jats:p>9 voksne i h\u00e6modialyse og 8 p\u00e5r\u00f8rende.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Resultater<\/jats:title>\n                    <jats:p>H\u00e6modialysebehandling forandrer familiernes dagligdag og resulterer i oplevelser af ventesorg. B\u00e5de patienter og familier oplever udfordringer med identitet og \u00e6ndringer i sociale relationer gennem sygdomsforl\u00f8bet. Dette medf\u00f8rer psykologiske konsekvenser i familien. Der er et stort behov for en helhedsorienteret familiecentreret sorgst\u00f8tte, der inkluderer tid og rum til private eksistentielle samtaler med sygeplejersker.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Konklusion<\/jats:title>\n                    <jats:p>Studiet giver unik indsigt i tab og ventesorgs betydning i hverdagen for voksne i h\u00e6modialyse og deres familier. Det anbefales at styrke en familiefokuseret sygepleje til patienter i h\u00e6modialyse og deres familier, samt fremme den eksistentielle st\u00f8tte og helhedsorienteret familiefokuseret sorgst\u00f8tte. Sundhedspolitik og uddannelse i sorgst\u00f8tte b\u00f8r afspejle b\u00e5de patienters og familiens behov.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jorc.70030","type":"journal-article","created":{"date-parts":[[2025,10,4]],"date-time":"2025-10-04T09:46:10Z","timestamp":1759571170000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Experiences of Loss, Grief and Support Needs of Adults on Haemodialysis and Families: A Qualitative Explorative Study"],"prefix":"10.1111","volume":"51","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1126-7427","authenticated-orcid":false,"given":"Jette","family":"Marcussen","sequence":"first","affiliation":[{"name":"Research Unit OPEN, Department of Clinical Research University of Southern  Denmark"},{"name":"Centre for Nursing, Health Illness and Culture Absalon University College  Denmark"},{"name":"Faculty of Health Sciences Health Science Research Center, UC 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