{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,25]],"date-time":"2026-01-25T23:52:44Z","timestamp":1769385164833,"version":"3.49.0"},"reference-count":15,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2013,4,1]],"date-time":"2013-04-01T00:00:00Z","timestamp":1364774400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"School of Medicine and Dentistry, James Cook University"},{"name":"Far North Queensland Hospital Foundation"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"published-print":{"date-parts":[[2013,4]]},"abstract":"Aim<\/jats:title>The aim of this study was to assess the impact of a pilot screening program for rheumatic heart disease (RHD<\/jats:styled-content>) on patient quality of life (QOL<\/jats:styled-content>) and health services.<\/jats:p><\/jats:sec>Methods<\/jats:title>A QOL<\/jats:styled-content> questionnaire (CHQ<\/jats:styled-content>\u2010PF<\/jats:styled-content>28) was used to assess the impact of RHD<\/jats:styled-content> screening on children with a potentially abnormal screening echocardiogram and matched normal controls. The health service response to a potentially abnormal screening echocardiogram and the impact of the screening program on health services was evaluated using medical record review, carer interviews and surveys of health\u2010care providers.<\/jats:p><\/jats:sec>Results<\/jats:title>QOL<\/jats:styled-content> was assessed in 68 children. Potentially abnormal screening echocardiograms were associated with poorer QOL<\/jats:styled-content> in the General Health Perception (P<\/jats:italic>\u2009<\u20090.05) and Parental Impact \u2013 Emotional (P<\/jats:italic>\u2009<\u20090.05) domains. Health services contacted 82% of children with potentially abnormal echocardiograms, and clinical review occurred in 56%. A potentially abnormal echocardiogram was associated with a change in management in 6% (2\/34) of children. When surveyed, 49% of health providers were aware of the RHD<\/jats:styled-content> screening program, 29% had seen children referred with screening abnormalities and 85% of these providers stated this had an impact on local health\u2010care delivery.<\/jats:p><\/jats:sec>Conclusions<\/jats:title>This pilot RHD<\/jats:styled-content> screening program was associated with poorer child and carer QOL<\/jats:styled-content> for those with potentially abnormal results, greater health provider workload and suboptimal clinical follow\u2010up. The adoption of screening for RHD<\/jats:styled-content> in high\u2010risk populations should be approached cautiously. Further research is required to facilitate and validate improved echocardiographic diagnostic criteria for RHD<\/jats:styled-content> and the systematic assessment of the benefits and adverse effects of such screening.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jpc.12154","type":"journal-article","created":{"date-parts":[[2013,4,1]],"date-time":"2013-04-01T09:08:45Z","timestamp":1364807325000},"page":"297-302","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":13,"title":["Patient and health\u2010care impact of a pilot rheumatic heart disease screening program"],"prefix":"10.1111","volume":"49","author":[{"given":"Emma Kathleen","family":"Wark","sequence":"first","affiliation":[{"name":"Cairns Clinical School Faculty of Medicine, Health and Molecular Sciences James Cook University Cairns Base Hospital Cairns Queensland Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yvonne Coral","family":"Hodder","sequence":"additional","affiliation":[{"name":"Cairns Clinical School Faculty of Medicine, Health and Molecular Sciences James Cook University Cairns Base Hospital Cairns Queensland Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cindy Estelle","family":"Woods","sequence":"additional","affiliation":[{"name":"Cairns Clinical School Faculty of Medicine, Health and Molecular Sciences James Cook University Cairns Base Hospital Cairns Queensland Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Graeme Paul","family":"Maguire","sequence":"additional","affiliation":[{"name":"Cairns Clinical School Faculty of Medicine, Health and Molecular Sciences James Cook University Cairns Base Hospital Cairns Queensland Australia"},{"name":"Baker IDI Alice Springs Northern Territory Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2013,4]]},"reference":[{"key":"e_1_2_8_2_1","unstructured":"National Heart Foundation and Cardiac Society.Diagnosis and management of acute rheumatic fever and rheumatic heart disease in Australia: an evidence\u2010based review. 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