{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,7]],"date-time":"2026-02-07T04:29:17Z","timestamp":1770438557729,"version":"3.49.0"},"reference-count":50,"publisher":"Wiley","issue":"12","license":[{"start":{"date-parts":[[2014,7,10]],"date-time":"2014-07-10T00:00:00Z","timestamp":1404950400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100008718","name":"Mason Foundation","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100008718","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Victorian Government's Operational Infrastructure Support Program"},{"name":"Victorian Paediatric CFS\/ME Clinical Research Team"},{"name":"Australian Paediatric Research Network"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"published-print":{"date-parts":[[2014,12]]},"abstract":"<jats:sec><jats:title>Aim<\/jats:title><jats:p>The diagnosis and management of paediatric chronic fatigue syndrome\/myalgic encepnalomyelitis (<jats:styled-content style=\"fixed-case\">CFS<\/jats:styled-content>\/<jats:styled-content style=\"fixed-case\">ME<\/jats:styled-content>) represent ongoing challenges for paediatricians. A better understanding of current approaches at a national level is important in informing where research and education could improve treatment outcomes. We aimed to examine current diagnosis and management practices for <jats:styled-content style=\"fixed-case\">CFS<\/jats:styled-content>\/<jats:styled-content style=\"fixed-case\">ME<\/jats:styled-content> by Australian paediatricians.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>An online survey was sent to members of the <jats:styled-content style=\"fixed-case\">A<\/jats:styled-content>ustralian <jats:styled-content style=\"fixed-case\">P<\/jats:styled-content>aediatric <jats:styled-content style=\"fixed-case\">R<\/jats:styled-content>esearch <jats:styled-content style=\"fixed-case\">N<\/jats:styled-content>etwork. The primary outcomes of interest included diagnostic criteria used, medical investigations and management practices in paediatric <jats:styled-content style=\"fixed-case\">CFS<\/jats:styled-content>\/<jats:styled-content style=\"fixed-case\">ME<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>One hundred seventy\u2010eight (41%) of 430 eligible paediatricians responded, with 70 of the 178 (39%) reporting that they diagnose and manage <jats:styled-content style=\"fixed-case\">CFS<\/jats:styled-content>\/<jats:styled-content style=\"fixed-case\">ME<\/jats:styled-content> as part of their practice. Medical investigations used for diagnosis were variable. Conditions that more than half of the paediatricians reported as commonly co\u2010occurring (i.e. present in &gt;50% of cases) included somatisation disorders, anxiety, depression and fibromyalgia. There was wide variation in behavioural and pharmacological management strategies but most paediatricians commonly engaged a school teacher, physiotherapist and\/or psychologist as part of their management.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The diagnostic and management practices of paediatricians for <jats:styled-content style=\"fixed-case\">CFS<\/jats:styled-content>\/<jats:styled-content style=\"fixed-case\">ME<\/jats:styled-content> within <jats:styled-content style=\"fixed-case\">A<\/jats:styled-content>ustralia vary widely. This likely reflects a paucity of paediatric\u2010specific guidelines, together with limited evidence to guide best practice and limited training in this area. There is a need for guidance and education for the diagnosis and management of paediatric <jats:styled-content style=\"fixed-case\">CFS<\/jats:styled-content>\/<jats:styled-content style=\"fixed-case\">ME<\/jats:styled-content> in <jats:styled-content style=\"fixed-case\">A<\/jats:styled-content>ustralia.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jpc.12677","type":"journal-article","created":{"date-parts":[[2014,7,10]],"date-time":"2014-07-10T09:35:50Z","timestamp":1404984950000},"page":"1000-1007","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["How is paediatric chronic fatigue syndrome\/myalgic encephalomyelitis diagnosed and managed by paediatricians? An <scp>A<\/scp>ustralian Paediatric Research Network Study"],"prefix":"10.1111","volume":"50","author":[{"given":"Sarah","family":"Knight","sequence":"first","affiliation":[{"name":"Clinical Sciences Murdoch Childrens Research Institute  Perth Western Australia Australia"},{"name":"Victorian Paediatric Rehabilitation Service The University of Melbourne  Perth Western Australia Australia"},{"name":"Department of Paediatrics The University of Melbourne  Perth Western Australia Australia"},{"name":"The Melbourne School of Psychological Sciences The University of Melbourne  Perth Western Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Adrienne","family":"Harvey","sequence":"additional","affiliation":[{"name":"Clinical Sciences Murdoch Childrens Research Institute  Perth Western Australia Australia"},{"name":"Victorian Paediatric Rehabilitation Service The University of Melbourne  Perth Western Australia Australia"},{"name":"Department of Paediatrics The University of Melbourne  Perth Western Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susan","family":"Towns","sequence":"additional","affiliation":[{"name":"Discipline Paediatrics &amp; Child Health The University of Sydney  Perth Western Australia Australia"},{"name":"Department of Adolescent Medicine The Children's Hospital at Westmead  Perth Western Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Donald","family":"Payne","sequence":"additional","affiliation":[{"name":"Department of Adolescent Medicine Princess Margaret Hospital for Children  Perth Western Australia Australia"},{"name":"School of Paediatrics and Child Health The University of Western Australia  Perth Western Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lionel","family":"Lubitz","sequence":"additional","affiliation":[{"name":"Department of General Paediatric Medicine The Royal Children's Hospital  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kathy","family":"Rowe","sequence":"additional","affiliation":[{"name":"Department of General Paediatric Medicine The Royal Children's Hospital  Melbourne Victoria Australia"},{"name":"Department of Adolescent Health The Royal Children's Hospital  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Colette","family":"Reveley","sequence":"additional","affiliation":[{"name":"Department of General Paediatric Medicine The Royal Children's Hospital  Melbourne Victoria Australia"},{"name":"Department of Adolescent Health The Royal Children's Hospital  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sabine","family":"Hennel","sequence":"additional","affiliation":[{"name":"Victorian Paediatric Rehabilitation Service The University of Melbourne  Perth Western Australia Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Harriet","family":"Hiscock","sequence":"additional","affiliation":[{"name":"Clinical Sciences Murdoch Childrens Research Institute  Perth Western Australia Australia"},{"name":"Department of Paediatrics The University of Melbourne  Perth Western Australia Australia"},{"name":"Centre for Community and Child Health The Royal Children's Hospital  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Adam","family":"Scheinberg","sequence":"additional","affiliation":[{"name":"Clinical Sciences Murdoch Childrens Research Institute  Perth Western Australia Australia"},{"name":"Victorian Paediatric Rehabilitation Service The University of Melbourne  Perth Western Australia Australia"},{"name":"Faculty of Medicine Monash University  Melbourne Victoria Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2014,7,10]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1300\/J092v13n02_01"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00431-013-2058-8"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(12)60072-5"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/1476-5918-7-6"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2008.143537"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.107.5.994"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2009-2644"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1517\/17530059.2013.776039"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2010-1147"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.327.7416.654"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2006-2231"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1054-139X(03)00372-0"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.5694\/j.1326-5377.1990.tb126191.x"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2011-000252"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-2587"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1300\/J092v13n02_04"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.5694\/j.1326-5377.1992.tb137401.x"},{"key":"e_1_2_10_19_1","first-page":"18","article-title":"Co\u2010ordinators PPC. PHLS primary care consultation \u2013 infectious disease and primary care research and service development priorities","volume":"4","author":"McNulty CA","year":"2001","journal-title":"Commun. Dis. Public Health"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2013.03.009"},{"key":"e_1_2_10_21_1","volume-title":"Evidence Based Guideline for the Management of CFS\/ME (Chronic Fatigue Syndrome\/Myalgic Encephalopathy) in Children and Young People","author":"Beverley D","year":"2004"},{"key":"e_1_2_10_22_1","doi-asserted-by":"crossref","first-page":"S23","DOI":"10.5694\/j.1326-5377.2002.tb04499.x","article-title":"Chronic Fatigue Syndrome: clinical practice guidelines 2002. Produced by a working group convened under the auspices of the Royal Australasian College of Physicians","volume":"176","author":"Toulkidis V","year":"2002","journal-title":"Med. J. Aust."},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.39302.509005.AE"},{"key":"e_1_2_10_24_1","volume-title":"Chronic Fatigue Syndrome\/Myalgic Encephalomyelitis (or Encephalopathy): Diagnosis and Management of Chronic Fatigue Syndrome\/Myalgic Encephalomyelitis (or Encephalopathy) in Adults and Children","author":"Turnbull N","year":"2007"},{"key":"e_1_2_10_25_1","doi-asserted-by":"publisher","DOI":"10.1300\/J092v11n01_02"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2012-303396"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00787-009-0029-4"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11920-013-0353-8"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.annepidem.2013.04.003"},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.7326\/0003-4819-121-12-199412150-00009"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2796.2011.02428.x"},{"key":"e_1_2_10_32_1","unstructured":"BeilbyJ TorpyD GillesDet\u2009al.CFS\/ME Guidelines: Management Guidelines for General Practitioners. Health Services South Australia 2004."},{"key":"e_1_2_10_33_1","doi-asserted-by":"publisher","DOI":"10.5694\/j.1326-5377.2011.tb03028.x"},{"key":"e_1_2_10_34_1","unstructured":"KhannaPRACP Workforce survey 2008\u201309 report. Sydney: The Royal Australasian College of Physicians 2009."},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-1754.2009.01598.x"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jbi.2008.08.010"},{"key":"e_1_2_10_37_1","unstructured":"IBM Corp.IBM SPSS Statistics for Windows. Version 21.0. Armonk NY: IBM Corp;2012."},{"key":"e_1_2_10_38_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1440-1754.1999.00340.x"},{"key":"e_1_2_10_39_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2296-11-89"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2296-11-16"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.biopsycho.2004.03.015"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.1080\/21641846.2013.862993"},{"key":"e_1_2_10_43_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.paed.2008.11.001"},{"key":"e_1_2_10_44_1","first-page":"185","article-title":"Case definitions and diagnostic criteria for Myalgic Encephalomyelitis and Chronic fatigue Syndrome: from clinical\u2010consensus to evidence\u2010based case definitions","volume":"34","author":"Morris G","year":"2013","journal-title":"Neuro Endocrinol. Lett."},{"key":"e_1_2_10_45_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2013-003973"},{"key":"e_1_2_10_46_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2796.2011.02428.x"},{"key":"e_1_2_10_47_1","doi-asserted-by":"publisher","DOI":"10.1093\/fampra\/cmi019"},{"key":"e_1_2_10_48_1","first-page":"43","article-title":"The management of children with chronic fatigue syndrome\u2010like illness in primary care: a cross\u2010sectional study","volume":"56","author":"Saidi G","year":"2006","journal-title":"Br. J. Gen. Pract."},{"key":"e_1_2_10_49_1","doi-asserted-by":"publisher","DOI":"10.1258\/jrsm.99.10.506"},{"key":"e_1_2_10_50_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2296-13-93"},{"key":"e_1_2_10_51_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.38078.503819.EE"}],"container-title":["Journal of Paediatrics and Child Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fjpc.12677","content-type":"unspecified","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fjpc.12677","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jpc.12677","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,24]],"date-time":"2023-09-24T17:03:42Z","timestamp":1695575022000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jpc.12677"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,7,10]]},"references-count":50,"journal-issue":{"issue":"12","published-print":{"date-parts":[[2014,12]]}},"alternative-id":["10.1111\/jpc.12677"],"URL":"https:\/\/doi.org\/10.1111\/jpc.12677","archive":["Portico"],"relation":{},"ISSN":["1034-4810","1440-1754"],"issn-type":[{"value":"1034-4810","type":"print"},{"value":"1440-1754","type":"electronic"}],"subject":[],"published":{"date-parts":[[2014,7,10]]},"assertion":[{"value":"2014-05-27","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2014-07-10","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}