{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,27]],"date-time":"2026-01-27T08:18:53Z","timestamp":1769501933631,"version":"3.49.0"},"reference-count":3,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2020,6,22]],"date-time":"2020-06-22T00:00:00Z","timestamp":1592784000000},"content-version":"vor","delay-in-days":21,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"published-print":{"date-parts":[[2020,6]]},"DOI":"10.1111\/jpc.14959","type":"journal-article","created":{"date-parts":[[2020,6,22]],"date-time":"2020-06-22T16:19:15Z","timestamp":1592842755000},"page":"995-996","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["ACKNOWLEDGING LIMITS: STATISTICS AND THE CHILD'S QUALITY OF LIFE IN SPINAL MUSCULAR ATROPHY"],"prefix":"10.1111","volume":"56","author":[{"given":"Franca","family":"Benini","sequence":"first","affiliation":[{"name":"Paediatric Palliative Care, Pain Service,Department of Women's and Children's Health University of Padua  Padua Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Eleonora","family":"Salamon","sequence":"additional","affiliation":[{"name":"Paediatric Palliative Care, Pain Service,Department of Women's and Children's Health University of Padua  Padua Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Antuan","family":"Divisic","sequence":"additional","affiliation":[{"name":"Paediatric Palliative Care, Pain Service,Department of Women's and Children's Health University of Padua  Padua Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Irene","family":"Maghini","sequence":"additional","affiliation":[{"name":"Paediatric Palliative Care, Pain Service,Department of Women's and Children's Health University of Padua  Padua Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0584-8871","authenticated-orcid":false,"given":"Caterina","family":"Agosto","sequence":"additional","affiliation":[{"name":"Paediatric Palliative Care, Pain Service,Department of Women's and Children's Health University of Padua  Padua Italy"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2020,6,22]]},"reference":[{"key":"e_1_2_1_3_2_1","doi-asserted-by":"publisher","DOI":"10.1212\/WNL.0000000000006502"},{"key":"e_1_2_1_3_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/jpc.14226"},{"key":"e_1_2_1_3_4_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2017-1905"}],"container-title":["Journal of Paediatrics and Child Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jpc.14959","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jpc.14959","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jpc.14959","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,2]],"date-time":"2023-09-02T00:42:44Z","timestamp":1693615364000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jpc.14959"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,6]]},"references-count":3,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2020,6]]}},"alternative-id":["10.1111\/jpc.14959"],"URL":"https:\/\/doi.org\/10.1111\/jpc.14959","archive":["Portico"],"relation":{},"ISSN":["1034-4810","1440-1754"],"issn-type":[{"value":"1034-4810","type":"print"},{"value":"1440-1754","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,6]]},"assertion":[{"value":"2020-04-26","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-05-10","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2020-06-22","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}