{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,19]],"date-time":"2026-06-19T04:15:59Z","timestamp":1781842559620,"version":"3.54.5"},"reference-count":24,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2020,11,13]],"date-time":"2020-11-13T00:00:00Z","timestamp":1605225600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100001537","name":"University of Auckland","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001537","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"published-print":{"date-parts":[[2021,4]]},"abstract":"<jats:sec><jats:title>Aim<\/jats:title><jats:p>To determine whether the transfer of young people with cystic fibrosis (<jats:italic>CF<\/jats:italic>) or bronchiectasis from paediatric to adult services is associated with changes in service engagement and\/or health outcomes.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Young people aged \u226515\u2009years of age with <jats:italic>CF<\/jats:italic> or bronchiectasis who transferred from the Auckland\u2010based paediatric service (Starship Children's Hospital) to one of three Auckland\u2010based District Health Boards between 2005 and 2012 were identified and included if they had 3\u2009years care both pre\u2010transfer and post\u2010transfer care. Transfer preparation, service engagement (clinics scheduled, clinics attended) and health outcomes (lung function, hospitalisations) were collected <jats:italic>per annum<\/jats:italic>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Fifty\u2010seven young people transferred in this period with 46 meeting inclusion criteria (<jats:italic>CF n<\/jats:italic> =\u200920, bronchiectasis <jats:italic>n<\/jats:italic> =\u200926). The <jats:italic>CF<\/jats:italic> group had better transfer documentation, were transferred at an older age (11\u2009months older <jats:italic>P<\/jats:italic> &lt;\u20090.0001 95%CI: 6.7 months, 14.7 months), were 20 times more likely to attend clinics (<jats:italic>P<\/jats:italic> &lt;\u20090.0001, 95%CI: 7.8, 66.1) and had 3\u20134 more clinics scheduled pre\u2010transfer (<jats:italic>P<\/jats:italic> &lt;\u20090.0001, 95%CI: 3.4, 4.9) and post\u2010transfer (<jats:italic>P<\/jats:italic> &lt;\u20090.0001, 95%CI: 2.4, 3.8) despite having less severe respiratory disease as measured by FEV1 for each year (<jats:italic>P<\/jats:italic> &lt;\u20090.01, 95%CI: 0.34, 1.22).<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The transfer of young people with <jats:italic>CF<\/jats:italic> to adult services did not affect health engagement or outcomes, in contrast to those with bronchiectasis. Use of a formalised transfer process, more clinic appointments offered and greater resources for <jats:italic>CF<\/jats:italic> may be responsible for this difference. Comprehensive transition with purposeful, planned movement and developmentally appropriate care is a key goal.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jpc.15264","type":"journal-article","created":{"date-parts":[[2020,11,13]],"date-time":"2020-11-13T13:43:02Z","timestamp":1605274982000},"page":"548-553","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":17,"title":["Transitioning from paediatric to adult services with cystic fibrosis or bronchiectasis: What is the impact on engagement and health outcomes?"],"prefix":"10.1111","volume":"57","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5100-0524","authenticated-orcid":false,"given":"Rochelle","family":"Moss","sequence":"first","affiliation":[{"name":"Child Health Auckland District Health Board  Auckland New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bridget","family":"Farrant","sequence":"additional","affiliation":[{"name":"Kidz First Centre for Youth Health  Auckland New Zealand"},{"name":"Department of Paediatrics Child and Youth Health, Faculty of Medical and Health Sciences University of Auckland  Auckland New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Catherine A","family":"Byrnes","sequence":"additional","affiliation":[{"name":"Department of Paediatrics Child and Youth Health, Faculty of Medical and Health Sciences University of Auckland  Auckland New Zealand"},{"name":"Paediatric Respiratory Service Starship Children Health  Auckland New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,11,13]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1097\/MOP.0b013e328305e128"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2016.07.006"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/1054-139X(93)90143-D"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-0969"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2010.202473"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.5694\/mja14.00287"},{"key":"e_1_2_8_8_1","volume-title":"NZDep2013 Index of Deprivation","author":"Atkinson J","year":"2014"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.201908-1590ST"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00080312"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1136\/thx.2005.047332"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.21331"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1136\/thx.2008.100958"},{"key":"e_1_2_8_14_1","doi-asserted-by":"publisher","DOI":"10.1378\/chest.09-2932"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/dme.12067"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2012-1450"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/petr.12289"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(79)90825-0"},{"key":"e_1_2_8_19_1","volume-title":"He Matapihi Ki te Kounga o ng\u0101 Manaakitanga \u0101\u2010Hauora o Aotearoa 2019: A Window on the Quality of Aotearoa New Zealand's Health Care 2019","author":"Health Quality and Safety Commission New Zealand","year":"2019"},{"key":"e_1_2_8_20_1","volume-title":"Ethnicity and Crowding a Detailed Examination of Crowding among Ethnic Groups in New Zealand 1986\u20132006","author":"New Zealand Statistics NZ","year":"2012"},{"key":"e_1_2_8_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/imj.13739"},{"key":"e_1_2_8_22_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.chest.2015.08.021"},{"key":"e_1_2_8_23_1","doi-asserted-by":"publisher","DOI":"10.1136\/thx.2010.136119"},{"key":"e_1_2_8_24_1","first-page":"1","article-title":"Interventions for bronchiectasis: An overview of Cochrane systematic reviews","volume":"7","author":"Welsh EJ","year":"2015","journal-title":"Cochrane Database Syst. 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