{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T14:02:23Z","timestamp":1784815343192,"version":"3.55.0"},"reference-count":24,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2023,1,21]],"date-time":"2023-01-21T00:00:00Z","timestamp":1674259200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"published-print":{"date-parts":[[2023,3]]},"abstract":"<jats:sec><jats:title>Aim<\/jats:title><jats:p>Despite a recent increase in the use of ventilators in the home setting for children with chronic respiratory failure, there is currently no unified approach for clinical decision\u2010making for children requiring long\u2010term mechanical ventilation. The purpose of this study is to understand the clinician's perspective on decision\u2010making around home ventilation for children, and how home\u2010based care contributes to successful outcomes in this population.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We recruited physicians and home ventilation nurses with at least 2\u2009years' experience working in an Australian paediatric tertiary home ventilation service using professional networks and snowball sampling. Semi\u2010structured interviews were conducted by two researchers between February 2019 and June 2020. Interviews were audio\u2010recorded, transcribed, and analysed using inductive content analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Twenty\u2010five individuals participated (17 physicians and 8 home ventilation nurses). Participants viewed themselves as impartial medical advocates in the decision\u2010making process, believing the decision to initiate or cease ventilation belonged to the child's family. While participants held the child's quality of life as the cornerstone of decision\u2010making, quality of life was subjective and family specific.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>These findings provide insight into how clinicians working with children with chronic respiratory insufficiency approach the decision to introduce home\u2010based ventilation. By understanding their role, strategies can be developed to assist them, leading to better outcomes for patients and families. Further research is needed to compare the perspectives of clinicians with the experience of ventilator\u2010assisted children and families in Australia.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jpc.16333","type":"journal-article","created":{"date-parts":[[2023,1,21]],"date-time":"2023-01-21T14:18:36Z","timestamp":1674310716000},"page":"499-504","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Going home: Clinician perspectives on decision\u2010making in paediatric home mechanical ventilation"],"prefix":"10.1111","volume":"59","author":[{"given":"Juliette","family":"Jeffreys","sequence":"first","affiliation":[{"name":"Faculty of Medicine, Dentistry and Health Sciences University of Melbourne  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4135-5214","authenticated-orcid":false,"given":"Mayukh","family":"Rahman","sequence":"additional","affiliation":[{"name":"Faculty of Medicine, Dentistry and Health Sciences University of Melbourne  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Danya","family":"Vears","sequence":"additional","affiliation":[{"name":"Biomedical Ethics Research Group Murdoch Children's Research Institute  Melbourne Victoria Australia"},{"name":"Department of Paediatrics University of Melbourne  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1008-0967","authenticated-orcid":false,"given":"John","family":"Massie","sequence":"additional","affiliation":[{"name":"Biomedical Ethics Research Group Murdoch Children's Research Institute  Melbourne Victoria Australia"},{"name":"Department of Paediatrics University of Melbourne  Melbourne Victoria Australia"},{"name":"Department of Respiratory Medicine Royal Children's Hospital Melbourne  Melbourne Victoria Australia"},{"name":"Children's Bioethics Centre Royal Children's Hospital Melbourne  Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2023,1,21]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2010.192864"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/ppul.22868"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-1754.2005.00753.x"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1440-1754.2009.01618.x"},{"key":"e_1_2_7_6_1","first-page":"7","article-title":"Pediatric home mechanical ventilation: A Canadian Thoracic Society clinical practice guideline executive summary","volume":"1","author":"Amin R","year":"2017","journal-title":"Can. 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