{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T18:10:49Z","timestamp":1790187049001,"version":"4.1.0"},"reference-count":22,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2024,11,4]],"date-time":"2024-11-04T00:00:00Z","timestamp":1730678400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"published-print":{"date-parts":[[2025,1]]},"abstract":"<jats:sec><jats:title>Aim<\/jats:title><jats:p>Few reports have shown Quality\u2010of\u2010Life long\u2010term outcomes in children with congenital diaphragmatic hernia (CDH) who received extracorporeal membrane oxygenation (ECMO) support. We reviewed the short\u2010 and long\u2010term outcomes in CDH patients that were supported with ECMO during their neonatal treatment.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Telephone interviews of parents of CDH children were performed. The Functional Status Scale (FSS) and the Paediatric Quality of Life Inventory (PedQL, Version 4.0) were completed with the parents. All children with a CDH and supported with ECMO from 2010 to 2023 were included in the study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Twenty children were identified, with two having two ECMO runs. Birth weight was 3.2\u2009kg (median). ECMO support lasted for (median) 13.6\u2009days (range 3.8 to 39). Twelve patients were alive at the time of the survey. The age (median) at time of the interview was 6.3\u2009years (range 1 to 12). The FSS score showed no impairment (FSS score 6) in any domain in eight patients. Two patients had a score of 7, and two patients had a score of 8 and 9, respectively. The PedQL showed a median score 84.5, with a physical health summary score of 92.5 and a psychosocial health summary score of 78.7. The cardiac specific PedQL inventory score was 77.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>ECMO support for CDH patients is associated with functional and Quality of Life outcomes that are similar to that in other PICU discharge populations. Denying ECMO support to CDH patients on the basis of predicted poor long\u2010term outcomes does not appear to be justified.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jpc.16717","type":"journal-article","created":{"date-parts":[[2024,11,4]],"date-time":"2024-11-04T09:20:42Z","timestamp":1730712042000},"page":"75-79","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Long\u2010term outcomes and quality of life in congenital diaphragmatic hernia survivors treated with extracorporeal life support: A cross\u2010sectional survey"],"prefix":"10.1111","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7309-1167","authenticated-orcid":false,"given":"Adrian C","family":"Mattke","sequence":"first","affiliation":[{"name":"Department of Paediatric Intensive Care Queensland Children's Hospital  Brisbane Queensland Australia"},{"name":"Paediatric Critical Care Research Group  Brisbane Queensland Australia"},{"name":"Child Health Research Centre The University of Queensland  Brisbane Queensland Australia"},{"name":"The University of Queensland, School of Medicine  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nelson","family":"Alphonso","sequence":"additional","affiliation":[{"name":"Department of Cardiothoracic Surgery Queensland Children's Hospital  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chanelle","family":"Ren","sequence":"additional","affiliation":[{"name":"Department of Paediatric Intensive Care Queensland Children's Hospital  Brisbane Queensland Australia"},{"name":"The University of Queensland, School of Medicine  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Luke","family":"Jardine","sequence":"additional","affiliation":[{"name":"Neonatal Critical Care Unit, Mater Hospital  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6022-1065","authenticated-orcid":false,"given":"Kerry E","family":"Johnson","sequence":"additional","affiliation":[{"name":"Department of Paediatric Intensive Care Queensland Children's Hospital  Brisbane Queensland Australia"},{"name":"Paediatric Critical Care Research Group  Brisbane Queensland Australia"},{"name":"Child Health Research Centre The University of Queensland  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Prem","family":"Venugopal","sequence":"additional","affiliation":[{"name":"The University of Queensland, School of Medicine  Brisbane Queensland Australia"},{"name":"Department of Cardiothoracic Surgery Queensland Children's Hospital  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Craig A","family":"McBride","sequence":"additional","affiliation":[{"name":"Child Health Research Centre The University of Queensland  Brisbane Queensland Australia"},{"name":"Department of Paediatric Surgery Queensland Children's Hospital  Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,11,4]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/apa.16409"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/pan.13046"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.sempedsurg.2017.04.006"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/ans.13466"},{"key":"e_1_2_9_6_1","first-page":"14","article-title":"World Medical Association Declaration of Helsinki: Ethical principles for medical research involving human subjects","volume":"81","author":"General Assembly of the World Medical A","year":"2014","journal-title":"J. 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