{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,24]],"date-time":"2026-02-24T23:53:20Z","timestamp":1771977200889,"version":"3.50.1"},"reference-count":29,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2025,5,31]],"date-time":"2025-05-31T00:00:00Z","timestamp":1748649600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100005381","name":"Financial Markets Foundation for Children","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100005381","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec><jats:title>Aim<\/jats:title><jats:p>There is a lack of population\u2010based information on patterns of healthcare for children with juvenile idiopathic arthritis (JIA). The aim of this study was to examine the population incidence of health service utilisation for children with JIA.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We conducted a population\u2010based data linkage study that examined children aged &lt;\u200916 admitted to hospital with a diagnosis of JIA in New South Wales, Australia between 2002 and 2019. The annual incidence of JIA hospitalisations was calculated using population denominators. Health service utilisation and associated costs to the health system 12\u2009months before and after the first JIA admission were examined using linked hospital admission, emergency department (ED) and outpatient datasets.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>A total of 1433 children were admitted to hospital with a first diagnosis of JIA; the highest annual incidence was 7.2\/100\u2009000 children. In the year before the first JIA admission, 29% were admitted to hospital, 43% presented to the ED and 48% attended an outpatient clinic. In the year following the first JIA admission, inpatient\/outpatient attendance increased: 44% had at least one inpatient admission, 61% attended \u2265\u20091 outpatient clinics. ED presentations remained stable. The unadjusted total cost to the health system in the year before the first JIA admission was $4422 per child diagnosed with JIA compared to $11\u2009806 in the year following the first JIA admission.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Children with JIA have been demonstrated to be frequent users of hospital services, particularly just before and following their first admission for JIA, highlighting the impact of JIA both on the child and the health system.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jpc.70098","type":"journal-article","created":{"date-parts":[[2025,5,31]],"date-time":"2025-05-31T14:24:42Z","timestamp":1748701482000},"page":"1241-1248","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Population Incidence and Burden of Juvenile Idiopathic Arthritis on Australian Health System: Data Linkage Study"],"prefix":"10.1111","volume":"61","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8988-7407","authenticated-orcid":false,"given":"S. J.","family":"Lain","sequence":"first","affiliation":[{"name":"Child Population and Translational Health Research, Faculty of Medicine and Health The University of Sydney  Australia"},{"name":"Leeder Centre for Health Policy, Economics and Data, Faculty of Medicine and Health The University of Sydney  Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"L.","family":"Ivancic","sequence":"additional","affiliation":[{"name":"Child Population and Translational Health Research, Faculty of Medicine and Health The University of Sydney  Australia"},{"name":"Leeder Centre for Health Policy, Economics and Data, Faculty of Medicine and Health The University of Sydney  Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Chaitow","sequence":"additional","affiliation":[{"name":"Department of Rheumatology the Sydney Children's Hospitals Network  Sydney New South Wales Australia"},{"name":"Department of Rheumatology John Hunter Children's Hospital  Newcastle New South Wales Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7306-3713","authenticated-orcid":false,"given":"D.","family":"Singh\u2010Grewal","sequence":"additional","affiliation":[{"name":"Department of Rheumatology the Sydney Children's Hospitals Network  Sydney New South Wales Australia"},{"name":"Department of Rheumatology John Hunter Children's Hospital  Newcastle New South Wales Australia"},{"name":"Paediatrics and Child Health The University of Sydney  Sydney New South Wales Australia"},{"name":"Discipline of Paediatrics and Child Health University of NSW  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9452-4707","authenticated-orcid":false,"given":"D. M.","family":"Bond","sequence":"additional","affiliation":[{"name":"Child Population and Translational Health Research, Faculty of Medicine and Health The University of Sydney  Australia"},{"name":"Leeder Centre for Health Policy, Economics and Data, Faculty of Medicine and Health The University of Sydney  Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Von Huben","sequence":"additional","affiliation":[{"name":"Leeder Centre for Health Policy, Economics and Data, Faculty of Medicine and Health The University of Sydney  Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"R.","family":"Colagiuri","sequence":"additional","affiliation":[{"name":"Leeder Centre for Health Policy, Economics and Data, Faculty of Medicine and Health The University of Sydney  Australia"},{"name":"Juvenile Arthritis Foundation Australia (JAFA)  Sydney Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.","family":"Colagiuri","sequence":"additional","affiliation":[{"name":"Juvenile Arthritis Foundation Australia (JAFA)  Sydney Australia"},{"name":"Boden Initiative, Charles Perkins Centre The University of Sydney  Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"N.","family":"Nassar","sequence":"additional","affiliation":[{"name":"Child Population and Translational Health Research, Faculty of Medicine and Health The University of Sydney  Australia"},{"name":"Leeder Centre for Health Policy, Economics and Data, Faculty of Medicine and Health The University of Sydney  Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,5,31]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(07)60363-8"},{"key":"e_1_2_10_3_1","unstructured":"Australian Bureau of Statistics \u201cNational Health Survey \u201daccessed October 26 2023 https:\/\/www.abs.gov.au\/statistics\/health\/health\u2010conditions\u2010and\u2010risks\/national\u2010health\u2010survey\u2010first\u2010results\/latest\u2010release#chronic\u2010conditions."},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.98.1.84"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1093\/rap\/rkac067.064"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12969-019-0321-x"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40744-021-00331-x"},{"key":"e_1_2_10_8_1","unstructured":"Australian Insititute of Health and Welfare \u201cJuvenile Arthritis \u201d(Australian Government 2023) https:\/\/www.aihw.gov.au\/reports\/chronic\u2010musculoskeletal\u2010conditions\/juvenile\u2010arthritis."},{"key":"e_1_2_10_9_1","volume-title":"The Australian Statistical Geography Standard (ASGS) Remoteness Structure","author":"Australian Bureau of Statistics","year":"2011"},{"key":"e_1_2_10_10_1","volume-title":"Socio\u2010Economic Indexes for Areas","author":"Australian Bureau of Statistics","year":"2022"},{"key":"e_1_2_10_11_1","volume-title":"Australian Population Estimates by Age, Sex, Region. Report 3235.0","author":"Australian Bureau of Statistics","year":"2019"},{"key":"e_1_2_10_12_1","volume-title":"National Hospital Cost Data Collection (NHCDC) Public Sector Report 2018\u201319","author":"Independent Health and Aged Care Pricing Authority","year":"2021"},{"key":"e_1_2_10_13_1","unstructured":"Independent Health and Aged Care Pricing Authority \u201cPricing Framework National Efficient Price and National Efficient Cost Determinations 2023\u201324 \u201daccessed February 6 2025 https:\/\/www.ihacpa.gov.au\/resources\/national\u2010efficient\u2010price\u2010determination\u20102023\u201024."},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12969-023-00810-1"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.5114\/reum.2021.108356"},{"issue":"7","key":"e_1_2_10_16_1","first-page":"1520","article-title":"Worldwide Prevalence of Juvenile Arthritis Why Does It Vary So Much?","volume":"29","author":"Manners P. 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