{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T04:57:02Z","timestamp":1790571422521,"version":"4.1.0"},"reference-count":16,"publisher":"Wiley","issue":"9","license":[{"start":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T00:00:00Z","timestamp":1784592000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T00:00:00Z","timestamp":1784592000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aims<\/jats:title>\n                    <jats:p>To describe the volume, complexity, referral patterns and pre\u2010transition supports provided to a cohort of adolescents\/young adults (AYAs) transitioning to adult healthcare services from a tertiary paediatric centre.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      This is a cross\u2010sectional retrospective review of AYAs aged \u2265\u200917\u2009years who attended their\n                      <jats:italic>final<\/jats:italic>\n                      paediatric clinic review 1 January 2017\u201331 December 2018 with one or more of the most common chronic medical conditions or who attended the most frequently attended medical clinics at The Royal Children's Hospital, Melbourne.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      A total of 592 AYA (female\u2009=\u2009283, 47.8%) met the inclusion criteria, with a mean (SD) age at the final RCH clinic of 18.6 (1.1) years. Of these, 115 (19.43%) were discharged to primary care, 44 (7.43%) disengaged from RCH prior to formal transition 44 (7.43%) and 3 (1.85%) died prior to completion of the transition process. Of the 430 AYA who were referred for ongoing specialist care, 384 (89.3%) were expected to be reviewed within the public system. Pre\u2010transition support was accessed by 106\/430 (24.65%) where 83 (19.3%) received standardised support. Higher representation in those who received coordinated care (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200923, 5.35%) was seen in those; with \u2265\u20092 ongoing conditions, from regional postcodes, requiring interpreter assistance, with documented intellectual disability; and specific conditions such as epilepsy, inflammatory bowel disease and cerebral palsy.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Referral patterns and the nature of transition support at our institution are clinician\/department dependent and therefore access may not be equitable between or even within condition groups. These data provide a platform from which robust post\u2010transition outcome data and policy can be generated.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/jpc.70508","type":"journal-article","created":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T05:24:27Z","timestamp":1784697867000},"page":"1669-1675","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["A Data\u2010Driven Approach Towards Understanding the Volume and Complexity of Young Adults With Chronic Medical Conditions Transitioning to Adult Healthcare: A Cross\u2010Sectional Study"],"prefix":"10.1111","volume":"62","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8636-239X","authenticated-orcid":false,"given":"Mary","family":"White","sequence":"first","affiliation":[{"name":"Health Services &amp; Economics Murdoch Children's Research Institute  Parkville Victoria Australia"},{"name":"Department of Endocrinology &amp; Diabetes The Royal Children's Hospital  Parkville Victoria Australia"},{"name":"Melbourne School of Population and Global Health University of Melbourne  Carlton Victoria Australia"},{"name":"Department of Paediatrics University of Melbourne  Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ameer","family":"Lambrias","sequence":"additional","affiliation":[{"name":"Health Services &amp; Economics Murdoch Children's Research Institute  Parkville Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1692-4019","authenticated-orcid":false,"given":"Evelyn","family":"Culnane","sequence":"additional","affiliation":[{"name":"Transition Support Service The Royal Children's Hospital  Parkville Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alice","family":"Voskoboynik","sequence":"additional","affiliation":[{"name":"Department of Paediatrics University of Melbourne  Melbourne Australia"},{"name":"Centre for Health Analytics The Royal Children's Hospital  Parkville Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,21]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"RACP \u201cTransition to Adult Health Services for Adolescents With Chronic Conditions \u201dhttps:\/\/www.racp.edu.au\/docs\/default\u2010source\/advocacy\u2010library\/transition\u2010to\u2010adult\u2010health\u2010services\u2010for\u2010adolescents\u2010with\u2010chronic\u2010conditions.pdf."},{"key":"e_1_2_10_3_1","unstructured":"AIHW \u201cAustralia's Children \u201dhttps:\/\/www.aihw.gov.au\/reports\/children\u2010youth\/australias\u2010children\/contents\/background\/australian\u2010children\u2010and\u2010their\u2010families2022."},{"key":"e_1_2_10_4_1","unstructured":"AIHW \u201cChronic Conditions and Burden of Disease \u201dhttps:\/\/www.aihw.gov.au\/reports\/children\u2010youth\/australias\u2010children\/contents\/health\/chronic\u2010conditions\u2010burden\u2010disease2022."},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2352-4642(17)30089-5"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1182\/bloodadvances.2023011268"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2010.378"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1464-5491.2007.02152.x"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.24459"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2013-3875"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.acap.2018.02.010"},{"key":"e_1_2_10_12_1","unstructured":"EPIC \u201cEHR (Electronic Health Record) \u201dhttps:\/\/www.epic.com\/."},{"key":"e_1_2_10_13_1","unstructured":"The Royal Children's Hospital Melbourne \u201cTransition Support Service \u201dhttps:\/\/www.rch.org.au\/transition\/."},{"key":"e_1_2_10_14_1","unstructured":"Australian Bureau of Statistics \u201cSocio\u2010Economic Indexes for Areas \u201dhttps:\/\/www.abs.gov.au\/websitedbs\/censushome.nsf\/home\/seifa2023."},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.5694\/j.1326-5377.2005.tb06755.x"},{"key":"e_1_2_10_16_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2022-324000"},{"key":"e_1_2_10_17_1","unstructured":"Transition Compass Trial https:\/\/www.unsw.edu.au\/research\/behavioural\u2010sciences\u2010unit\/research\/health\u2010systems\u2010and\u2010survivorship\/transition\u2010compass."}],"container-title":["Journal of Paediatrics and Child Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jpc.70508","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jpc.70508","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jpc.70508","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T04:46:14Z","timestamp":1790570774000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jpc.70508"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7,21]]},"references-count":16,"journal-issue":{"issue":"9","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1111\/jpc.70508"],"URL":"https:\/\/doi.org\/10.1111\/jpc.70508","archive":["Portico"],"relation":{},"ISSN":["1034-4810","1440-1754"],"issn-type":[{"value":"1034-4810","type":"print"},{"value":"1440-1754","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,7,21]]},"assertion":[{"value":"2026-01-14","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-07-10","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-07-21","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}