{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T11:10:51Z","timestamp":1790248251735,"version":"4.1.0"},"reference-count":15,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T00:00:00Z","timestamp":1790208000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T00:00:00Z","timestamp":1790208000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["J Paediatrics Child Health"],"abstract":"ABSTRACT<\/jats:title>\n \n Aim<\/jats:title>\n Chronic paediatric conditions often significantly impact the patients' and their families' quality of life (QoL). There is a paucity in the medical literature around the QoL impact of paediatric vascular anomalies on patients and their families in the Australian context. This study aims to address this gap.<\/jats:p>\n <\/jats:sec>\n \n Methods<\/jats:title>\n We conducted a three\u2010month prospective questionnaire study using the children's dermatology life quality index (CDLQI), the outcome measures for vascular malformations (OVAMA), and the family dermatology life quality index (FDLQI).<\/jats:p>\n <\/jats:sec>\n \n Results<\/jats:title>\n Twenty\u2010five paediatric patients and 27 family members were recruited for the study. The mean scores for CDLQI, FDLQI, and OVAMA were 5, 6, and 33 respectively. The most reported QoL impact reported by paediatric patients was change of clothing and participation in sports whilst the most reported QoL impact reported by family is emotional stress and other people's reactions. The OVAMA questionnaire results highlight the significant impact caused by the change of colour of the skin due to vascular anomaly, which corresponds to the QoL impact reflected by the CDLQI and FDLQI surveys.<\/jats:p>\n <\/jats:sec>\n \n Conclusions<\/jats:title>\n This study highlights the appearance\u2010related quality\u2010of\u2010life impact of vascular anomaly experienced by both patients and their families within the Australian context. The findings underscore the potential benefit of cosmetic interventions in improving the overall well\u2010being of this patient population.<\/jats:p>\n <\/jats:sec>","DOI":"10.1111\/jpc.70557","type":"journal-article","created":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T10:40:44Z","timestamp":1790246444000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["The Quality of Life Impact of Vascular Anomalies on Patients and Their Families: Experience of a Tertiary Australian Centre"],"prefix":"10.1111","author":[{"given":"Kwan Lam (Genevieve)","family":"Chow","sequence":"first","affiliation":[{"name":"Sydney Medical School, Faculty of Medicine and Health The University of Sydney Camperdown New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gloria","family":"Fong","sequence":"additional","affiliation":[{"name":"Sydney Medical School, Faculty of Medicine and Health The University of Sydney Camperdown New South Wales Australia"},{"name":"Department of Dermatology The Children's Hospital, Westmead Hospital Westmead New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kelvin","family":"Truong","sequence":"additional","affiliation":[{"name":"Sydney Medical School, Faculty of Medicine and Health The University of Sydney Camperdown New South Wales Australia"},{"name":"Department of Dermatology The Children's Hospital, Westmead Hospital Westmead New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-6818-5581","authenticated-orcid":false,"given":"William","family":"Luu","sequence":"additional","affiliation":[{"name":"Nepean Blue Mountains Local Health District Penrith Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Li\u2010Chuen","family":"Wong","sequence":"additional","affiliation":[{"name":"Sydney Medical School, Faculty of Medicine and Health The University of Sydney Camperdown New South Wales Australia"},{"name":"Department of Dermatology The Children's Hospital, Westmead Hospital Westmead New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,24]]},"reference":[{"issue":"4","key":"e_1_2_12_2_1","doi-asserted-by":"crossref","first-page":"853","DOI":"10.1111\/bjd.14361","article-title":"Quality of Life Impact of Childhood Skin Conditions Measured Using the Children's Dermatology Life Quality Index (CDLQI): A Meta\u2010Analysis","volume":"174","author":"Olsen J. R.","year":"2016","journal-title":"British Journal of Dermatology"},{"issue":"1","key":"e_1_2_12_3_1","doi-asserted-by":"crossref","first-page":"e203","DOI":"10.1542\/peds.2014-3673","article-title":"Vascular Anomalies Classification: Recommendations From the International Society for the Study of Vascular Anomalies","volume":"136","author":"Wassef M.","year":"2015","journal-title":"Pediatrics"},{"issue":"5","key":"e_1_2_12_4_1","doi-asserted-by":"crossref","first-page":"899","DOI":"10.1016\/j.jaad.2018.05.1245","article-title":"Pain, Psychiatric Comorbidities, and Psychosocial Stressors Associated With Klippel\u2010Trenaunay Syndrome","volume":"79","author":"Harvey J. A.","year":"2018","journal-title":"Journal of the American Academy of Dermatology"},{"issue":"6","key":"e_1_2_12_5_1","doi-asserted-by":"crossref","first-page":"1707","DOI":"10.1007\/s11136-020-02435-3","article-title":"Qualitative Study of Patients With Venous Malformations: Symptom Experiences and Content Validity of Patient\u2010Reported Outcome Measures","volume":"29","author":"England R. W.","year":"2020","journal-title":"Quality of Life Research"},{"issue":"8","key":"e_1_2_12_6_1","doi-asserted-by":"crossref","first-page":"adv00516","DOI":"10.2340\/00015555-3883","article-title":"Influence of Port\u2010Wine Stains on Quality of Life of Children and Their Parents","volume":"101","author":"Jiang F.","year":"2021","journal-title":"Acta Dermato\u2010Venereologica"},{"issue":"7","key":"e_1_2_12_7_1","doi-asserted-by":"crossref","DOI":"10.1002\/pbc.30367","article-title":"Burdens of Disease and Caregiver Burden in Complex Vascular Malformations","volume":"70","author":"Kalbfell R.","year":"2023","journal-title":"Pediatric Blood & Cancer"},{"issue":"11","key":"e_1_2_12_8_1","doi-asserted-by":"crossref","first-page":"4202","DOI":"10.1016\/j.bjps.2022.08.042","article-title":"Appearance\u2010Related Concerns and Their Impact on Health\u2010Related Quality of Life in Patients With Peripheral Vascular Malformations","volume":"75","author":"Stor M. L. E.","year":"2022","journal-title":"Journal of Plastic, Reconstructive & Aesthetic Surgery"},{"issue":"7","key":"e_1_2_12_9_1","doi-asserted-by":"crossref","first-page":"1210","DOI":"10.1016\/j.jpedsurg.2015.02.035","article-title":"Prenatally Diagnosed Neck Masses: Long\u2010Term Outcomes and Quality of Life","volume":"50","author":"Sheikh F.","year":"2015","journal-title":"Journal of Pediatric Surgery"},{"issue":"7","key":"e_1_2_12_10_1","doi-asserted-by":"crossref","first-page":"2203","DOI":"10.1111\/jocd.14199","article-title":"Self\u2010Stigma and Psychosocial Burden of Patients With Port\u2010Wine Stain: A Systematic Review and Meta\u2010Analysis","volume":"20","author":"Wanitphakdeedecha R.","year":"2021","journal-title":"Journal of Cosmetic Dermatology"},{"issue":"3","key":"e_1_2_12_11_1","doi-asserted-by":"crossref","first-page":"211","DOI":"10.1177\/1203475415595175","article-title":"Impact of Cosmetic Camouflage on the Quality of Life of Children With Skin Disease and Their Families","volume":"20","author":"Salsberg J. M.","year":"2016","journal-title":"Journal of Cutaneous Medicine and Surgery"},{"issue":"7","key":"e_1_2_12_12_1","doi-asserted-by":"crossref","first-page":"813","DOI":"10.1111\/j.1468-3083.2008.02593.x","article-title":"Measurement of Family Impact of Skin Disease: Further Validation of the Family Dermatology Life Quality Index (FDLQI)","volume":"22","author":"Basra M.","year":"2008","journal-title":"Journal of the European Academy of Dermatology and Venereology"},{"issue":"6","key":"e_1_2_12_13_1","doi-asserted-by":"crossref","first-page":"942","DOI":"10.1111\/j.1365-2133.1995.tb16953.x","article-title":"The Children's Dermatology Life Quality Index (CDLQI): Initial Validation and Practical Use","volume":"132","author":"Lewis\u2010Jones M. S.","year":"1995","journal-title":"British Journal of Dermatology"},{"issue":"4","key":"e_1_2_12_14_1","doi-asserted-by":"crossref","first-page":"797","DOI":"10.1111\/bjd.20429","article-title":"Development of a Condition\u2010Specific Patient\u2010Reported Outcome Measure for Measuring Symptoms and Appearance in Vascular Malformations: The OVAMA Questionnaire","volume":"185","author":"Lokhorst M. M.","year":"2021","journal-title":"British Journal of Dermatology"},{"key":"e_1_2_12_15_1","unstructured":"Microsoft \u201cMicrosoft Excel \u201d 2024."},{"issue":"6","key":"e_1_2_12_16_1","doi-asserted-by":"crossref","first-page":"1533","DOI":"10.1038\/jid.2015.18","article-title":"Development and Validation of a Quality\u2010Of\u2010Life Instrument for Infantile Hemangiomas","volume":"135","author":"Chamlin S. L.","year":"2015","journal-title":"Journal of Investigative Dermatology"}],"container-title":["Journal of Paediatrics and Child Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jpc.70557","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jpc.70557","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jpc.70557","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T10:40:47Z","timestamp":1790246447000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jpc.70557"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9,24]]},"references-count":15,"alternative-id":["10.1111\/jpc.70557"],"URL":"https:\/\/doi.org\/10.1111\/jpc.70557","archive":["Portico"],"relation":{},"ISSN":["1034-4810","1440-1754"],"issn-type":[{"value":"1034-4810","type":"print"},{"value":"1440-1754","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,9,24]]},"assertion":[{"value":"2025-02-10","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-28","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-09-24","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"jpc.70557"}}