{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,12]],"date-time":"2026-09-12T21:39:03Z","timestamp":1789249143140,"version":"build-2803163510"},"reference-count":37,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2017,7,19]],"date-time":"2017-07-19T00:00:00Z","timestamp":1500422400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Psychiatric Ment Health Nurs"],"published-print":{"date-parts":[[2017,10]]},"abstract":"<jats:title>Accessible Summary<\/jats:title><jats:sec><jats:title>What is known on the subject?<\/jats:title><jats:p>\n<jats:list list-type=\"bullet\">\n\n<jats:list-item><jats:p>UK health policy is clear that researchers should involve the public throughout the research process.<\/jats:p><\/jats:list-item>\n\n<jats:list-item><jats:p>The public, including patients, carers and\/or local citizens can bring a different and valuable perspective to the research process and improve the quality of research undertaken.<\/jats:p><\/jats:list-item>\n\n<jats:list-item><jats:p>Conducting health research is demanding with tight deadlines and scarce resources. This can make involving the public in research very challenging.<\/jats:p><\/jats:list-item>\n<\/jats:list>\n<\/jats:p><\/jats:sec><jats:sec><jats:title>What this paper adds to existing knowledge?<\/jats:title><jats:p>\n<jats:list list-type=\"bullet\">\n\n<jats:list-item><jats:p>This is the first time the attitudes of researchers working in mental health and learning disability services towards PPI have been investigated.<\/jats:p><\/jats:list-item>\n\n<jats:list-item><jats:p>The principles of service user involvement in mental health and learning disability services may support PPI in research as a tool of collaboration and empowerment.<\/jats:p><\/jats:list-item>\n\n<jats:list-item><jats:p>This article extends our understanding of the cultural and attitudinal barriers to implementing PPI guidelines in mental health and learning disability services.<\/jats:p><\/jats:list-item>\n<\/jats:list>\n<\/jats:p><\/jats:sec><jats:sec><jats:title>What are the implications for practice?<\/jats:title><jats:p>\n<jats:list list-type=\"bullet\">\n\n<jats:list-item><jats:p>Researchers in mental health and learning disability services need to champion, share and publish effective involvement work.<\/jats:p><\/jats:list-item>\n\n<jats:list-item><jats:p>Structural barriers to PPI work should be addressed locally and successful strategies shared nationally and internationally.<\/jats:p><\/jats:list-item>\n\n<jats:list-item><jats:p>Where PPI guidelines are being developed, attention needs to be paid to cultural factors in the research community to win \u201chearts and minds\u201d and support the effective integration of PPI across the whole research process.<\/jats:p><\/jats:list-item>\n<\/jats:list>\n<\/jats:p><\/jats:sec><jats:sec><jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>Patient and public involvement (<jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content>) is integral to <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content> health research guidance; however, implementation is inconsistent. There is little research into the attitudes of <jats:styled-content style=\"fixed-case\">NHS<\/jats:styled-content> health researchers towards <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>This study explored the attitude of researchers working in mental health and learning disability services in the <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content> towards <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> in health research.<\/jats:p><\/jats:sec><jats:sec><jats:title>Method<\/jats:title><jats:p>Using a qualitative methodology, semi\u2010structured interviews were conducted with a purposive sample of eight researchers. A framework approach was used in the analysis to generate themes and core concepts.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Participants valued the perspective <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> could bring to research, but frustration with tokenistic approaches to involvement work was also evident. Some cultural and attitudinal barriers to integrating <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> across the whole research process were identified.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>Despite clear guidelines and established service user involvement, challenges still exist in the integration of <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> in mental health and learning disability research in the <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Implications for practice<\/jats:title><jats:p>Guidelines on <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> may not be enough to prompt changes in research practice. Leaders and researchers need to support attitudinal and cultural changes where required, to ensure the full potential of <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> in mental health and learning disability services research is realized.<\/jats:p><\/jats:sec><jats:sec><jats:title>Relevance statement<\/jats:title><jats:p>Findings suggest that despite clear guidelines and a history of service user involvement, there are still challenges to the integration of <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> in mental health and learning disability research in the <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content>. For countries where <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> guidelines are being developed, attention needs to be paid to cultural factors in the research community to win \u201chearts and minds\u201d and support the effective integration of <jats:styled-content style=\"fixed-case\">PPI<\/jats:styled-content> across the whole research process.<\/jats:p><\/jats:sec><\/jats:sec>","DOI":"10.1111\/jpm.12404","type":"journal-article","created":{"date-parts":[[2017,5,28]],"date-time":"2017-05-28T03:52:42Z","timestamp":1495943562000},"page":"570-579","source":"Crossref","is-referenced-by-count":36,"title":["Involving the public in mental health and learning disability research: Can we, should we, do we?"],"prefix":"10.1111","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5807-3462","authenticated-orcid":false,"given":"C.","family":"Paul","sequence":"first","affiliation":[{"name":"Leeds and York Partnership NHS Foundation Trust  Leeds UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.","family":"Holt","sequence":"additional","affiliation":[{"name":"School of Healthcare University of Leeds  Leeds UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,7,19]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732309331869"},{"key":"e_1_2_7_3_1","first-page":"109","volume-title":"Qualitative research practice","author":"Arthur S.","year":"2003"},{"key":"e_1_2_7_4_1","first-page":"1","article-title":"Can the impact of public involvement on research be evaluated? 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