{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,7]],"date-time":"2026-02-07T17:57:25Z","timestamp":1770487045170,"version":"3.49.0"},"reference-count":28,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2015,7,7]],"date-time":"2015-07-07T00:00:00Z","timestamp":1436227200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"Manchester Centre for Health Psychology"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Specialist Pediatric Nursing"],"published-print":{"date-parts":[[2015,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Purpose<\/jats:title><jats:p>To explore the experiences of parents whose child received a late diagnosis of cleft palate (&gt;24\u2009hr after birth).<\/jats:p><\/jats:sec><jats:sec><jats:title>Design and Methods<\/jats:title><jats:p>Parents of 17 children and three nurses specialised in cleft care (specialist nurses) took part in a qualitative, semi\u2010structured interview. Framework analysis was applied to data.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Loss and rebuilding was an overarching concept\u2014from the crescendo leading up to the bombshell of diagnosis, followed by the aftermath of dealing with the child's long\u2010term condition.<\/jats:p><\/jats:sec><jats:sec><jats:title>Practice implications<\/jats:title><jats:p>Specialist nurses can help parents to trust healthcare professionals and to feel confident in their ability to nurture by listening, informing, and supporting.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jspn.12125","type":"journal-article","created":{"date-parts":[[2015,7,7]],"date-time":"2015-07-07T05:41:35Z","timestamp":1436247695000},"page":"280-289","source":"Crossref","is-referenced-by-count":9,"title":["Loss and rebuilding: A qualitative study of late diagnosis of cleft palate"],"prefix":"10.1111","volume":"20","author":[{"given":"Stephanie","family":"Tierney","sequence":"first","affiliation":[{"name":"Royal College of Nursing Research Institute Warwick Medical School University of Warwick  Coventry UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maria","family":"Blackhurst","sequence":"additional","affiliation":[{"name":"Cleft Lip and Palate Association  UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rachael","family":"Scahill","sequence":"additional","affiliation":[{"name":"Cleft Lip and Palate Association  UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peter","family":"Callery","sequence":"additional","affiliation":[{"name":"School of Nursing, Midwifery and Social Work University of Manchester  Manchester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2015,7,7]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/23.2.99"},{"key":"e_1_2_7_3_1","first-page":"5","article-title":"Management of infants born with a cleft lip and palate: Part 1","volume":"4","author":"Bannister P.","year":"2008","journal-title":"Infant"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1177\/1043454203254040"},{"key":"e_1_2_7_5_1","unstructured":"CRANE(2012).Annual report on cleft lip and\/or palate 2012. 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