{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,19]],"date-time":"2026-10-19T16:58:40Z","timestamp":1792429120835,"version":"4.5.0"},"reference-count":16,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2017,6,18]],"date-time":"2017-06-18T00:00:00Z","timestamp":1497744000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Specialist Pediatric Nursing"],"published-print":{"date-parts":[[2017,7]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Purpose<\/jats:title><jats:p>The aim of the study was to explore the literature related to transitions in healthcare between the hospital and home that caregivers experience with a child who has a congenital heart defect (CHD), specifically related to hypoplastic left heart syndrome (HLHS).<\/jats:p><\/jats:sec><jats:sec><jats:title>Design and Methods<\/jats:title><jats:p>A systematic literature review was conducted searching OVID Medline, CINAHL, and PubMed to discover the caregivers\u2019 perceptions on their transitions between hospital care and home care of their child with a CHD. Articles included those with focus on the transitions of caregivers between hospital and home care for children with CHD. Excluded articles were studies focused on adolescents, transition to adult healthcare, mortality results, other diseases associated with CHDs, comparison of CHD treatments, feasibility studies, differences in care between hospitals, home monitoring, and comparison of videoconference and telephone home communication.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Ten articles were selected. Many parents voiced their concerns with feeding their child, learning medical skills and knowledge, reported a disrupted relationship between parents and their child, and identified stress and anxiety associated with taking care of a child with a CHD.<\/jats:p><\/jats:sec><jats:sec><jats:title>Practice Implications<\/jats:title><jats:p>There were limited studies on caregivers\u2019 transitions with a child with HLHS, but there also was limited focus on the caregivers\u2019 experiences with transitions between hospital and home care for their child with any CHD. Research on the transition experience between hospital care and home care for caregivers of children born with a CHD, and a specific focus on HLHS from the caregivers\u2019 viewpoint, would provide insight into the perspective of caregivers during the numerous transitions.<\/jats:p><\/jats:sec>","DOI":"10.1111\/jspn.12185","type":"journal-article","created":{"date-parts":[[2017,6,19]],"date-time":"2017-06-19T04:28:41Z","timestamp":1497846521000},"source":"Crossref","is-referenced-by-count":40,"title":["Parents\u2019 perceptions during the transition to home for their child with a congenital heart defect: How can we support families of children with hypoplastic left heart syndrome?"],"prefix":"10.1111","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3900-5047","authenticated-orcid":false,"given":"Sarita","family":"March","sequence":"first","affiliation":[{"name":"University of Virginia School of Nursing  Charlottesville VA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2017,6,18]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1747-0803.2011.00600.x"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951116001062"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1097\/NMC.0b013e318241dac1"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1047951111001600"},{"key":"e_1_2_9_6_1","unstructured":"Mayo Clinic. (2016).Hypoplastic left heart syndrome. Retrieved 24 September 2016 from Retrieved fromhttp:\/\/www.mayoclinic.org\/diseases-conditions\/hypoplastic-left-heart-syndrome\/home\/ovc-20164178"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1097\/00012272-200009000-00006"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1037\/h0089280"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0899-5885(18)30900-6"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2012.06044.x"},{"key":"e_1_2_9_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0882-5963(05)80098-3"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0882-5963(96)80093-5"},{"key":"e_1_2_9_13_1","unstructured":"The Children's Heart Foundation. (2012).What is a Congenital Heart Disease (CHD)?Retrieved 15 October from Retrieved fromhttp:\/\/www.childrensheartfoundation.org\/research\/what-is-a-chd"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/mcn.12302"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2014-308092"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2015-308827"},{"issue":"1","key":"e_1_2_9_17_1","first-page":"47","article-title":"Effect of a systematic discharge nursing plan on mothers' knowledge and confidence in caring for infants with congenital heart disease at home","volume":"103","author":"Yang H.","year":"2004","journal-title":"Journal of the Formosan Medical Association"}],"container-title":["Journal for Specialists in Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fjspn.12185","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jspn.12185","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,10,1]],"date-time":"2023-10-01T18:13:48Z","timestamp":1696184028000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/jspn.12185"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,6,18]]},"references-count":16,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2017,7]]}},"alternative-id":["10.1111\/jspn.12185"],"URL":"https:\/\/doi.org\/10.1111\/jspn.12185","archive":["Portico"],"relation":{},"ISSN":["1539-0136","1744-6155"],"issn-type":[{"value":"1539-0136","type":"print"},{"value":"1744-6155","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,6,18]]},"article-number":"e12185"}}