{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T00:20:24Z","timestamp":1791418824718,"version":"4.3.3"},"reference-count":20,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2020,4,21]],"date-time":"2020-04-21T00:00:00Z","timestamp":1587427200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Journal of Sleep Research"],"published-print":{"date-parts":[[2021,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>YouTube is the world's most popular video\u2010sharing site that in recent years has become an important platform for patients in finding educational information about their disease. The purpose of this study was to assess the quality and reliability of narcolepsy\u2010related YouTube videos. We searched the key terms \u201cNarcolepsy\u201d, \u201cNarcolepsy\u2010cataplexy,\u201d \u201cNarcolepsy excessive daytime sleepiness\u201d and \u201cNarcolepsy excessive drowsiness\u201d on YouTube. 80 videos were analyzed as they meet the inclusion criteria. Quantitative and qualitative metrics were recorded and the videos were scored using the DISCERN instrument by two independent raters. Our findings show that the majority of videos contained clear information (84%), symptoms (78%) and patient experience (69%). Most videos were published by an educational channel not representing a hospital or clinic (41%) or by a patient suffering from the disease (25%). Videos containing animations had a statistically significant correlation between average daily views (<jats:italic>p<\/jats:italic>\u00a0=\u00a0.0004) and the video power index (<jats:italic>p<\/jats:italic>\u00a0=\u00a0.0048), suggesting that this feature increased the popularity among viewers. The mean DISCERN score was 27\u00a0\u00b1\u00a08, indicating that the quality of narcolepsy related\u2010videos is poor. Therefore, patients that use YouTube as an educational tool are currently not attaining a comprehensive understanding of the disease. For this reason, we have indicated the top 5 videos that physicians can recommend to their patients. Our paper highlights the gaps of knowledge concerning narcolepsy information on YouTube. Therefore, this information can be used to create better educational content in the future.<\/jats:p>","DOI":"10.1111\/jsr.13053","type":"journal-article","created":{"date-parts":[[2020,4,21]],"date-time":"2020-04-21T13:11:04Z","timestamp":1587474664000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":32,"title":["YouTube as a source of information for narcolepsy: A content\u2010quality and optimization analysis"],"prefix":"10.1111","volume":"30","author":[{"given":"Tomasz","family":"Szmuda","sequence":"first","affiliation":[{"name":"Neurosurgery Department Medical University of Gdansk Gdansk Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4461-1255","authenticated-orcid":false,"given":"Cathrine","family":"\u00d6zdemir","sequence":"additional","affiliation":[{"name":"Scientific Circle of Neurology and Neurosurgery Neurosurgery Department Medical University of Gdansk Gdansk Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karolina","family":"Fedorow","sequence":"additional","affiliation":[{"name":"Scientific Circle of Neurology and Neurosurgery Neurosurgery Department Medical University of Gdansk Gdansk Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shan","family":"Ali","sequence":"additional","affiliation":[{"name":"Scientific Circle of Neurology and Neurosurgery Neurosurgery Department Medical University of Gdansk Gdansk Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pawe\u0142","family":"S\u0142oniewski","sequence":"additional","affiliation":[{"name":"Neurosurgery Department Medical University of Gdansk Gdansk Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,4,21]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.2196\/11419"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.2106\/JBJS.N.01189"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/jech.53.2.105"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0082469"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/mus.24916"},{"key":"e_1_2_6_7_1","volume-title":"iProspect Search Engine User Behaviour Study","year":"2006"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcm.2016.02.012"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijmedinf.2008.03.002"},{"key":"e_1_2_6_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-94-009-1952-5_9"},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1177\/0883073811402345"},{"key":"e_1_2_6_12_1","volume-title":"Narcolepsy Misunderstood\/Misdiagnosed | More Than TiredTM"},{"key":"e_1_2_6_13_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMra1500587"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wneu.2019.05.171"},{"key":"e_1_2_6_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.wneu.2020.02.149"},{"key":"e_1_2_6_16_1","volume-title":"The medical and economic burden of narcolepsy: Implications for managed care","author":"Thorpy M. 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