{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,9]],"date-time":"2026-09-09T23:46:03Z","timestamp":1788997563263,"version":"build-2803163510"},"reference-count":29,"publisher":"Elsevier BV","issue":"6","license":[{"start":{"date-parts":[[2021,6,1]],"date-time":"2021-06-01T00:00:00Z","timestamp":1622505600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2021,6,1]],"date-time":"2021-06-01T00:00:00Z","timestamp":1622505600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2022,11,4]],"date-time":"2022-11-04T00:00:00Z","timestamp":1667520000000},"content-version":"vor","delay-in-days":521,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"content-domain":{"domain":["jthjournal.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Thrombosis and Haemostasis"],"published-print":{"date-parts":[[2021,6]]},"DOI":"10.1111\/jth.15311","type":"journal-article","created":{"date-parts":[[2021,3,28]],"date-time":"2021-03-28T10:09:05Z","timestamp":1616926145000},"page":"1506-1514","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":55,"title":["\u201cThey don\u2019t really take my bleeds seriously\u201d: Barriers to care for women with inherited bleeding disorders"],"prefix":"10.1016","volume":"19","author":[{"given":"Sumedha","family":"Arya","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Wilton","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Page","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laurence","family":"Boma\u2010Fischer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgina","family":"Floros","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rochelle","family":"Winikoff","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jerome","family":"Teitel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katie","family":"Dainty","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Sholzberg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1111\/jth.15311_bb0010","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1111\/ejh.12580","article-title":"Improving care and treatment options for women and girls with bleeding disorders","volume":"95","author":"Kulkarni","year":"2015","journal-title":"Eur J Haematol"},{"issue":"9","key":"10.1111\/jth.15311_bb0015","doi-asserted-by":"crossref","first-page":"1249","DOI":"10.1089\/jwh.2007.CDC11","article-title":"Women with bleeding disorders","volume":"16","author":"Byams","year":"2007","journal-title":"J Women's Health"},{"key":"10.1111\/jth.15311_bb0020","doi-asserted-by":"crossref","first-page":"160","DOI":"10.1111\/j.1365-2516.2010.02315.x","article-title":"Women and bleeding disorders","volume":"16","author":"James","year":"2010","journal-title":"Haemophilia"},{"key":"10.1111\/jth.15311_bb0025","doi-asserted-by":"crossref","first-page":"236","DOI":"10.1111\/j.1538-7836.2011.04372.x","article-title":"Gynecological and obstetrical manifestations of inherited bleeding disorders in women","volume":"9","author":"Peyvandi","year":"2011","journal-title":"J Thromb Haemost"},{"key":"10.1111\/jth.15311_bb0030","doi-asserted-by":"crossref","first-page":"33","DOI":"10.1111\/j.1365-2516.2011.02563.x","article-title":"Quality of life in women with bleeding disorders","volume":"17","author":"Von Mackensen","year":"2011","journal-title":"Haemophilia"},{"issue":"12","key":"10.1111\/jth.15311_bb0035","doi-asserted-by":"crossref","first-page":"3211","DOI":"10.1111\/jth.15102","article-title":"\u201cEverything was blood when it comes to me\u201d: Understanding the lived experiences of women with inherited bleeding disorders","volume":"18","author":"Arya","year":"2020","journal-title":"J Thromb Haemost"},{"issue":"4","key":"10.1111\/jth.15311_bb0040","doi-asserted-by":"crossref","first-page":"443","DOI":"10.1089\/jwh.1.1999.8.443","article-title":"von Willebrand disease in women: the need for recognition and understanding","volume":"8","author":"Dilley","year":"1999","journal-title":"J Womens Health Gend Based Med"},{"issue":"1","key":"10.1111\/jth.15311_bb0045","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1016\/j.ajog.2009.04.024","article-title":"Von Willebrand disease and other bleeding disorders in women: consensus on diagnosis and management from an international expert panel","volume":"201","author":"James","year":"2009","journal-title":"Am J Obstet Gynecol"},{"issue":"5","key":"10.1111\/jth.15311_bb0050","first-page":"20","article-title":"Von Willebrand an underdiagnosed disorder","volume":"62","author":"James","year":"2017","journal-title":"Contemporary OB\/GYN"},{"issue":"2","key":"10.1111\/jth.15311_bb0055","doi-asserted-by":"crossref","first-page":"237","DOI":"10.1111\/j.1365-2516.2010.02424.x","article-title":"Qualitative assessment of the emotional and behavioural responses of haemophilia A carriers to negative experiences in their medical care","volume":"17","author":"Renault","year":"2011","journal-title":"Haemophilia"},{"key":"10.1111\/jth.15311_bb0060","doi-asserted-by":"crossref","first-page":"5","DOI":"10.1111\/ejh.12854","article-title":"Management of US men, women, and children with hemophilia and methods and demographics of the bridging hemophilia B experiences, results and opportunities into solutions (B\u2010HERO\u2010S) study","volume":"98","author":"Buckner","year":"2017","journal-title":"Eur J Haematol"},{"issue":"2","key":"10.1111\/jth.15311_bb0065","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0229099","article-title":"Healthcare provider perspectives on inequities in access to care for patients with inherited bleeding disorders","volume":"15","author":"Arya","year":"2020","journal-title":"PLoS One"},{"issue":"5","key":"10.1111\/jth.15311_bb0070","doi-asserted-by":"crossref","first-page":"e276","DOI":"10.1111\/hae.12155","article-title":"The experience of girls and young women with inherited bleeding disorders","volume":"19","author":"Khair","year":"2013","journal-title":"Haemophilia"},{"issue":"1","key":"10.1111\/jth.15311_bb0075","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1002\/rth2.12468","article-title":"Sexism in the management of bleeding disorders","volume":"5","author":"Weyand","year":"2021","journal-title":"Res Pract Thromb Haemost"},{"key":"10.1111\/jth.15311_bb0080","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1111\/j.1748-720X.2001.tb00037.x","article-title":"The girl who cried pain: a bias against women in the treatment of pain","volume":"28","author":"Hoffmann","year":"2001","journal-title":"J Law Med Ethics"},{"issue":"2","key":"10.1111\/jth.15311_bb0085","first-page":"148","article-title":"Women\u2019s experiences of stigma in relation to chronic fatigue syndrome and fibromyalgia","volume":"12","author":"\u00c5sbring","year":"2002","journal-title":"Qual Health Res"},{"issue":"1","key":"10.1111\/jth.15311_bb0090","doi-asserted-by":"crossref","first-page":"32","DOI":"10.1016\/j.fertnstert.2007.11.020","article-title":"Diagnostic experience among 4,334 women reporting surgically diagnosed endometriosis","volume":"91","author":"Greene","year":"2009","journal-title":"Fertil Steril"},{"issue":"2","key":"10.1111\/jth.15311_bb0095","first-page":"82","article-title":"A population\u2010based assessment of chronic unexplained vulvar pain: have we underestimated the prevalence of vulvodynia?","volume":"58","author":"Harlow","year":"2003","journal-title":"J Am Med Women's Assoc"},{"issue":"3","key":"10.1111\/jth.15311_bb0100","doi-asserted-by":"crossref","first-page":"241","DOI":"10.1080\/07399332.2018.1521811","article-title":"Dismissing chronic illness: a qualitative analysis of negative health care experiences","volume":"40","author":"McManimen","year":"2019","journal-title":"Health Care Women Int"},{"key":"10.1111\/jth.15311_bb0105","unstructured":"Mccleary KK, Veasley C, Ballweg ML. Chronic Pain in Women: Neglect, Dismissal and Discrimination [Internet]. 2010 www.EndWomensPain.org"},{"issue":"4","key":"10.1111\/jth.15311_bb0110","doi-asserted-by":"crossref","first-page":"467","DOI":"10.1111\/jmwh.12448","article-title":"Women's experiences being diagnosed with peripartum cardiomyopathy: a qualitative study","volume":"61","author":"Dekker","year":"2016","journal-title":"J Midw Women's Health"},{"issue":"1","key":"10.1111\/jth.15311_bb0115","doi-asserted-by":"crossref","first-page":"10","DOI":"10.15420\/ecr.2016:32:1","article-title":"Cardiovascular disease in women: understanding symptoms and risk factors","volume":"12","author":"Keteepe\u2010Arachi","year":"2017","journal-title":"Eur Cardiol Rev"},{"key":"10.1111\/jth.15311_bb0120","unstructured":"America HF. Women Bleed Too Toolkit [Internet]. 2021. Available from: https:\/\/www.hemophiliafed.org\/for\u2010patient\u2010families\/resources\/toolkits\/women\u2010bleed\u2010too\u2010toolkit\/"},{"issue":"4","key":"10.1111\/jth.15311_bb0125","doi-asserted-by":"crossref","first-page":"e282","DOI":"10.1111\/hae.13271","article-title":"Let's Talk Period! Preliminary results of an online bleeding awareness knowledge translation project and bleeding assessment tool promoted on social media","volume":"23","author":"Reynen","year":"2017","journal-title":"Haemophilia"},{"issue":"6","key":"10.1111\/jth.15311_bb0130","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1093\/jamia\/ocaa067","article-title":"Telehealth transformation: COVID\u201019 and the rise of virtual care","volume":"27","author":"Wosik","year":"2020","journal-title":"J Am Med Inform Assoc"},{"issue":"5","key":"10.1111\/jth.15311_bb0135","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1177\/1357633X20916567","article-title":"Telehealth for global emergencies: Implications for coronavirus disease 2019 (COVID\u201019)","volume":"26","author":"Smith","year":"2020","journal-title":"Journal of telemedicine and telecare"},{"key":"10.1111\/jth.15311_bb0140","unstructured":"Ministry of Health and Long\u2010Term. OHIP Bulletins: Ontario Health Insurance Plan. OHIP Bulletins [Internet]. 2020. Available from: http:\/\/www.health.gov.on.ca\/en\/pro\/programs\/ohip\/bulletins\/4000\/bul4746.aspx"},{"key":"10.1111\/jth.15311_bb0145","unstructured":"Kronfili C. Realizing the full potential of virtual care in ontario. COVID\u201010 policy brief. 2020;1\u201030."},{"key":"10.1111\/jth.15311_bb0150","unstructured":"Infoway CH. Canadians\u2019 health care experiences during COVID\u201019. Canada Health Infoway Analysis. 2020; 1\u201341."}],"container-title":["Journal of Thrombosis and Haemostasis"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jth.15311","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/jth.15311","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1538783622007905?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1538783622007905?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/jth.15311","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,10,27]],"date-time":"2025-10-27T03:33:02Z","timestamp":1761535982000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1538783622007905"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,6]]},"references-count":29,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2021,6]]}},"alternative-id":["S1538783622007905"],"URL":"https:\/\/doi.org\/10.1111\/jth.15311","relation":{},"ISSN":["1538-7836"],"issn-type":[{"value":"1538-7836","type":"print"}],"subject":[],"published":{"date-parts":[[2021,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"\u201cThey don\u2019t really take my bleeds seriously\u201d: Barriers to care for women with inherited bleeding disorders","name":"articletitle","label":"Article Title"},{"value":"Journal of Thrombosis and Haemostasis","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1111\/jth.15311","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2021 International Society on Thrombosis and Haemostasis. Published by Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}