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The qualitative approach used in\u2010depth interviews about the subjective experience of symptoms, medical help seeking, and self\u2010help strategies for their IC. The quantitative inquiry was conducted by a yes or no response to the question \u201cDid self\u2010perceived severe symptoms of IC interfere with your daily life?\u201d A loglinear model was applied to investigate the associations between possible factors.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>This study recruited 68 women aged 20 to 69\u2009years, of whom 22 were interviewed for qualitative data. About 72.1% of the women responded that self\u2010perceived severe IC symptoms interfered with their daily life. A significant negative association between employment and self\u2010perceived severe IC symptoms (<jats:italic>P<\/jats:italic> &lt; .05) was observed. Qualitative results revealed three important themes: (1) bothersome symptoms\u2014all\u2010day bladder pain and lower urinary tract symptoms and deteriorated quality of life, (2) medical help seeking\u2014exhaustion and frustration, (3) self\u2010help strategies\u2014coexisting with IC or feeling helpless.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>IC women feel exhausted and frustrated by seeking medical attention for this incurable disease for a long time. IC women have troubled and uneasy daily lives. Being employed or engaging in activities can divert attention to alleviate symptoms. IC patient support groups allow patients to share their self\u2010help experiences with interdisciplinary medical teams to provide physical and psychological treatment.<\/jats:p><\/jats:sec>","DOI":"10.1111\/luts.12300","type":"journal-article","created":{"date-parts":[[2020,1,23]],"date-time":"2020-01-23T04:44:27Z","timestamp":1579754667000},"page":"183-189","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["Self\u2010perception of symptoms, medical help seeking, and self\u2010help strategies of women with interstitial cystitis\/painful bladder syndrome"],"prefix":"10.1111","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5982-8705","authenticated-orcid":false,"given":"Hui\u2010Chun","family":"Chen","sequence":"first","affiliation":[{"name":"Department of Nursing National Taipei University of Nursing and Health Sciences  Taipei Taiwan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chieh\u2010Yu","family":"Liu","sequence":"additional","affiliation":[{"name":"Department of Speech Language Pathology and Audiology National Taipei University of Nursing and Health Sciences  Taipei Taiwan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chun\u2010Hou","family":"Liao","sequence":"additional","affiliation":[{"name":"Department of Urology Cardinal Tien Hospital and Fu\u2010Jen Catholic University  New Taipei Taiwan"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lee\u2010Ing","family":"Tsao","sequence":"additional","affiliation":[{"name":"College of Nursing National Taipei University of Nursing and Health Sciences  Taipei Taiwan"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,1,22]]},"reference":[{"key":"e_1_2_7_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/bju.14399"},{"key":"e_1_2_7_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/luts.12214"},{"key":"e_1_2_7_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00192-016-3022-8"},{"key":"e_1_2_7_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/bju.13874"},{"key":"e_1_2_7_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/luts.12013"},{"key":"e_1_2_7_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2013.11.055"},{"key":"e_1_2_7_8_1","doi-asserted-by":"publisher","DOI":"10.5664\/jcsm.4292"},{"key":"e_1_2_7_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1442-2042.2008.02020.x"},{"key":"e_1_2_7_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/luts.12238"},{"key":"e_1_2_7_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejogrb.2004.06.012"},{"key":"e_1_2_7_12_1","doi-asserted-by":"publisher","DOI":"10.1023\/A:1021447612079"},{"key":"e_1_2_7_13_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00192-016-3109-2"},{"key":"e_1_2_7_14_1","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/S0094-0143(21)00586-3","article-title":"Interstitial cystitis: a patient's perspective","volume":"21","author":"Ratner V","year":"1994","journal-title":"Urol Clin North Am"},{"key":"e_1_2_7_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.urology.2011.12.053"},{"key":"e_1_2_7_16_1","doi-asserted-by":"publisher","DOI":"10.4111\/kju.2010.51.1.45"},{"key":"e_1_2_7_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.juro.2015.01.086"},{"key":"e_1_2_7_18_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.HNP.0000325999.27193.4a"},{"key":"e_1_2_7_19_1","doi-asserted-by":"publisher","DOI":"10.1080\/07399339109515940"},{"key":"e_1_2_7_20_1","first-page":"83","article-title":"Treating interstitial cystitis\/bladder pain syndrome as a chronic disease","volume":"16","author":"Bosch PC","year":"2014","journal-title":"Rev Urol"},{"key":"e_1_2_7_21_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11255-014-0908-6"},{"key":"e_1_2_7_22_1","doi-asserted-by":"publisher","DOI":"10.4081\/aiua.2014.2.126"},{"key":"e_1_2_7_23_1","doi-asserted-by":"publisher","DOI":"10.1300\/J013v31n04_05"},{"key":"e_1_2_7_24_1","doi-asserted-by":"publisher","DOI":"10.5301\/uj.5000261"},{"key":"e_1_2_7_25_1","doi-asserted-by":"publisher","DOI":"10.1002\/nau.23421"},{"key":"e_1_2_7_26_1","doi-asserted-by":"publisher","DOI":"10.1097\/00006199-199001000-00009"},{"key":"e_1_2_7_27_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1525-1446.1992.tb00083.x"},{"key":"e_1_2_7_28_1","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1520-6777(1996)15:6<630::AID-NAU4>3.0.CO;2-G"},{"key":"e_1_2_7_29_1","doi-asserted-by":"publisher","DOI":"10.1089\/jwh.2008.1270"},{"key":"e_1_2_7_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.urology.2011.04.030"},{"key":"e_1_2_7_31_1","first-page":"1356","article-title":"Symptom profile variability of interstitial cystitis\/painful bladder syndrome by age","volume":"106","author":"Rais\u2010Bahrami S","year":"2011","journal-title":"BJU Int"},{"key":"e_1_2_7_32_1","unstructured":"WisdomJ CreswellJW. 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