{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,27]],"date-time":"2026-02-27T02:53:11Z","timestamp":1772160791694,"version":"3.50.1"},"reference-count":38,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2020,6,23]],"date-time":"2020-06-23T00:00:00Z","timestamp":1592870400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/501100001538","name":"Victoria University of Wellington","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001538","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Nursing &amp; Health Sciences"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:p>This authors report on the findings of a study designed to establish website\u2010based self\u2010management recommendations for sickle cell disease. Google and Yahoo search engines were used to search the World Wide Web. Purposive sampling was used to select 28 websites that met the inclusion criteria. Data were manually collected from health education materials and subjected to qualitative content analysis. Self\u2010management was conceptualized as actions involving preventive health, self\u2010monitoring, self\u2010diagnosing, and self\u2010treatment. The results show that the websites recommend more self\u2010management actions for preventive health and self\u2010treatment than for self\u2010monitoring and self\u2010diagnosis. Frequent oral fluid intake, limitation of overactivity, eating a healthy diet, avoiding extreme temperatures, and infections were the most common preventive health recommendations. Daily pain monitoring and general bodily inspections were the most frequent self\u2010monitoring recommendations. Commonly cited self\u2010diagnostic indicators were fever, persistent pain, enlarged spleen, and leg ulcers. The use of analgesics and nonpharmacological measures were regularly cited for self\u2010treatment. Most recommendations were assessed as clinically safe as they align with standards for sickle cell management. Nurses and other professionals should teach clients how to assess the credibility of websites.<\/jats:p>","DOI":"10.1111\/nhs.12741","type":"journal-article","created":{"date-parts":[[2020,5,18]],"date-time":"2020-05-18T23:24:21Z","timestamp":1589844261000},"page":"881-891","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Self\u2010management recommendations for sickle cell disease: A content analysis of websites"],"prefix":"10.1111","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1614-6579","authenticated-orcid":false,"given":"Andrews A.","family":"Druye","sequence":"first","affiliation":[{"name":"School of Nursing and Midwifery, University of Cape Coast  Cape Coast Ghana"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Katherine","family":"Nelson","sequence":"additional","affiliation":[{"name":"Graduate School of Nursing, Midwifery &amp; Health, Victoria University of Wellington  Wellington New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Brian","family":"Robinson","sequence":"additional","affiliation":[{"name":"Graduate School of Nursing, Midwifery &amp; Health, Victoria University of Wellington  Wellington New Zealand"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2020,6,23]]},"reference":[{"key":"e_1_2_10_2_1","volume-title":"Report of a summit. The 1st annual crossing the quality chasm summit \u2010 A focus on communities","author":"Adams K.","year":"2004"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2458-13-1141"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2014.302041r"},{"key":"e_1_2_10_5_1","unstructured":"Brady T. J. Murphy L. Beauchesne D. Bhalakia A. Chervin D. Daniels B. \u2026O'Colmain B. (2011). Sorting through the evidence for the arthritis self\u2010management program and the chronic disease self management program: Executive summary of ASMP\/CDSMP meta\u2010analyses. Retrieved fromhttp:\/\/www.cdc.gov\/arthritis\/docs\/ASMP-executive-summary.pdf"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.26309"},{"key":"e_1_2_10_7_1","unstructured":"CDC. (n.d.).Living well with sickle cell disease: Self\u2010care toolkit. (CS226674\u2010B). Retrieved fromhttps:\/\/www.cdc.gov\/ncbddd\/sicklecell\/healthyliving-living-well.html."},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2013-303773"},{"key":"e_1_2_10_9_1","volume-title":"Self management strategies for people with sickle cell disease in Ghana, (PhD Thesis)","author":"Druye A. A.","year":"2017"},{"issue":"4","key":"e_1_2_10_10_1","first-page":"711","article-title":"Vulnerability in adults with sickle cell disease: Subsidies for nursing care","volume":"12","author":"Ferreira S. 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M.","year":"2011","journal-title":"Nursing Research and Practice"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1002\/nur.20261"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/0145721713492567"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmn.2014.07.003"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsn121"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2016-09-702324"},{"key":"e_1_2_10_23_1","unstructured":"McGowan P. (2011). Health promotion chronic disease self managment strategies for nurses. 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Retrieved fromhttps:\/\/www.nhlbi.nih.gov\/sites\/www.nhlbi.nih.gov\/files\/sickle-cell-disease-report.pdf."},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-15750-4_27"},{"key":"e_1_2_10_28_1","doi-asserted-by":"publisher","DOI":"10.1177\/0898264313502531"},{"key":"e_1_2_10_29_1","doi-asserted-by":"publisher","DOI":"10.3163\/1536-5050.104.4.007"},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(12)61229-X"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.outlook.2008.10.004"},{"key":"e_1_2_10_32_1","unstructured":"Search Engine Watch. (2016). What are the top 10 most popular search engines? Retrieved fromhttps:\/\/www.searchenginewatch.com\/2016\/08\/08\/what-are-the-top-10-most-popular-search-engines\/"},{"key":"e_1_2_10_33_1","unstructured":"Self Management Resource Centre. (2019). Chronic disease self managment programme. 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