{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T04:01:07Z","timestamp":1790136067150,"version":"4.0.1"},"reference-count":64,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T00:00:00Z","timestamp":1787097600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T00:00:00Z","timestamp":1787097600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Nursing &amp; Health Sciences"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:p>The study aimed to explore the lived experiences of married dialysis patients on the national organ waiting list, focusing on the interplay between illness, familial roles, and societal norms. This research is a qualitative study using semi\u2010structured interviews and participant observation. The study involved 23 marriage\u2010experienced hemodialysis\u2010dependent patients (13 women, 10 men) on the national organ waiting list, recruited between August 16 and November 11, 2022. Data were collected through interviews and observations and were analyzed thematically to identify recurring patterns. Chronic kidney disease (CKD) poses significant physical, psychological, and social burdens, particularly for hemodialysis\u2010dependent patients. Five main themes emerged from this study: (1) When Care Becomes a Test, (2) Dealing with Social Isolation, (3) Sacrifices to Sustain the Marriage, (4) Uninvited voices, (5) Resentful but Thankful. These findings highlight the need for family\u2010centered care that considers diverse family structures and social contexts, while also demonstrating the impact of prolonged hemodialysis (HD) and marital strain on emotional and sexual intimacy.<\/jats:p>","DOI":"10.1111\/nhs.70409","type":"journal-article","created":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T23:54:19Z","timestamp":1787183659000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Between Survival and Sacrifice: Marital Experiences of Patients Undergoing Hemodialysis"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4684-8333","authenticated-orcid":false,"given":"Seher","family":"\u00c7akmak","sequence":"first","affiliation":[{"name":"Department of Internal Medicine Nursing, Faculty of Health Sciences G\u00fcm\u00fc\u015fhane University  G\u00fcm\u00fc\u015fhane Turkiye"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4134-9159","authenticated-orcid":false,"given":"Hicran","family":"Karata\u015f","sequence":"additional","affiliation":[{"name":"Sociology Department, Faculty of Letters Bart\u0131n University  Bart\u0131n Turkiye"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,8,19]]},"reference":[{"key":"e_1_2_14_2_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2024.24993"},{"key":"e_1_2_14_3_1","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2015.1133746"},{"key":"e_1_2_14_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/jorc.12152"},{"key":"e_1_2_14_5_1","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare10050897"},{"key":"e_1_2_14_6_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph16173086"},{"key":"e_1_2_14_7_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0257691"},{"key":"e_1_2_14_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/10436596231166041"},{"key":"e_1_2_14_9_1","doi-asserted-by":"publisher","DOI":"10.1590\/1806\u20109282.66.s1.3"},{"key":"e_1_2_14_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/00003727-199002000-00009"},{"key":"e_1_2_14_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jiph.2020.02.041"},{"key":"e_1_2_14_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/hdi.12744"},{"key":"e_1_2_14_13_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_14_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/jorc.12209"},{"key":"e_1_2_14_15_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph192215266"},{"key":"e_1_2_14_16_1","doi-asserted-by":"publisher","DOI":"10.2215\/CJN.01650216"},{"key":"e_1_2_14_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.13107"},{"key":"e_1_2_14_18_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.trre.2025.100961"},{"key":"e_1_2_14_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2023.115900"},{"key":"e_1_2_14_20_1","doi-asserted-by":"publisher","DOI":"10.1038\/sj.ijir.3901470"},{"key":"e_1_2_14_21_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2004.08.043"},{"key":"e_1_2_14_22_1","doi-asserted-by":"publisher","DOI":"10.1053\/ajkd.2001.27704"},{"issue":"2","key":"e_1_2_14_23_1","first-page":"1","article-title":"The Effects of the Symptoms Experienced by Patients Undergoing Hemodialysis Treatment on Their Comfort Levels","volume":"6","author":"Dikmen R. D.","year":"2020","journal-title":"Journal of Clinical Nephrology and Renal Care"},{"key":"e_1_2_14_24_1","doi-asserted-by":"publisher","DOI":"10.3390\/jcs8050172"},{"key":"e_1_2_14_25_1","doi-asserted-by":"publisher","DOI":"10.1038\/ncpneph0438"},{"key":"e_1_2_14_26_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.1003954"},{"key":"e_1_2_14_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11195-016-9428-x"},{"key":"e_1_2_14_28_1","doi-asserted-by":"publisher","DOI":"10.1177\/1468794109337872"},{"key":"e_1_2_14_29_1","doi-asserted-by":"publisher","DOI":"10.1525\/9780520951747"},{"key":"e_1_2_14_30_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2024.117466"},{"key":"e_1_2_14_31_1","doi-asserted-by":"publisher","DOI":"10.54005\/geneltip.1115090"},{"key":"e_1_2_14_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/1043659620988339"},{"key":"e_1_2_14_33_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.kisu.2021.11.003"},{"key":"e_1_2_14_34_1","doi-asserted-by":"publisher","DOI":"10.1177\/10778004221134088"},{"key":"e_1_2_14_35_1","doi-asserted-by":"publisher","DOI":"10.1037\/fsh0000293"},{"key":"e_1_2_14_36_1","doi-asserted-by":"publisher","DOI":"10.1016\/0147-1767(85)90062-8"},{"key":"e_1_2_14_37_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12882\u2010026\u201004898\u2010x"},{"key":"e_1_2_14_38_1","first-page":"42","article-title":"The Experiences of Patients With Chronic Kidney Disease Undergoing Dialysis in Managing the Symptoms","volume":"18","author":"Mailani F.","year":"2022","journal-title":"Malaysian Journal of Medicine & Health Sciences"},{"issue":"1","key":"e_1_2_14_39_1","first-page":"13","article-title":"Learning From Stories of People With Chronic Kidney Disease","volume":"35","author":"Molzahn A. E.","year":"2008","journal-title":"Nephrology Nursing Journal"},{"key":"e_1_2_14_40_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2020.07.014"},{"key":"e_1_2_14_41_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2022.02.016"},{"key":"e_1_2_14_42_1","doi-asserted-by":"publisher","DOI":"10.2147\/PROM.S431746"},{"key":"e_1_2_14_43_1","doi-asserted-by":"publisher","DOI":"10.3390\/diseases8030029"},{"issue":"1","key":"e_1_2_14_44_1","first-page":"22","article-title":"Diet and Fluid Restriction Experiences of Patients on Hemodialysis: A Meta\u2010Synthesis Study","volume":"42","author":"\u00d6zkan I.","year":"2022","journal-title":"Revista de Nefrolog\u00eda, Di\u00e1lisis y Trasplante"},{"key":"e_1_2_14_45_1","doi-asserted-by":"publisher","DOI":"10.1590\/1518-8345.3641.3327"},{"key":"e_1_2_14_46_1","doi-asserted-by":"publisher","DOI":"10.1177\/13634593211046842"},{"key":"e_1_2_14_47_1","doi-asserted-by":"publisher","DOI":"10.1177\/17423953221124312"},{"key":"e_1_2_14_48_1","doi-asserted-by":"publisher","DOI":"10.1111\/anti.12869"},{"key":"e_1_2_14_49_1","doi-asserted-by":"publisher","DOI":"10.5152\/turkjnephrol.2024.24722"},{"key":"e_1_2_14_50_1","doi-asserted-by":"publisher","DOI":"10.4103\/1735-9066.164514"},{"key":"e_1_2_14_51_1","doi-asserted-by":"publisher","DOI":"10.1177\/23333936221128240"},{"key":"e_1_2_14_52_1","unstructured":"T\u00dc\u0130K.2021.\u201cT\u00fcrkiye Aile Yap\u0131s\u0131 Ara\u015ft\u0131rmas\u0131 T\u00fcrkiye \u0130statistik Kurumu Haber B\u00fclteni.\u201d"},{"key":"e_1_2_14_53_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12144-023-05165-0"},{"key":"e_1_2_14_54_1","doi-asserted-by":"publisher","DOI":"10.1177\/1359105319853340"},{"key":"e_1_2_14_55_1","doi-asserted-by":"publisher","DOI":"10.1016\/0277\u20109536(91)90178\u2010F"},{"key":"e_1_2_14_56_1","volume-title":"Addressing the Mental Health Challenges of Life With Kidney Disease","author":"Wilton J.","year":"2023"},{"key":"e_1_2_14_57_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41598-023-47091-y"},{"key":"e_1_2_14_58_1","doi-asserted-by":"publisher","DOI":"10.1037\/qup0000301"},{"key":"e_1_2_14_59_1","doi-asserted-by":"publisher","DOI":"10.1111\/nhs.70226"},{"key":"e_1_2_14_60_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.kisu.2019.11.010"},{"key":"e_1_2_14_61_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.12994"},{"key":"e_1_2_14_62_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2025.108717"},{"key":"e_1_2_14_63_1","doi-asserted-by":"publisher","DOI":"10.1080\/17437199.2025.2496230"},{"key":"e_1_2_14_64_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnsa.2024.100193"},{"key":"e_1_2_14_65_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11255-022-03194-5"}],"container-title":["Nursing &amp; Health Sciences"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/nhs.70409","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/nhs.70409","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/nhs.70409","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,9,23]],"date-time":"2026-09-23T03:08:13Z","timestamp":1790132893000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/nhs.70409"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,8,19]]},"references-count":64,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2026,9]]}},"alternative-id":["10.1111\/nhs.70409"],"URL":"https:\/\/doi.org\/10.1111\/nhs.70409","archive":["Portico"],"relation":{},"ISSN":["1441-0745","1442-2018"],"issn-type":[{"value":"1441-0745","type":"print"},{"value":"1442-2018","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,8,19]]},"assertion":[{"value":"2026-04-19","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-03","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-19","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70409"}}